Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cbs News Story

floridanative

By floridanative
in Publications & Publicity

Recommended Posts

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
It's a transcript :)
Penguin!! YOU'RE BACK!!!!!!!!!! :)

It also has a video of the segment!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 97
  • Created
  • Last Reply
DingoGirl Enthusiast
DingoGirl
Posted
THAT WAS THE BEST SEGMENT ON CELIAC I HAVE EVER SEEN!!!!!

I'm so glad they didn't push the biopsy or that all symptoms are GI. AWESOME!!! :D

OH MY GOD - - it just ran here - - I totally agree! Much more than I expected - - really, really on the mark. and national news - - and toward the beginning of the broadcast - NOT something thrown in at the end - -

LOVED IT!!!!

Lisa Mentor
Lisa
Posted
THAT WAS THE BEST SEGMENT ON CELIAC I HAVE EVER SEEN!!!!!

I'm so glad they didn't push the biopsy or that all symptoms are GI. AWESOME!!! :D

Chels:

Good to see you again. I agree. To get and article on National News coverage in prime time, is about as good as it gets.

This is major, no complaints from me!!! :)

Nantzie Collaborator
Nantzie
Posted
It was so on the mark I was actually starting to get tears in my eyes!

Tom

Oh good. I wasn't the only one crying...

{sniff}

Nancy

LKelly8 Rookie
LKelly8
Posted

My mother and I watched it together and we both cracked up when they showed the family eating those sad, flat little cupcakes! I remember baking things that looked like that. :lol: Someone send that woman some gluten-free baking mix, stat!

Good show. Lots of coverage. . .get ready for the onslaught of newbies. ;)

DingoGirl Enthusiast
DingoGirl
Posted
Good show. Lots of coverage. . .get ready for the onslaught of newbies. ;)

'

OMG you're right....we'll have to make sure and educate everyone...the pressure! it's up to us! :blink:;)

rez Apprentice
rez
Posted

The CBS News Story was AWESOME!!!!!!!! My prayers were answered!!! Finally, my friends and family don't think I'm nuts!! I had chills up my spine and tears rolling down my cheeks. It was serile. My sons results haven't come back from Enterolab yet, but he has responded to the gluten free diet. He had terrible stomach aches, vomitting, acid reflux, horrible mouth sores, and it was starting to affect him mentally. He couldn't go to sleep at night and nightly woke up with terrible stomach pains and sometimes vomitting. We have been doctoring for 6 months with us, which I know is short in comparison to some people's stories. Thank God I had access to a person who has family members who are gluten intolerant and access to tons of great info on the internet including this site!! Going gluten free was our last resort. The medical community has laughed in my face, basically telling me I'm crazy. I am concvinced I know more about it than any doctor in this area. The first dr. ordered the wrong test and the second ordered the right one when my son had already been gluten free for a month. No one understands the terrible alone, abandoned feeling unless you've gone through it. Thank God for the news story. Now people can see it's not just kids who are withering away that suffer from this. The mother basically diagnosed the daughter and she was CLASSIC Celiac. All I can say is I hope the right people were watching!! The doctors!!! I am so thrilled and have been in a depression over this for the last week. I am so happy!!! Let's try for Oprah now!!!! I have emailed her on this topic and I think there is power in numbers!! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted

Everyone make sure you email CBS thanking htem... they need postive reinforcement as much, if notmore then, the bad feedback!

rez Apprentice
rez
Posted
Everyone make sure you email CBS thanking htem... they need postive reinforcement as much, if notmore then, the bad feedback!

Yes!!! Email lots of thanks and don't forget to email Oprah!!! Let's get this out to the public!!!!!

mouse Enthusiast
mouse
Posted

I sat here with my hubby watching it. I thought it was great. I only hope that people I know were also watching. I forgot about the newbie aspect of the broadcast LOL. Almost 4 minutes in prime time is awesome.

Guhlia Rising Star
Guhlia
Posted

You guys can watch that portion of the newscast on www.cbsnews.com. Wow, was it good!

Rachel--24 Collaborator
Rachel--24
Posted

I watched it with my mom and her hubby....I thought it would be longer but I thought it was very good regardless. I was hoping my moms hubby was paying attention because I think he might have Celiac. I was happy with the info they provided ...mostly the fact they pointed out that its common, that 95% arent diagnosed and that symptoms can vary. I think alot of people might get themselves diagnosed just from seeing a short segment like that.

AndreaB Contributor
AndreaB
Posted

I couldn't get the video to play. Anyone else have that problem. It said I didn't have windows media or real player installed and I have both on my computer.

wonkabar Contributor
wonkabar
Posted
. I was happy with the info they provided ...mostly the fact they pointed out that its common, that 95% arent diagnosed and that symptoms can vary. I think alot of people might get themselves diagnosed just from seeing a short segment like that.

I agree. The fact that the medical correspondent specifically stated that it's no longer looked at as a disease specifically related to horrific gi symptoms was clutch! I loved the fact that they listed associated symptoms that weren't specific to gi problems. I thought it was great that they mentioned neurological symptoms and reccurent miscarriages.

evie Rookie
evie
Posted
I couldn't get the video to play. Anyone else have that problem. It said I didn't have windows media or real player installed and I have both on my computer.

