Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cbs News Story


floridanative

Recommended Posts

floridanative Community Regular

I was just watching the CBS evening news and there was a teaser for a story coming on tomorrow night. The teaser went something like this: this whole family has a disease but none of them knew it until little Emily got sick. It's thought a million Americans have it but most of them don't know it yet (end of tease). Chills went down my spine and I usually have excellent instincts so I think the story may be about Celiac. I don't even watch the CBS news so it was a fluke that I had it on. I can't be home tomorrow to watch but I'm going to tape the whole show tomorrow night, just in case I'm right. I'll post back if I'm right or wrong.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 97
  • Created
  • Last Reply
jennyj Collaborator

I'll be watching too :unsure:

Nantzie Collaborator

Ooooo.... I've got chills too.

Nancy

wonkabar Contributor
I don't even watch the CBS news so it was a fluke that I had it on.

Flukes can happen for a reason...we just happened to be watching MSNBC when Keith Olberman *briefly* mentioned Celiac Disease and put up a website address. We had never heard of it and decided to look it up. Much to our suprise (and shock) it was as if we were reading about our son. We now had a name for what was wrong with him and, better yet, we now had a way to help him get better! :D

I'll be watching, too! How awesome would that be??

Guest Kathy Ann

Isn't October Celiac Awareness Month? That could make it newsworthy right now.

AndreaB Contributor

I don't have outside tv so keep me posted please.

I guess I could be unlazy and go to their website and see if anything is on there after tomorrow.....but I still wanna know. :)

happygirl Collaborator

I'll be watching also!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I'm setting the Tivo because I'll probably forget....

hannahsue01 Enthusiast

Sounds like it's worth a look. Thanks for letting us know about it. Is is sapossed to be on the 5pm or 6pm news?

happygirl Collaborator

cbs evening news...national news usually comes on at 6:30 (after the 6:00pm local news) Some places it comes on at 7 (those who have full one hour 6:00 local news...but usually that is only in bigger markets)

floridanative Community Regular

Well my instincts didn't let me down. Dr. Green had one of his staffers post a listserv notice that CBS will do a story tonight about Celiac on the evening news. I doubt such a segment will be able to be compreshensive but at this point, any publicity is good publicity in my view.

TriticusToxicum Explorer
Well my instincts didn't let me down. Dr. Green had one of his staffers post a listserv notice that CBS will do a story tonight about Celiac on the evening news. I doubt such a segment will be able to be compreshensive but at this point, any publicity is good publicity in my view.

Thank GOD Katie Couric is so in touch with her colon! I haven't watched the CBS evening news since she's been on (I don't generally watch the news dinner/kids time) but I'll make a point to try tonight!

Nancym Enthusiast
Thank GOD Katie Couric is so in touch with her colon!

:D That's hilarious. :)

ehrin Explorer

Just to clarify - it is on tonight, correct?

god I don't get home till around then so I may leave a bit early!

floridanative Community Regular

On the East coast it's on at 6:30 pm tonight.

Canadian Karen Community Regular

So what time would it be on in Toronto? Don't want to miss it!

Karen

TriticusToxicum Explorer
So what time would it be on in Toronto? Don't want to miss it!

Karen

6:30 EST for you too!

par18 Apprentice
I was just watching the CBS evening news and there was a teaser for a story coming on tomorrow night. The teaser went something like this: this whole family has a disease but none of them knew it until little Emily got sick. It's thought a million Americans have it but most of them don't know it yet (end of tease). Chills went down my spine and I usually have excellent instincts so I think the story may be about Celiac. I don't even watch the CBS news so it was a fluke that I had it on. I can't be home tomorrow to watch but I'm going to tape the whole show tomorrow night, just in case I'm right. I'll post back if I'm right or wrong.

I am trying to find the "listserv" notice that 'floridanative' was referring to. Is it something that can be viewed?

Tom

floridanative Community Regular

CBS Evening News with Katie Couric will be featuring a segment on celiac disease with Dr. Peter Green tonight at 6:30 pm Eastern Standard Time. Tune in!

Above is just one of the listserv posts about the program tonight. Another group posted about it as well.

par18 - listserv is something you have to subscribe to. It was originally started at John Hopkins University. For tips about dining out most anywhere in the world, this is the site I use. It is an invaluable site for me and it's free.

CELIAC@LISTSERV.ICORS.ORG

Nantzie Collaborator

How cool!!! I wonder how many new people will be finding this site over the next few days...

Nancy

par18 Apprentice
CBS Evening News with Katie Couric will be featuring a segment on celiac disease with Dr. Peter Green tonight at 6:30 pm Eastern Standard Time. Tune in!

Above is just one of the listserv posts about the program tonight. Another group posted about it as well.

par18 - listserv is something you have to subscribe to. It was originally started at John Hopkins University. For tips about dining out most anywhere in the world, this is the site I use. It is an invaluable site for me and it's free.

CELIAC@LISTSERV.ICORS.ORG

Thanks for reply.

Tom

wonkabar Contributor

I'm gonna Tivo it...that's dinner time with the kiddies. How exciting!

Firegirl43 Contributor

I gotta work 2nite. crap.

beaglemania Rookie

is it the one w/ Katie Couric???

happygirl Collaborator

Yep.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,089
    • Most Online (within 30 mins)
      7,748

    Clare Durham
    Newest Member
    Clare Durham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.