Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hair Loss


taffymorgan

Recommended Posts

taffymorgan Newbie

Hi,

I am new to this post and am currently undergoing tests to see if I have this disease. I was quite surprised to have my Doctor suggest it and had never heard of it before but I am a petite female who in the past 6 months has lost alot of weight and am now losing my hair. Its quite freaky and due to my intestinal problems, he is suggesting it could be Celiac disease. Has anyone else experienced similar symptoms?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LKelly8 Rookie

Yup. :rolleyes: <--- looking up at my receded hairline.

It's the malabsorption. The damaged small intestine can't absorb vitamins and the following vitamin deficiencies cause all sorts of havoc.

My hair is in the process of growing back (after 1+ yr gluten-free), now instead of balding I look like I had a really bad perm. (we need a "bad hair day" smiley :lol: )

jennyj Collaborator

Me too. I am also anemic. :huh:

taffymorgan Newbie
Yup. :rolleyes: <--- looking up at my receded hairline.

It's the malabsorption. The damaged small intestine can't absorb vitamins and the following vitamin deficiencies cause all sorts of havoc.

My hair is in the process of growing back (after 1+ yr gluten-free), now instead of balding I look like I had a really bad perm. (we need a "bad hair day" smiley :lol: )

Really?? So, I'm not going insane? But, It will grow back!? Is there anything I can do now to counteract the process? I don't mean to sound so superficial but its scaring me so bad and I dread washing my hair every morning.

jerseyangel Proficient

Hi Taffy,

My hair was falling out in the year and a half before I was diagnosed. I actually had spots where you could see my scalp.

I was also severly anemic, which is common in people with Celiac. I took suppliments, but because I wasn't absorbing correctly, they didn't do much good.

When I had been gluten-free for about 4 months, my hair stopped falling out--and blood testing after 6 months showed that the anemia was gone! It's been 16 months now, and all of the hair that I lost has grown back.

Good luck with your tests :)

Lisa Mentor

My thin hair is still falling out. What types of suppliments would you suggest?

LKelly8 Rookie

Taffy - I can't promise you you don't have something else, with or without celiac, like female pattern baldness or alopecia areata. Open Original Shared Link But if it is celiac, then yes it will grow back.

Once on the gluten-free diet it'll take time for your intestine to heal and start absorbing the normal amount of nutrients again. The small intestine takes in alot of your vitamins, all the b-vits, vit A, calcium, vit D and vit K - I never even knew there was a vit K! Vitamin k helps your blood clot, not enough causes easy bleeding and bruising. Deficiencies in these (and iron, and other minerals), are common with celiac - so a multivitamin with minerals is a good start.

I've heard zinc is good for hair, but the only supplement I've taken that seemed to effect my hair was folic acid. I had to take a large dose to counteract a rheumatoid arthritis medication I was taking. (methotrexate) MTX binds to folic acid and drains it from your body. Not surprisingly one of it's side effects is hair loss. :rolleyes: The mega dose took care of the MTX but also seemed to boost new hair growth and the hair I had seemed thicker and stronger.

I currently take a Stress B Complex with C and Zinc, an extra 400mcg folic acid, and I eat my veggies like mom always told me too. :D

I use Nature Made vitamins because they label "gluten-free" right on the package.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Very informative, thanks

Lisa

Ursa Major Collaborator

Hair loss could also be caused by thyroid problems. I am just throwing that in, so it won't be overlooked.

elye Community Regular

Hair loss was my only symptom of celiac disease. My very with-it family doctor tested my iron, found it very low, then ran the celiac panel. Voila! So I went off gluten and almost all of my hair has grown back. :)

Lisa Mentor

Hey Emily:

taffymorgan began this thread, but much interest for me.

I take additional folic acid, but my multi-V I used to take is no longer available here. Can you suggest a good gluten-free multi-V.?

Thanks, Lisa

e&j0304 Enthusiast

My little 3 year old also suffered horribly from hair loss. She was actually almost bald on spots of her head and I couldn't put her hair up in a pony tail because you could see all the bald patches and also because I was afraid more would fall out.

She is doing much better now and since being gluten-free for a year her hair looks pretty normal. She takes a multi vitamin and we just make sure she eats really well.

Good luck to you!

  • 2 weeks later...
Robina Contributor
Really?? So, I'm not going insane? But, It will grow back!? Is there anything I can do now to counteract the process? I don't mean to sound so superficial but its scaring me so bad and I dread washing my hair every morning.

Girl... trust me I know how you feel... the shed I experienced came on so suddenly and rapidly but then just continued and continued and continued... I would literally cry every morning during and after my shower... my hair fall has slowed down since I went gluten free... and is slowly tapering off... and I can see a fine new fringe of hair along my hairline... so there's hope... just relax (stress can worsen it)... follow the diet and get plenty of rest...

kevsmom Contributor

One of the symptoms that I had prior to diagnoses was bruising. I ended up having a 4 hour nosebleed that could not be stopped (because I was not retaining vitamin K), and was admitted to the hospital to get blood and plasma. I was also extremely anemic.

May hair loss started before this was all going on. I would get out of the shower in the morning and be covered in hair! My doctor suggested that I try Zinc and Selinium. I find that if I take the 100% daily reqirement of Selinium, that it isn't enough. I take 285%.

I also take the Nature Made vitamins. They say gluten free right on the bottle!

Fiddle-Faddle Community Regular

I take children's Little Critter Gummy vitamins--says gluten-free on the label. I take at least one a day, and when I can remember, 2 (one with lunch, one with dinner).

harriedlate Newbie
My thin hair is still falling out. What types of suppliments would you suggest?

It doesnt make sense for me to feel better after hearing about some one else having thinning hair but it gives me comfort to know it might get better. I have actually thought of transplants because it is so hard to style.

Matilda Enthusiast

...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,089
    • Most Online (within 30 mins)
      7,748

    Clare Durham
    Newest Member
    Clare Durham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.