Glad I got on this thread tonight and read about the CBS celiac story, that was great to have on National TV!!

I did not see it because I was so tired after dental work today that I went to sleep during that time. Do not want to say I nap because of being older, I blame it onto being Celiac. HA-HA Such 'Good' publicity for "Celiac disease". Am I a newbie on here? Evening all!! evie

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

-

lonewolf Collaborator
lonewolf
Posted

That was a GOOD piece!

Penguin - welcome back!

2Boys4Me Enthusiast
2Boys4Me
Posted

Just watched the video. Good story, but that gluten free store?! Must've been a set. No such thing in real life. Maaaybe a gluten-free section.

Guest nini
Guest nini
Posted

I missed it... I wasn't home from working in time, and I can't get the video to play :(

happygirl Collaborator
happygirl
Posted

Linda,

Actually, surprisingly enough, there are gluten free stores. A family opened one in Pennsylvania, about 20 minutes from my parents house. Everything in their store is gluten free---they opened it because people in their family were diagnosed with Celiac. There is one in Virginia Beach, and he carries probably 90% gluten free stuff (independently owned, and his family has two people with Celiac).

So, stranger things have happened :)

Laura

lindalee Enthusiast
lindalee
Posted
Linda,

Actually, surprisingly enough, there are gluten free stores. A family opened one in Pennsylvania, about 20 minutes from my parents house. Everything in their store is gluten free---they opened it because people in their family were diagnosed with Celiac. There is one in Virginia Beach, and he carries probably 90% gluten free stuff (independently owned, and his family has two people with Celiac).

So, stranger things have happened :)

Laura

Hi Laura, Where are the stores located? I think there is a health food store close to Cbn - is that it?

Also I will be going to Pa. later this month. Where is that one located? Thanks :)

2Boys4Me Enthusiast
2Boys4Me
Posted
Linda,

Actually, surprisingly enough, there are gluten free stores. A family opened one in Pennsylvania, about 20 minutes from my parents house. Everything in their store is gluten free---they opened it because people in their family were diagnosed with Celiac. There is one in Virginia Beach, and he carries probably 90% gluten free stuff (independently owned, and his family has two people with Celiac).

So, stranger things have happened :)

Laura

I sit corrected. I've never seen a whole store, but certainly sections. In fact the health food store kindly labels celiac friendly stuff with a red dot sticker and the words "celiac ok". I wonder where the story originated.

For everyone who couldn't get the video to play I had to click a litte circle next to the file type I wanted to play. There was a commercial first. <_<

Rachel--24 Collaborator
Rachel--24
Posted
Just watched the video. Good story, but that gluten free store?! Must've been a set. No such thing in real life. Maaaybe a gluten-free section.

Linda,

There was a store in my area that was all gluten free. It was amazing!! Unfortunately it recently closed down. :(

AndreaB Contributor
AndreaB
Posted

OK, I finally got to watch it. Maybe shutting down my computer last night helped. I thought it was a good piece. I emailed my mom the video link. She's on vacation and I doubt she would have seen it.

We have a gluten free store in Vancouver WA called Lingonberries.

Tay Newbie
Tay
Posted

I agree that this was a good piece! And I cried too. Thank goodness that people will get this message. I am excited to send it to my parents, who so far have been to stuborn to get tested. Taylor

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,244
    • Most Online (within 30 mins)
      7,748
    Barbara carter
    Newest Member
    Barbara carter
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Hypothetical question about antibodies

      By Scott Adams · Posted

      No, I would not say this at all. If you were diagnosed with celiac disease and were gluten-free for a while, you could have gone into remission. Everyone's body is different, and some celiacs may be able to get regular contamination and not end up with damaged villi and positive antibody tests, while others who ingest tiny amounts will relapse and have full blown symptoms and flattened villi.  Only a full gluten challenge would reveal where you are at this point. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Inflammation and Menier’s disease link?

      By Scott Adams · Posted

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Pablohoyasaxa
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By Pablohoyasaxa · Posted

      Great  post. The skin issue can be intolerable. I have been taking niacinamide for the past month and have improved with respect to the blistering lesions. 
    • knitty kitty
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By knitty kitty · Posted

      I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin.  The flushing is harmless and goes away the longer Niacin is taken.  The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters.  TTg 2 IgA antibodies are found in the blood and are measured in diagnostic testing for Celiac.  People with Dermatitis Herpetiformis make tTg 3 as well as tTg 2 antibodies.  Niacin Vitamin B3 in the non flushing form niacinamide also works without the flushing, but takes a bit longer.   I also avoid foods containing high levels of iodine because iodine activates the tTg 3 IgA antibodies to become more active and make more blisters.  I avoid kelp (nori, seaweed) and crustaceans,  eggs, dairy products, and iodized table salt.   Niacinamide and Nicotinic acid are water soluble and harmless.  I'd much rather take Niacin than Dapsone with scary side effects.  
    • meghanf
      Airbourne products in same living house hold .

      By meghanf · Posted

      We have a gluten-free household. It's the least stressful option. No one else in my family has Celiac, but they are all extremely supportive. We don't even have Play-doh for this kids.
×
×
  • Create New...