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Recommend A Doctor In You State


Guest celiacbuzzroom

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Salax Contributor

Looking for a doc in Las Vegas, NV... ;)

Anyone?


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  • Replies 113
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Traveller Rookie

For Northern Virginia, I recommend:

Dr. Kevin McCarthy (Internal Medicine), Piedmont Internal Medicine, Warrenton, VA

and

Dr. John Hart (Functional Medicine), Ashburn, VA

  • 3 months later...
BEADEL Newbie
Hi,

I'm new to the forum. I am hoping that someone can help me. I have recently decided to move to the northwest part of ohio. I moved from Pittsburgh, Pa. I can not drive the 6 hours to get to my doc back home that was excellent with celiac. Is there any chance that anyone knows of a doc that has some knowledge of celiac in the toledo, fort wayne, lima area? I would appreciate any information anyone has. I have tried so many doctors in this area and it seems that I know more than they do and I'm tired of having to tell them what is what and what to do rather than them knowing. :(

Thanks

BEADEL Newbie

Looking for a doctor for my niece in the Toledo - Columbus OH area. It sounds to me like she may have this disease. She is scheduled to have her gallbladder removed because she apparently has gallstones. Don't believe anyone has tested - or talked to her about this disease.

ThatlldoGyp Rookie
Dr. Michele (pronounced "Michael") Monaco, pediatric cardiologist, Danville, PA and State College, PA

Dr. James Rodrigues, pediatrician with Bellevue Peds, Pittsburgh PA

Add to that as a primary care peds: Dr. David Coggins, Pediatrician, State College PA. His wife and her siblings are all Celiacs.

Jeanniebug Apprentice

Nashville, TN area:

Dr. Wilmot Burch (Gastro) at:

740 Cool Springs Blvd

Franklin, TN 37067-6448

(615) 771-8786

He's one of the nicest doctors I've ever met. Actually sits down and has real conversations with me and listens to my concerns. Their offices are very clean and beautiful, and the staff is soooo sweet and helpful. I feel very fortunate to have found him. :)

  • 3 weeks later...
bahrbdoll Rookie
Dr. Kristie Gering

Chippewa Falls, WI

She's fantastic.

I am from eau claire wi

could you please send me her info

who she's w/ and what she does

I feel like I'm crazy and nedd someone to help me asap!

thanks, bahrbdoll


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  • 2 weeks later...
T.H. Community Regular

Dr. Wataru Tamura in Oro Valley, Arizona. He's part of Foothills Gatroenterology.

He's a bit quirky, but seems nice, thorough, and extremely knowledgable about celiac disease. I went to see him after my first GI doc. said, essentially, 'you have celiac. Here's a nutritionist to tell you what to eat. bye.'

Dr. Tamura, on the other hand, started immediately talking about the fact that people with celiac disease can have food intolerances, vitamin deficiences, allergies, and other issues, so we should be checking me out for these right away to get me as healthy as possible.

Considering that I - who have never had a known allergic reaction to food before - had an anaphylactic reaction to 'something' the same day I went in for blood tests for allergies, I'm very glad I'm with Dr. Tamura now and not my first doctor!

T.H.

  • 2 weeks later...
nu-to-no-glu Apprentice

Dr. Jeremy Baptist in Kansas (City) is amazing. He will sit with you for an hour and go over every symptom. He was recommended to me by a random celiac stranger and I can't say enough about him. Very informed and up to date.

TEaglefeather Rookie

Trying to find a doctor in Kentucky

  • 1 month later...
Robinette Newbie

Wendy Ellis

Tahoma Clinic

Renton, WA

Ordered Gluten Sensitivity tests on me after my first interview with her. No other Dr had ever even thought of it. She is very knowledgable and thorough. Has Celiac herself.

mbrookes Community Regular

Dr. Shirley Donelson

Jackson, MS

She saved my life. I was at the end... severe malnutrition, renal failure, dehydration, BP 60/40 when I wound up in the emergency room. Thank Goodness she was on call. She had me tested for Celiac as soon as I was stable.

Now. a year sand a half later, my quality of life has improved immeasurably. Gluten free is not so hard when you consider the alternative!

For a little country town that got fat (That's Jackson) we have a startling number of excellent physicians. Of course, having the medical school here with a teaching hospital doesn't hurt.

Tigercat17 Enthusiast

Hi all!

Great post! I'm looking for a good Celiac doctor in Pittsburgh, PA. Anyone know of one? I do have one already, but I'm not sure if I'm crazy about him. He did find the celiac disease, but told me I might be able to "cheat" in a couple of years once I'm healed. I don't think he's that knowledgeable about celiac disease.

Thanks!

elle's mom Contributor
Dr. Gale Cookingham- Allergist and she has celiac disease herself and was tested and suppourtive of enterolab. Flint, michigan office on fridays and port huron office monday through thursday.

I secong this one! She also now practices in Marlette, Michigan a day a week, not sure which day.

HarleyKat Newbie

Brand spankin' new to these forums! :) Non-diagnosed, but seeking an empathetic specialist in the St. Louis Missouri area, who has a "team approach" with his/her patients.

