Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could I Have Celiace Dsease?


Guest ColleenMax

Recommended Posts

Guest ColleenMax

Hello: I am new here and need help! I went to my doctor yesterday and mentioned that I have been feeling dizzy and have had gas pains that I think are coneccted to eating cheese but allergy testing showed nothing -- all 0's. I also live in an old building which has significant amounts of mold and fungus. Last week I had a migrane. She retested for cheese and mold. I will get results next week. I do have a history of severe abdominal cramping. Lately I have been eating pizza. Yesterday I had mac & cheese with severe cramps last night. I barely made it home. Today I feel well -- I had sprouted grain bread with Peanut Butter and Jelly (from health food store), Green Tea and honey. I realize that these S&S's point in many different directions. ADVICE??????


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BostonCeliac Apprentice

Hi -- Welcome!

By the way, the "sprouted grain bread" you ate probably had wheat or gluten in it unless you checked... But if you think it might be celiac - maybe just ask your DR for the blood test, it was easy for me, I made a phone call, went in, and got results 5 days later (positive).

I would also advise reading a lot of the posts on this forum to see other people's symptoms to see if they sound familiar.... For me, my biggest symtom was unexplained anemia, then I started having major bloating, gas, etc... I also was feeling like I couldn't concentrate, and was extremely tired (prob. due to anemia)... but everyone's symptoms are different.

Do some research, family history seems to play a role in this as well...If you think you have it, get the blood test. It could be this among many other things, maybe a lactose intolerance.. who knows.

Good luck!! Keep us posted.

kbtoyssni Contributor

Your symptoms could be from a combination of irratants. Before I went gluten-free, pizza always made me sick, but bread never did. I now think that I got sick from pizza due to the combination of wheat with cheese and tomato. I do not have a problem with cheese now that I'm gluten-free. Not sure if this helps - the pizza thing just reminded me of me. Ok, got to run, I have to be somewhere in three minutes!

jerseyangel Proficient

Your symptoms could point to a lot of things. If you suspect Celiac, ask your doctor to run the Complete Celiac Blood Panel. :)

Another possibility is food intolerance--that wouldn't show up on an allergy test.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,921
    • Most Online (within 30 mins)
      7,748

    Linda Higgs
    Newest Member
    Linda Higgs
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ginger38
      Okay, Thank you!! I already have thyroid problems and my total iron binding capacity is high which usually means low iron but everything else was normal, lower end but “normal” my hair falls out and my nails won’t grow without breaking but nothing is being treated iron wise.  I have started having palpitations and chest pain,  both of which seem to be attributed to exposure to gluten. I’ve also been having a lot of nightmares, anxiety, numbness and tingling, brain fog, spotting between cycles and acne. Idk if all those are relatable to gluten / celiac but I’m concerned  I’ve finally tipped my body/ immune system into a bad place. Is there anyway to detox and heal faster or treat these symptoms if related to gluten ? 
    • knitty kitty
      @Alibu, Start with this study... High-dose thiamine supplementation improves glucose tolerance in hyperglycemic individuals: a randomized, double-blind cross-over trial https://pubmed.ncbi.nlm.nih.gov/23715873/ "Conclusion/interpretation: Supplementation with high-dose thiamine may prevent deterioration in fasting glucose and insulin, and improve glucose tolerance in patients with hyperglycemia. High-dose thiamine supplementation may prevent or slow the progression of hyperglycemia toward diabetes mellitus in individuals with impaired glucose regulation." They used 100 mg of thiamine three times a day.  They don't say which kind of thiamine was used.  Benfotiamine is my recommendation because it has been shown to promote intestinal health and helps with leaky gut and SIBO.  Thiamine forms including Benfotiamine and TTFD are safe and nontoxic even in higher doses.   The old "gold standard" diagnosis is changing.  It must be confusing for doctors as well.  I went through all this myself, so I understand the frustration of the vagueness, but set your course and watch as your health improves. Keep us posted on your progress!   P.S. here's another link.... https://pubmed.ncbi.nlm.nih.gov/39642136/
    • Alibu
      @knitty kitty I see, thank you!!  Yes, basically the biopsy just said "normal villous architecture."  It didn't give any kind of Marsh score at all, but it sounds like it would be a 0 based on the biopsy report, which is why he's saying it's Latent or Potential celiac.  It's just weird because I know in Europe if I was a child, they wouldn't even do the biopsy, so how does this system make any sense?? I have had an A1c and it's normal.  I do know that I have insulin resistance, however, so there's that. Wow, thank you for all this information!!!  I have a lot of reading to do!
    • trents
      That is one issue but the bigger issue may be the human tendency to rationalize it all away without an official diagnosis such that you keep falling off the gluten free bandwagon. But there is the option of going for the gluten challenge in a more robust way and getting retested.
    • Scott Adams
      Welcome to the forum!  Do you mean that you eat food from fryers that also cook gluten items, and you don't have serious issues? If so, the problem with this approach is that, depending on how often you do this, you could be causing villi damage if you have celiac disease (you haven't mentioned whether or not you have celiac disease), which can lead to more serious issues later.
×
×
  • Create New...