Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could I Have Celiace Dsease?


Guest ColleenMax

Recommended Posts

Guest ColleenMax

Hello: I am new here and need help! I went to my doctor yesterday and mentioned that I have been feeling dizzy and have had gas pains that I think are coneccted to eating cheese but allergy testing showed nothing -- all 0's. I also live in an old building which has significant amounts of mold and fungus. Last week I had a migrane. She retested for cheese and mold. I will get results next week. I do have a history of severe abdominal cramping. Lately I have been eating pizza. Yesterday I had mac & cheese with severe cramps last night. I barely made it home. Today I feel well -- I had sprouted grain bread with Peanut Butter and Jelly (from health food store), Green Tea and honey. I realize that these S&S's point in many different directions. ADVICE??????


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BostonCeliac Apprentice

Hi -- Welcome!

By the way, the "sprouted grain bread" you ate probably had wheat or gluten in it unless you checked... But if you think it might be celiac - maybe just ask your DR for the blood test, it was easy for me, I made a phone call, went in, and got results 5 days later (positive).

I would also advise reading a lot of the posts on this forum to see other people's symptoms to see if they sound familiar.... For me, my biggest symtom was unexplained anemia, then I started having major bloating, gas, etc... I also was feeling like I couldn't concentrate, and was extremely tired (prob. due to anemia)... but everyone's symptoms are different.

Do some research, family history seems to play a role in this as well...If you think you have it, get the blood test. It could be this among many other things, maybe a lactose intolerance.. who knows.

Good luck!! Keep us posted.

kbtoyssni Contributor

Your symptoms could be from a combination of irratants. Before I went gluten-free, pizza always made me sick, but bread never did. I now think that I got sick from pizza due to the combination of wheat with cheese and tomato. I do not have a problem with cheese now that I'm gluten-free. Not sure if this helps - the pizza thing just reminded me of me. Ok, got to run, I have to be somewhere in three minutes!

jerseyangel Proficient

Your symptoms could point to a lot of things. If you suspect Celiac, ask your doctor to run the Complete Celiac Blood Panel. :)

Another possibility is food intolerance--that wouldn't show up on an allergy test.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748

    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.