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Is This Where I Introduce Myself?


Adelle

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Adelle Enthusiast

Hey! My name is Adelle, and I'm from salem, oregon. Ummmm..... What should I say?? I'm soooooo glad to have found ya'll!!!! I have been getting progressively weaker for the past 6 years (I'm 22 now). I have been close to bedbound from pain and fatigue. 9 docs have either given up or said it was a "mental thing". I finally took charge of my health and googled my symptoms. I cut gluten out and in 4 days I felt better than I had in a year. My doc (#10) did the blood test, I'm at his office waiting for the official word, but his office called telling me to stay on the diet! I feel incredible! I am now a certified equine massage therapist (yay!) and I'm practically going insane from all the energy. I'm married and my hubby is going gluten free too (how swet!). My fam is great (keeping food I can eat there, adjusting thanksgiving etc). This feels like a miracle. Ahhhhh yay!


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Turtle Enthusiast

That's AWESOME!

Welcome to the boards!!

You'll love it here!!

mouse Enthusiast

Welcome to the forum. Just remember that we do not consider any question stupid. That is great that doctor #10 listened to you and ran the blood tests. That is totally awesome.

AndreaB Contributor

Welcome Adelle! :D

You've come to the right place. This is a very warm and loving community.

BTW....I'm about 2 hours North of you....SW Washington, north of Vancouver about 1/2 hour.

ÆON Newbie

Howdy hi!

I'm happy to hear that you found the problem and are feeling better. I'm kinda new here too and have found this to be the greatest place for information and support. :)

Guest ~jules~

Hi, I am from salem also! Wow there really is someone else in this town with celiac....If you don't mind me asking, are you seeing a gi? I see Dr. Em at salem gastroenterology, he's awesome. I actually only had to see him twice before diagnosed, imagine that! My family doctor is the stubborn moron, he's over at the salem clinic, I'm looking to change that soon. I saw him about 6 times over a period of a year and a half before he even gave me a refferal, that I had to ask for. :blink: Well, welcome to the group, if I find any good gluten-free stuff here in town I'll be sure to share, or don't hesitate to ask....Julie

Adelle Enthusiast

No I'm not seeing a GI yet, I did about 4.5 years ago. He said I was, "just fine". So I really don't want to see another doc, yet. Yay more people in salem!! I'm me or something sometime :). Anyway, I'm so happy to find a place like this. I just got a bread maker today. Mmmm gluten-free sandwiches. Well, I have nothing else to say. Thanks for bein here ya'll!


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Lisa Mentor

Welcome Adelle:

I just wanted to add that the poster "Nini" has a gluten free startes list, that has lots of great information for those begining the diet. Just remember, being gluten free, is not all about food. Gluten can be found the shampoos, soap, cat food, dog food, face creams and and basically anything that can get into your mouth.

Do a members search for her name and personal message her and it will be there for you.

Again, welcome to the world of Celiacland.

Lisa

par18 Apprentice
Hey! My name is Adelle, and I'm from salem, oregon. Ummmm..... What should I say?? I'm soooooo glad to have found ya'll!!!! I have been getting progressively weaker for the past 6 years (I'm 22 now). I have been close to bedbound from pain and fatigue. 9 docs have either given up or said it was a "mental thing". I finally took charge of my health and googled my symptoms. I cut gluten out and in 4 days I felt better than I had in a year. My doc (#10) did the blood test, I'm at his office waiting for the official word, but his office called telling me to stay on the diet! I feel incredible! I am now a certified equine massage therapist (yay!) and I'm practically going insane from all the energy. I'm married and my hubby is going gluten free too (how swet!). My fam is great (keeping food I can eat there, adjusting thanksgiving etc). This feels like a miracle. Ahhhhh yay!

Hi,

I am really impressed that you were able to find out on your own. Also that you feel confident that the diet is your answer. Just keep listening to your body. Having a spouse willing to support you makes all the difference. I feel 100% that you will continue to progress. My wife supported my diet and our home is gluten free. Good luck and welcome. Your success is our success!

Tom

Adelle Enthusiast

I know I'm uber lucky! Yay! So far things are going well (3.5 weeks!). Someone mentioned to look in unexpected stuff, all clear, I randomly got lucky with my bath products, I already cleared/washed the cupboards. But I forgot to check my guinea pig food! I have 2 piggies, boudika and maeve. Their food contains wheat. Oh no! I can't just not feed them. Luckily ryan (my husband) volunteered to feed them (and buy the food etc) so I don't have to touch it! I also work with horses (many of whom eat oats), so I'l have to wash my hands a ton and be extra careful. Anyway I feel so welcomed! Yay!

AndreaB Contributor

I love horses!!!!!

I had one in high school. Now I collect breyer custom painted horses. :)

cowrdlyon Rookie

Conragtulations on finding the site. I too was only diagnosed recently. August 16th to be exact. I was on vacation at the beach and got a call from the doctors office...Happy Birthday, I know your on vacation so enjoy the sun...By the way, stop eating all wheat and products containing gluten bacause that's what has been making you sick for the last 4 months!!! Not the perfect way or day to find out but what can ya do? I've been gluten free since 3 days after that and I feel so much better. So......Welcome, Welcome, Welcome and hang in there!

lovebug Newbie
Hey! My name is Adelle, and I'm from salem, oregon. Ummmm..... What should I say?? I'm soooooo glad to have found ya'll!!!! I have been getting progressively weaker for the past 6 years (I'm 22 now). I have been close to bedbound from pain and fatigue. 9 docs have either given up or said it was a "mental thing". I finally took charge of my health and googled my symptoms. I cut gluten out and in 4 days I felt better than I had in a year. My doc (#10) did the blood test, I'm at his office waiting for the official word, but his office called telling me to stay on the diet! I feel incredible! I am now a certified equine massage therapist (yay!) and I'm practically going insane from all the energy. I'm married and my hubby is going gluten free too (how swet!). My fam is great (keeping food I can eat there, adjusting thanksgiving etc). This feels like a miracle. Ahhhhh yay!

thats great you are lucky. i was diagnosed in april and have been on the gluten-free diet ever since but i am very sick. i myself am so week i cant work.

debmidge Rising Star

Adelle

Welcome! You'll be glad that you came aboard. There's a great group of people here who are very eager to share tips, hints and commiserate with you if you need it.

Don't be bashful about joining in any of the threads.

Deb

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      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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