Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cbs News Story


floridanative

Recommended Posts

floridanative Community Regular

I was just watching the CBS evening news and there was a teaser for a story coming on tomorrow night. The teaser went something like this: this whole family has a disease but none of them knew it until little Emily got sick. It's thought a million Americans have it but most of them don't know it yet (end of tease). Chills went down my spine and I usually have excellent instincts so I think the story may be about Celiac. I don't even watch the CBS news so it was a fluke that I had it on. I can't be home tomorrow to watch but I'm going to tape the whole show tomorrow night, just in case I'm right. I'll post back if I'm right or wrong.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 97
  • Created
  • Last Reply
jennyj Collaborator

I'll be watching too :unsure:

Nantzie Collaborator

Ooooo.... I've got chills too.

Nancy

wonkabar Contributor
I don't even watch the CBS news so it was a fluke that I had it on.

Flukes can happen for a reason...we just happened to be watching MSNBC when Keith Olberman *briefly* mentioned Celiac Disease and put up a website address. We had never heard of it and decided to look it up. Much to our suprise (and shock) it was as if we were reading about our son. We now had a name for what was wrong with him and, better yet, we now had a way to help him get better! :D

I'll be watching, too! How awesome would that be??

Guest Kathy Ann

Isn't October Celiac Awareness Month? That could make it newsworthy right now.

AndreaB Contributor

I don't have outside tv so keep me posted please.

I guess I could be unlazy and go to their website and see if anything is on there after tomorrow.....but I still wanna know. :)

happygirl Collaborator

I'll be watching also!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I'm setting the Tivo because I'll probably forget....

hannahsue01 Enthusiast

Sounds like it's worth a look. Thanks for letting us know about it. Is is sapossed to be on the 5pm or 6pm news?

happygirl Collaborator

cbs evening news...national news usually comes on at 6:30 (after the 6:00pm local news) Some places it comes on at 7 (those who have full one hour 6:00 local news...but usually that is only in bigger markets)

floridanative Community Regular

Well my instincts didn't let me down. Dr. Green had one of his staffers post a listserv notice that CBS will do a story tonight about Celiac on the evening news. I doubt such a segment will be able to be compreshensive but at this point, any publicity is good publicity in my view.

TriticusToxicum Explorer
Well my instincts didn't let me down. Dr. Green had one of his staffers post a listserv notice that CBS will do a story tonight about Celiac on the evening news. I doubt such a segment will be able to be compreshensive but at this point, any publicity is good publicity in my view.

Thank GOD Katie Couric is so in touch with her colon! I haven't watched the CBS evening news since she's been on (I don't generally watch the news dinner/kids time) but I'll make a point to try tonight!

Nancym Enthusiast
Thank GOD Katie Couric is so in touch with her colon!

:D That's hilarious. :)

ehrin Explorer

Just to clarify - it is on tonight, correct?

god I don't get home till around then so I may leave a bit early!

floridanative Community Regular

On the East coast it's on at 6:30 pm tonight.

Canadian Karen Community Regular

So what time would it be on in Toronto? Don't want to miss it!

Karen

TriticusToxicum Explorer
So what time would it be on in Toronto? Don't want to miss it!

Karen

6:30 EST for you too!

par18 Apprentice
I was just watching the CBS evening news and there was a teaser for a story coming on tomorrow night. The teaser went something like this: this whole family has a disease but none of them knew it until little Emily got sick. It's thought a million Americans have it but most of them don't know it yet (end of tease). Chills went down my spine and I usually have excellent instincts so I think the story may be about Celiac. I don't even watch the CBS news so it was a fluke that I had it on. I can't be home tomorrow to watch but I'm going to tape the whole show tomorrow night, just in case I'm right. I'll post back if I'm right or wrong.

I am trying to find the "listserv" notice that 'floridanative' was referring to. Is it something that can be viewed?

Tom

floridanative Community Regular

CBS Evening News with Katie Couric will be featuring a segment on celiac disease with Dr. Peter Green tonight at 6:30 pm Eastern Standard Time. Tune in!

Above is just one of the listserv posts about the program tonight. Another group posted about it as well.

par18 - listserv is something you have to subscribe to. It was originally started at John Hopkins University. For tips about dining out most anywhere in the world, this is the site I use. It is an invaluable site for me and it's free.

CELIAC@LISTSERV.ICORS.ORG

Nantzie Collaborator

How cool!!! I wonder how many new people will be finding this site over the next few days...

Nancy

par18 Apprentice
CBS Evening News with Katie Couric will be featuring a segment on celiac disease with Dr. Peter Green tonight at 6:30 pm Eastern Standard Time. Tune in!

Above is just one of the listserv posts about the program tonight. Another group posted about it as well.

par18 - listserv is something you have to subscribe to. It was originally started at John Hopkins University. For tips about dining out most anywhere in the world, this is the site I use. It is an invaluable site for me and it's free.

CELIAC@LISTSERV.ICORS.ORG

Thanks for reply.

Tom

wonkabar Contributor

I'm gonna Tivo it...that's dinner time with the kiddies. How exciting!

Firegirl43 Contributor

I gotta work 2nite. crap.

beaglemania Rookie

is it the one w/ Katie Couric???

happygirl Collaborator

Yep.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.