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Guest celiacbuzzroom

By Guest celiacbuzzroom
in Doctors

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Guest celiacbuzzroom
Guest celiacbuzzroom
Posted

I FOUND THIS............I WILL TRY THIS (VITAMIN E)

IN MY CASE, I HARDLY WALK.

Case of the Month

Reversible inflammatory and vacuolar myopathy with vitamin E deficiency in celiac disease

Kleopas A. Kleopa, MD, Kyriacos Kyriacou, PhD, Eleni Zamba-Papanicolaou, MD, Theodoros Kyriakides, FRCP

Department of Clinical Neurosciences,

Cyprus Institute of Neurology and Genetics,

P.O. Box 23462, Nicosia, Cyprus

Department of Electron Microscopy and Molecular Pathology, Cyprus Institute of Neurology and Genetics, Nicosia, Cyprus

email: Theodoros Kyriakides (Open Original Shared Link)

*Correspondence to Theodoros Kyriakides, Department of Clinical Neurosciences, Cyprus Institute of Neurology and Genetics, P.O. Box 23462, Nicosia, Cyprus

setDOI("ADOI=10.1002/mus.20144")

Keywords

anti-gliadin antibodies • ataxia • gluten enteropathy • inclusion-body myopathy • malabsorption • neuropathy

Abstract

We report a patient with late-onset celiac disease and neurological manifestations including myopathy, polyneuropathy, and ataxia.

Laboratory investigations showed anti-gliadin antibodies and severe vitamin E deficiency.

Muscle biopsy revealed inflammatory infiltrates and rimmed vacuoles, similar to those found in inclusion-body myositis.

A gluten-free diet and vitamin E supplementation reversed both the clinical neurological manifestations and the abnormalities in the muscle biopsy.

Anti-gliadin antibodies were no longer present.

This case illustrates the spectrum of neurological complications of celiac disease and documents the occurrence of reversible pathology resembling inclusion-body myopathy in the muscle. Muscle Nerve 2004

===================================================

Let's cut the chase for those who are suffering and let them see who has helped you in your State.

I am In Salem, Or. and this Neurologist below helped me before any MD would.

Dr. Benton Davidson

Salem, Oregon

He tested for Vitamin K.

I had 2 years with my MD who would not do any testing.

I slipped hehind his back and got to this Neurologist.

Bye

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  • Replies 113
  • Created
  • Last Reply
Lisa Mentor
Lisa
Posted

No help here in North Carolina...still trying to seek a DR. who cares enough to do some research. <_<

Guhlia Rising Star
Guhlia
Posted

Frederick Saunders MD

Lancaster, Pennsylvania

Nooner Newbie
Nooner
Posted

Dr Daniel McGuire

South Florida Gastro Associates

Boynton Beach Florida (in Palm Beach County)

He accepted my Enterolab results, and based on that, my history and dietary response, diagnosed me. He was recommended by the local CSA of America support group.

~Li

Nantzie Collaborator
Nantzie
Posted

Patricia Chen, MD Internal Medicine

Citrus Heights, CA

Doesn't think she's God. Considers the doctor patient relationship a team. Wants to hear what you have to say. Never made me feel like I was a hypochondriac.

Dr. Vallero, MD GI

Roseville and Carmichael, CA

Didn't make me feel like a hypochondriac. Didn't seem too sold on the celiac thing, but completely open and not confrontational or critical at all. I had the biopsy done, but more to check and make sure there wasn't anything more scary causing my symptoms. At my followup appt, he said that he had other patients who had negative biopsies but positive dietary response and to keep doing what I was doing. He said that I figured it out on my own.

Yinka Davies, MD Pediatric GI

Roseville, CA and Downtown Sacramento, CA

I had already put Jenny gluten-free for over a month when we had our appt. Told her the whole story and that I put her gluten-free because of Enterolab testing and how much better Jenny was doing. She was very interested and seemed to enjoy hearing about Jenny's before and after. All she said about the biopsy was that she was just asking because it was the gold standard, and <I didn't want to have the biopsy for Jenny did I?> I told her no. She said great. So all we're doing is blood work twice a year to make sure she's not developing any other related issues.

.....................

I've been very, very lucky with finding great MDs. I know how rare that is on this board. I really don't think that our GP's would have ever brought celiac/gluten intolerance up on their own, but when I brought it up, they went down that path right along with me.

Nancy

frenchiemama Collaborator
frenchiemama
Posted

Dr. Kristie Gering

Chippewa Falls, WI

She's fantastic.

KerriAnne Rookie
KerriAnne
Posted

Dr. Jeffrey Stein

Columbia Presbyterian

New York, NY

212-305-5444

WONDERFUL!!!

He's a one-man show... he does it all from taking your basic vitals to prescribing Rx and diagnostic testing. Kind, compassionate human being. He's very cautious and thorough.

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jerseyangel Proficient
jerseyangel
Posted

Dr. John Kravitz in Mount Laurel, New Jersey.

Listened to my story and was open to testing me for Celiac.

