Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scott - Administrator

Lisa

By Lisa
in Introduce Yourself / Share Stuff

Recommended Posts

Lisa Mentor
Lisa
Posted

Scott:

I have been hanging around here for over a year. I can not tell you the scope of the help that I have gotten from this site that you have created. I praise you for your effort, and as well, I hope that it has been productive for you. When lost in a world that no one understands, I find peace here and a comfort that can not be found elsewhere. I truely believe that, with the creation of this site, you may have save many lives.

Many cheers to you.

With that said. I would like to ask, "what was the motivation in creating this forum, that many of us are so dependent on for information".

Would you kindly tell us a little about "you"? :)

Lisa

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

Yes, Scott, Thank you for creating this forum as a branch to your site. I have made some wonderful friends and learned a lot!

Ursa Major Collaborator
Ursa Major
Posted

Follow this link to get his story: Scott Adams' Story of His Diagnosis of Celiac Disease

Lisa Mentor
Lisa
Posted
  • Author

Ursula:

thanks for that post as it answered all my questions.

Scott Adams Grand Master
Scott Adams
Posted

I just saw this topic today (I actually don't get to browse the forums as often as I'd like). In case anyone is wondering about my professional background, I have a B.A. in History with a minor in German (I did a one year exchange at Tuebingen University in Germany). I had several jobs right after college, and my favorite was working for an environmental group called Clean Water Action. I moved from Tempe, AZ (where I grew up and went to college) to San Francisco in the early 90's. Around then I thought that I wanted to become a lawyer, so I worked as a corporate paralegal for about five years, then switched death penalty defense for the State of California's Habeas Corpus Resource Center. I got diagnosed with celiac disease in about 1994 and started what because Celiac.com in 1995--there wasn't a single site on the Internet at that time that was solely dedicted to the topic--only about 10 pages total that was scatted buried on 2-3 different sites. I started The Gluten-Free Mall in 1998, and running these sites became a full time job for me in 2001. I now live in Santa Rosa, CA with my wife and two children.

Take care,

Scott

CarlaB Enthusiast
CarlaB
Posted
Good googly moogly Scott... now I wish I had done something useful with my life... I am jealous... :lol:

Thanks so much!

And who is that your holding? Is there something about that that's not useful????

Thanks for posting, Scott, it's good to see your around the forums and interesting to hear how this all came about. I am curious ... who was member number 1?

Guest Robbin
Guest Robbin
Posted

:) Thank you Scott for sharing and for your work to help others who are struggling. Your warmth comes through your post and wow, what a resume'! You should add to that resume' "Life Saver" for that is what you are doing-helping to save lives, perhaps relationships, and health of many. :)

Celia, you have done amazing things with your life. A big thing you have done is make others smile and happy in the midst of misery of illness. Thank you too. :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

There is no longer a user #1, that user was a programmer who helped me set the board up. We deleted his account after we set it up.

FYI: I almost caved in to pressure to discontinue the older version of this board (and the idea of a board altoether) because a very large celiac support group in the UK told me that they were removing the link to my site on their site because of the board. They believed (at that time anyway) that boards were only full of "misinformation" and that I would actually be hurting people by hosting a board. It was very early on and after I saw what was happening on my board--that it was actually very "self correcting"--I decided to keep it even if they didn't link to me anymore.

Take care,

Scott

jerseyangel Proficient
jerseyangel
Posted

Thank goodness you stood your ground on the board! Can't imagine what I would have done without it this past year :)

Ursa Major Collaborator
Ursa Major
Posted

I am awfully glad you kept the board, Scott, I would NEVER have been able to figure out all my intolerances and health concerns without the people here!

Interesting about you studying in Germany for a year, I imagine your German must be quite good (even though possibly a tad rusty by now :P ).

Okay, I read about your son having the celiac disease genes. Anyway, now that we're finding out more about you, how about telling us a little bit about your family, too?

AndreaB Contributor
AndreaB
Posted

I got to say I'm glad you kept this board up too Scott.

I knew I was IgG Allergic to wheat, gluten and gliadin, but would have remained gluten light until I stated developing more symptoms and my infant son's eczema would not have cleared up completely. I've learned everything I know about celiac and gluten intolerance on this board and your parent site.

Turtle Enthusiast
Turtle
Posted

Thanks Scott for sharing a little about yourself and for sharing celiac.com with all of us!

You've touched a lot of people's lives and that is something you should be very proud of!

All your hard work is much appreciated & does not go unnoticed.

Have a great day!

Canadian Karen Community Regular
Canadian Karen
Posted

Scott,

I am sitting here in awe, thinking about how one person could make such an impact in the celiac world.

Here you are, just a regular guy (I mean that in a good way!), who took the bull by the horns and poured your heart and soul into this website. The fact is you have made such a HUGE impact in the celiac world and to people WORLDWIDE and for that you should be incredibly proud of your accomplishments.

You are a true and shining example how much one person can make a difference. It gives me renewed strength in my quest to educate insurance companies and get them on our side when it comes to getting doctors to test for celiac. You have shown me that it CAN be done!

Forever Grateful,

Karen

nikki-uk Enthusiast
nikki-uk
Posted
FYI: I almost caved in to pressure to discontinue the older version of this board (and the idea of a board altoether) because a very large celiac support group in the UK told me that they were removing the link to my site on their site because of the board. They believed (at that time anyway) that boards were only full of "misinformation" and that I would actually be hurting people by hosting a board.

Goodness,what an unfriendly lot!!(We're not all like that in the UK you know! ;) )

Glad you didn't bow down to the pressure!

:)

Jestgar Rising Star
Jestgar
Posted
Scott,

Here you are, just a regular guy...

Hopefully, since he's gluten-free now

rinne Apprentice
rinne
Posted
Hopefully, since he's gluten-free now

LOL

Thank you Scott, this site has been a life saver for me and that might even be a literal statement.

mouse Enthusiast
mouse
Posted

When I got diagnosed in 2/04, I had no idea what Celiac was and had to learn about it via the internet. I think it was about April of that year that I found Scott's site and signed up for his newsletter. I had scrolled down through the list on the left and saw Message Board, but since I was certainly computer illiterate, I thought it was just a chat room. Like the type that my granddaughter goes to. I never clicked on it to see what it was until last year. Then I joined.

I thank Scott for having the site and this forum. I have learned more since I joined the forum then all my hundreds of hours of research, prior to joining the board. I have also made some friends here that I will always treasure.

jkmunchkin Rising Star
jkmunchkin
Posted

Scott - I can't thank you enough for creating this board. This was the first board I visited when reseearching and being diagnosed with celiac. I always say that if not for this board, I would be eating dirt. The help and information I have received from this board is priceless.

It is because of the board you created that I am enjoying a delicious dinner of Tinkyada pasta and with grilled Premio sausage with melted Kraft Italian cheese and Ragu.

THANK YOU!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once...
    2. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note:...
    3. Scott Adams
      0

      Homemade Gluten-Free Egg Drop Soup

    4. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it. There are...
    5. lalan45
      - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,840
    • Most Online (within 30 mins)
      7,748
    Pat C
    Newest Member
    Pat C
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      Am I nuts?

      By lalan45 · Posted

      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.