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Scott - Administrator


Lisa

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Lisa Mentor

Scott:

I have been hanging around here for over a year. I can not tell you the scope of the help that I have gotten from this site that you have created. I praise you for your effort, and as well, I hope that it has been productive for you. When lost in a world that no one understands, I find peace here and a comfort that can not be found elsewhere. I truely believe that, with the creation of this site, you may have save many lives.

Many cheers to you.

With that said. I would like to ask, "what was the motivation in creating this forum, that many of us are so dependent on for information".

Would you kindly tell us a little about "you"? :)

Lisa


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AndreaB Contributor

Yes, Scott, Thank you for creating this forum as a branch to your site. I have made some wonderful friends and learned a lot!

Ursa Major Collaborator

Follow this link to get his story: Scott Adams' Story of His Diagnosis of Celiac Disease

Lisa Mentor

Ursula:

thanks for that post as it answered all my questions.

Scott Adams Grand Master

I just saw this topic today (I actually don't get to browse the forums as often as I'd like). In case anyone is wondering about my professional background, I have a B.A. in History with a minor in German (I did a one year exchange at Tuebingen University in Germany). I had several jobs right after college, and my favorite was working for an environmental group called Clean Water Action. I moved from Tempe, AZ (where I grew up and went to college) to San Francisco in the early 90's. Around then I thought that I wanted to become a lawyer, so I worked as a corporate paralegal for about five years, then switched death penalty defense for the State of California's Habeas Corpus Resource Center. I got diagnosed with celiac disease in about 1994 and started what because Celiac.com in 1995--there wasn't a single site on the Internet at that time that was solely dedicted to the topic--only about 10 pages total that was scatted buried on 2-3 different sites. I started The Gluten-Free Mall in 1998, and running these sites became a full time job for me in 2001. I now live in Santa Rosa, CA with my wife and two children.

Take care,

Scott

CarlaB Enthusiast
Good googly moogly Scott... now I wish I had done something useful with my life... I am jealous... :lol:

Thanks so much!

And who is that your holding? Is there something about that that's not useful????

Thanks for posting, Scott, it's good to see your around the forums and interesting to hear how this all came about. I am curious ... who was member number 1?

Guest Robbin

:) Thank you Scott for sharing and for your work to help others who are struggling. Your warmth comes through your post and wow, what a resume'! You should add to that resume' "Life Saver" for that is what you are doing-helping to save lives, perhaps relationships, and health of many. :)

Celia, you have done amazing things with your life. A big thing you have done is make others smile and happy in the midst of misery of illness. Thank you too. :D


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Scott Adams Grand Master

There is no longer a user #1, that user was a programmer who helped me set the board up. We deleted his account after we set it up.

FYI: I almost caved in to pressure to discontinue the older version of this board (and the idea of a board altoether) because a very large celiac support group in the UK told me that they were removing the link to my site on their site because of the board. They believed (at that time anyway) that boards were only full of "misinformation" and that I would actually be hurting people by hosting a board. It was very early on and after I saw what was happening on my board--that it was actually very "self correcting"--I decided to keep it even if they didn't link to me anymore.

Take care,

Scott

jerseyangel Proficient

Thank goodness you stood your ground on the board! Can't imagine what I would have done without it this past year :)

Ursa Major Collaborator

I am awfully glad you kept the board, Scott, I would NEVER have been able to figure out all my intolerances and health concerns without the people here!

Interesting about you studying in Germany for a year, I imagine your German must be quite good (even though possibly a tad rusty by now :P ).

Okay, I read about your son having the celiac disease genes. Anyway, now that we're finding out more about you, how about telling us a little bit about your family, too?

AndreaB Contributor

I got to say I'm glad you kept this board up too Scott.

I knew I was IgG Allergic to wheat, gluten and gliadin, but would have remained gluten light until I stated developing more symptoms and my infant son's eczema would not have cleared up completely. I've learned everything I know about celiac and gluten intolerance on this board and your parent site.

Turtle Enthusiast

Thanks Scott for sharing a little about yourself and for sharing celiac.com with all of us!

You've touched a lot of people's lives and that is something you should be very proud of!

All your hard work is much appreciated & does not go unnoticed.

Have a great day!

Canadian Karen Community Regular

Scott,

I am sitting here in awe, thinking about how one person could make such an impact in the celiac world.

Here you are, just a regular guy (I mean that in a good way!), who took the bull by the horns and poured your heart and soul into this website. The fact is you have made such a HUGE impact in the celiac world and to people WORLDWIDE and for that you should be incredibly proud of your accomplishments.

You are a true and shining example how much one person can make a difference. It gives me renewed strength in my quest to educate insurance companies and get them on our side when it comes to getting doctors to test for celiac. You have shown me that it CAN be done!

Forever Grateful,

Karen

nikki-uk Enthusiast
FYI: I almost caved in to pressure to discontinue the older version of this board (and the idea of a board altoether) because a very large celiac support group in the UK told me that they were removing the link to my site on their site because of the board. They believed (at that time anyway) that boards were only full of "misinformation" and that I would actually be hurting people by hosting a board.

Goodness,what an unfriendly lot!!(We're not all like that in the UK you know! ;) )

Glad you didn't bow down to the pressure!

:)

Jestgar Rising Star
Scott,

Here you are, just a regular guy...

Hopefully, since he's gluten-free now

rinne Apprentice
Hopefully, since he's gluten-free now

LOL

Thank you Scott, this site has been a life saver for me and that might even be a literal statement.

mouse Enthusiast

When I got diagnosed in 2/04, I had no idea what Celiac was and had to learn about it via the internet. I think it was about April of that year that I found Scott's site and signed up for his newsletter. I had scrolled down through the list on the left and saw Message Board, but since I was certainly computer illiterate, I thought it was just a chat room. Like the type that my granddaughter goes to. I never clicked on it to see what it was until last year. Then I joined.

I thank Scott for having the site and this forum. I have learned more since I joined the forum then all my hundreds of hours of research, prior to joining the board. I have also made some friends here that I will always treasure.

jkmunchkin Rising Star

Scott - I can't thank you enough for creating this board. This was the first board I visited when reseearching and being diagnosed with celiac. I always say that if not for this board, I would be eating dirt. The help and information I have received from this board is priceless.

It is because of the board you created that I am enjoying a delicious dinner of Tinkyada pasta and with grilled Premio sausage with melted Kraft Italian cheese and Ragu.

THANK YOU!!

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    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
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    • trents
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    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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