KarenLee Rookie
KarenLee
Posted

Austin, Texas

Dr. Craig Lubin

Open Original Shared Link

celiac sucks Newbie
celiac sucks
Posted

Stefano Guandalini, MD Chicago Illinois

This man is amzaing!! He is the head of research at Chicago and travels around the world for research, but he is only a pediatric docotr.

ehrin Explorer
ehrin
Posted

Dr. Richard Schwartz

190 Groton Rd, Ayer MA

(978) 772-7500

I also cannot say enough good things about my GI doc.

I went in complaining of severe bloating after eating - I didn't even know what celiac disease was.

Because I am a T1 diabetic he suspected diabetic gastroparesis and did an upper endoscopy to see if my stomach was dumping it's food. Well while he was in there he decided to do a biopsy of my intestine- I did not know he was doing this. Well low and behold gastro was ruled out and the "most abnormal biopsy I've ever seen" confirmed the Celiac dx.

For those in MA/NH - Ayer is located in the Northern Central part of the state.

Guest nini
Guest nini
Posted

Dr. Bill Meyer, Atlanta, GA

Pediatric Gastroenterology

Open Original Shared Link

he is active in our local Celiac support group and a really nice guy!

happygirl Collaborator
happygirl
Posted

Dr. Patricia Raymond

Hampton Roads/Norfolk/Virginia Beach

have not seen her myself, but have heard wonderful things about her. She is the advisory doc to the CSA group.

Mtndog Collaborator
Mtndog
Posted

Dr Marni Nicholas

Portsmouth, NH

Primary Care

Dr. catherine Cheney

Beth Israel

Celiac specialist

Boston/Lexington, MA

THEY BOTH ROCK!!!!!!!!!!!!!!!!

jlinc Rookie
jlinc
Posted

Great topic! I was just thinking I need to find a new doc, because of recurring kidney pain.

Does anyone have a suggestion for Portland, OR?

Thanks for any help you can give.

Josh.

TriticusToxicum Explorer
TriticusToxicum
Posted

Dr. Thomas Brasitus

Dr. Nancy Merrill

GI's M.I. Bassett Hospital, Cooperstown, NY

  • 2 weeks later...
Susan M-G Rookie
Susan M-G
Posted

Dr. Karen Nepveu, Rheumatologist

Colchester, Vermont

Mamato2boys Contributor
Mamato2boys
Posted

Dr. Alwyn Koil (NM Pediatrics) & Dr. Thomas Rothfeld (Presbyterian)

both of Albuquerque, NM

both general pediatricians and WONDERFUL doctors - very nice. Dr. Koil not totally sold on Enterolab because he's not familiar with them, but is very supportive and interested.

Dr. Jay Jacobi (SW Medical)

General practitioner - also of Albuquerque

I haven't had occasion to tell him about my family going gluten-free yet, but I fully expect him to be supportive when I do.

I wanted to add Dr. Jeffrey Fahl with the University of New Mexico. I haven't seen him myself, but we work for the same Univeristy and he is a VERY nice guy.

jayhawkmom Enthusiast
jayhawkmom
Posted

Dr. William Buser - GI - Gastrointestinal Center of Kansas City

&

Dr. Jose Cocjin - Pediatric GI - University of Kansas Medical Center

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Dr. Michele (pronounced "Michael") Monaco, pediatric cardiologist, Danville, PA and State College, PA

Dr. James Rodrigues, pediatrician with Bellevue Peds, Pittsburgh PA

Guest AutumnE
Guest AutumnE
Posted

Dr. Gale Cookingham- Allergist and she has celiac disease herself and was tested and suppourtive of enterolab. Flint, michigan office on fridays and port huron office monday through thursday.

azmom3 Contributor
azmom3
Posted

***ARIZONA***

Dr. Shimamoto, SanTan Allergy and Asthma, Mesa (or Gilbert?), Arizona -- This is the single best doctor I have ever known! All 3 of our kids are being treated by him. He is the most down-to-earth, easy-going, yet extremely knowledgeable person you'd ever meet. My kids love going to him and the 35 minute drive to his office is so worth it. I would probably drive 2 hours to go to this guy if I had to...just can't say enough. It took 7 months and 4 doctors to make even a slight dent in my youngest son's issues. I had more answers in my first visit with this doctor than I did with all the rest put together.

Dr. Nancy Yokois, Pediatric GI, Scottsdale, AZ -- We've only been to her once. She was patient, extremely thorough, answered all our questions, very knowledgeable of celiac and eosinophilic disorders. No one can compare to Dr. Shimamoto, but she does come in a close second and I would highly recommend. She came highly recommended to us by several different people and it's easy to see why once you meet her.

GFinVA Newbie
GFinVA
Posted

Jeffrey Retig

Bryn Mawr, PA (Philadelphia suburb)

He's an excellent doctor and an extremely patient man - I highly recommend him!

fairydust Newbie
fairydust
Posted

I see Dr. Peter Green in New York.

jmengert Enthusiast
jmengert
Posted

Dr. Mark Ringold

Christiansburg, Virginia

Absolutely wonderful--probably the best doctor of any speciality that I've ever seen.

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

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      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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      how much gluten do I need to eat before blood tests?

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      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

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