Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dilemma With Family

Yenni

By Yenni
in Coping with Celiac Disease

Recommended Posts

happygirl Collaborator
happygirl
Posted

I don't need an article to tell me a crumb will or won't make me sick...I get sick on tiny, tiny amounts. So no amount of "carefulness" is too much!!!!! You are your only (and best) advocate for your health. You must take care of yourself. Honestly, who cares what other people think when you are in bed or in the bathroom, sick as a dog, for days? Its hard to get used to...but once you do....you get over it fast!!!!! (speaking from experience).

But, since I do like articles....here's another one: https://www.celiac.com/st_prod.html?p_prodi...-52106382872.60

And, it was a relatively small sample, so its not to say that smaller amounts don't cause damage. Plus, smaller amounts *might* not cause as much damage, but still may make you sick (just a thought of mine).

Hope this helps.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Yenni Enthusiast
Yenni
Posted
  • Author
I don't need an article to tell me a crumb will or won't make me sick...I get sick on tiny, tiny amounts. So no amount of "carefulness" is too much!!!!! You are your only (and best) advocate for your health. You must take care of yourself. Honestly, who cares what other people think when you are in bed or in the bathroom, sick as a dog, for days? Its hard to get used to...but once you do....you get over it fast!!!!! (speaking from experience).

But, since I do like articles....here's another one: https://www.celiac.com/st_prod.html?p_prodi...-52106382872.60

And, it was a relatively small sample, so its not to say that smaller amounts don't cause damage. Plus, smaller amounts *might* not cause as much damage, but still may make you sick (just a thought of mine).

Hope this helps.

1/48th of a slice of bread... :blink: Thanks for the link! This all is making me feeling better about what I am doing. :)

You are right in that I shouldn't care. Some times it just gets "lonely on the paranoid side of this" if you know what I mean. I think I needed to read all of this too to feel I am doing the right thing.

:)

Jestgar Rising Star
Jestgar
Posted

Just a light note to this.

When I went gluten-free, I cc'd myself a couple times with pans, but never anything else. I was thinking I was just lucky but reading the note on the silverware reminded me....

One night, shortly before I went gluten-free, I was up in the middle of the night and went into the kitchen to get a drink of water. When I turned on the light there was a VERY well fed mouse sitting on my sink looking at me. After screaming for a couple minutes I started chasing him around the kitchen trying to catch him in a bowl. All I was able to do was chase him into my silverware drawer, and then out into the heating vents.

Needless to say, the next day I took apart my kitchen and scrubbed everything I had...

Now I'm thinking the mouse did me a favor.

Yenni Enthusiast
Yenni
Posted
  • Author
Just a light note to this.

When I went gluten-free, I cc'd myself a couple times with pans, but never anything else. I was thinking I was just lucky but reading the note on the silverware reminded me....

One night, shortly before I went gluten-free, I was up in the middle of the night and went into the kitchen to get a drink of water. When I turned on the light there was a VERY well fed mouse sitting on my sink looking at me. After screaming for a couple minutes I started chasing him around the kitchen trying to catch him in a bowl. All I was able to do was chase him into my silverware drawer, and then out into the heating vents.

Needless to say, the next day I took apart my kitchen and scrubbed everything I had...

Now I'm thinking the mouse did me a favor.

:lol::lol:

Dan Newbie
Dan
Posted

akJenny,

Your dog's markings are very similar to my dog. What breed is your dog.

Yenni Enthusiast
Yenni
Posted
  • Author
akJenny,

Your dog's markings are very similar to my dog. What breed is your dog.

She is a German Shephard/Labrador retriver mix. A "Germador Shephiver". :)

2,5 years old now. She is a "forever puppy" though.

daffadilly Apprentice
daffadilly
Posted

Jenny, you can get sick from someone with wheaty hands touching your keyboard. It has happened to me several times. The computer repair guy was here & yep then I was sitting at the computer eating a snack & ZAP...

Then there was the time I took my scrapping supplies to a weekend crop that I was teaching & the only thing they ate all weekend was wheat & then touching all my stuff. I had to come home & wash everything. I will never do that again...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Yenni Enthusiast
Yenni
Posted
  • Author
Jenny, you can get sick from someone with wheaty hands touching your keyboard. It has happened to me several times. The computer repair guy was here & yep then I was sitting at the computer eating a snack & ZAP...

Then there was the time I took my scrapping supplies to a weekend crop that I was teaching & the only thing they ate all weekend was wheat & then touching all my stuff. I had to come home & wash everything. I will never do that again...

I think I believe you. ;) Yesterday I had nasty heart burn (from probably being glutened from the keyboard/mouse the evening before) and today my body aches. Especially my back. Have a head ache too.

My husband is now instructed not to eat by the computer. :angry:;)

frenchiemama Collaborator
frenchiemama
Posted
I think I believe you. ;) Yesterday I had nasty heart burn (from probably being glutened from the keyboard/mouse the evening before) and today my body aches. Especially my back. Have a head ache too.

My husband is now instructed not to eat by the computer. :angry:;)

That is my biggest annoyance. My husband, who normally is very sensitive to my needs and understanding always would eat (gluten) while he was on the computer. He would eat, wipe his hand on a napkin, and then put his hand on the mouse or keyboard. I asked and asked and asked and asked him not to do it. He continued to do it claiming "I wipe my hands, that's good enough". Finally I just snapped and said "What on earth makes you think that wiping your hands repeatedly on the same ratty little paper napkin is actually getting them clean?? Is eating your damn sandwich while on the computer more important than my health?"

That finally got through to him. Sort of. Now he at least eats with his non-mouse hand. <_<

Creative-Soul Newbie
Creative-Soul
Posted

:blink: Silverware?!? Cuttingboards?!?!? Personal care products??!??

See why this site is priceless??? I honestly didn't know! And computer keys??? Yeah, I can see myself having a lot of fun <_< trying to explain that one... I need a lot of educating...HELP ME!!! I've been wondering why I still feel yucky sometimes even though I try so hard to be strict diet-wise...humnn..

I discovered about vitamins the hard way.I'm usually a great label reader, so the new multi-vatimin I was trying didn't have gluten,but there are many other allergies/intolerances that are being confirmed/showing up out of the blue - like Splenda, which was listed by it's generic name. For a week I was wondering what on earth was wrong with me...I was so exhausted I was sickkkk. Then it hit me. Geez.

I'm still relatively new at this - about a year - and there's so much to learn and be careful of that sometimes my head spins. I don't personally know anyone my age with Celiac /Gluten intolerance, so it's hard! Thankfully my best friend is so understanding, but I'm still trying to negotiate my way around the people I live with..it's been a slowwww process. I'm still trying to get them to understand that I can't have "even a little" bite...I've been told that," It can't be that painful that you can't taste it.." Yes, it can!!!

This is definitely an issue when it comes to dating...

I suspect - strongly - that this is my mom's problem as well, as I think about all of her health issues, but am a little skeptical as to whether she would take it seriously or not. She's suffering so much...any suggestions?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748
    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.