Had an upper Endo, but unsure if that automatically rules me OUT...as Celiac's was not a suspicion at time? Currently dealing with a bevy of symptoms, including the brand new Dermatitis Herpetiformis which has been one of my more annoying and terrifying symptoms. (can you tell I am vain?! LOL) Always assumed acid reflux, gastro probs were weight related, but never really understood how I was even GAINING weight. Have that bloating and "Budhha Belly"...figured it was part of aging?! Now I understand that weight LOSS AND GAIN are symptoms, though GAIN is rarely accepted or recognized?

See, it's 4 a.m. and I was woken with worry and symptoms...need to get to bottom of such.

soulcurrent Explorer

My doctor and his PA are fantastic.

Glenn Robinson

Austin, Tx

512-244-2273

  • 1 month later...
pshepherd Newbie

Dr. Michelle Hor (GI) in Colorado Springs, CO is AMAZING!!!

I have never really had many symptoms of celiac disease, but I was admitted to the hospital for a possible burst appendix, that was not it, my surgeon had her come in, do the biopsy and the next day I was diagnosed. She is so wonderful.

Sadly, we are moving to Texas (north of Dallas area) and I will be leaving Dr. Hor and need to find another GI.

Any recommendations for GI's in the Dallas/Ft Worth (or surronding areas)?

Thanks in advance!

Sleeping Celiac Newbie

Dr. Jack Wise NMD

Tulsa, OK

918-492-2400

He is wonderful!!

I was an undiagnosed celiac with GI issues and moderate to severe arthritis. After his solution I can eat anything I wish with no trouble at all as well as improvements with joint pain and GI issues! I also dated a woman during this same time that was a severe celiac who can now eat anthing she pleases....

Thank you,

Jason

  • 2 weeks later...
Darissa Contributor

Phoenix, AZ Pediatric GI Dr. Mark McOmber is a wonderful doctor. He is with Phoenix Childrens Hospital and he is very open minded and knows so much about Celiac Disease. He spends a lot of time with his patients. I would highly recommend him. He was determined to find out what was wrong my daughter (he was the one who Dx her with celiac disease). He has a great nutritionist on board also in his office that has helped us very much when we were new at figuring out this gluten free diet.

  • 3 weeks later...
tmbarke Apprentice

Dr. Peter Ritsema, MD

Advantage Health

Jenison, Mi

I went in for a physical - told him about symptoms I was having....and he put me on a Gluten Free diet immediately.

I went back to see him because of bronchitis 2 months later..........told him I didn't know whether to Hate him or Thank him for putting me on the gluten-free lifestyle........His jaw dropped! He said to me..."You actually took my advise!?" I told him I struggled learning everything I could about the gluten intolerance, joined this forum, found out my symptoms were more like the Hashimotos, told him about the withdrawls and the things I've learned about everything including the safe foods and how to contact companies about their products and started telling him how I learned thru this forum about coffees milled in the same facility as wheat and other products I was being careful about, then handed him a gluten free antibiotic list that I found on this forum and his jaw was still hanging!

He said......"TENA! You are the patient of the year!" I was stunned. He asked for all the information I knew and told me that there is a BIG opportunity for this knowledge and a market to be had due to the lack of acknowledgement of this disease!

I was so thrilled that I gave him my lists in my folder and told him to pass this info along to his other patients so that they don't have to struggle as much as I did.

We chose an antibiotic from my list for my bronchitis and he gave me a hug! We even discussed our faith and his bible studies and I walked out of that office feeling like I had a best friend!

He is a wonderful caring doctor that listens! I didn't even need the testing to know that I was on the verge of doomdom with gluten.

I told hm about all the improvements and he told me it was GREAT to see me smile again!

I highly recommend this doctor! Near Grand Rapids and worth the drive!

  • 1 month later...
srsssss Newbie

Maryland

Out of frusteration I went to a dermatologist for my persistant "acne" and he immediately recognized it as DH!!! I had all of the celiac symptoms too. Diagnosed with DH in Sept '09. After going to Dr after Dr for 5 years trying to figure it out it was a welcome diagnosis since it runs on both sides of my family.

Derm:

Matthew Bruntel, DO

Frederick Skin Care

604 Solarex Court Ste 205

Frederick, Maryland 21702

I get to see Dr. Fasano at U of MD in a couple of weeks.

Still looking for a dentist that understands celiac! suprising few do!

codetalker Contributor

Any GP recommendations for Wilmington, Delaware?

Sunshinegirlinla Newbie

Does anyone have a good dr. in the Burbank or Los Angeles area?

Sunshinegirlinla Newbie

Does anyone know of a GOOD doctor in Glendale, CA?? I have been to more quacks than ever imagined, from HMOs to out-of-pocket docs...I finally ordered all lab tests on my own and am waiting for package to come in the mail. I have cut out the middle-man (doctor) in that regard, but would still like a GOOD one to help me on my lone journey....I am doctor, patient, nutritionist and insurance company (payer) and this disease is in the ring with me, how the heck am I gonna get through this? My dad had ALL the symptoms I have and he was never diagnosed and died in his 70's from colon cancer...poor man, so much suffering.

thank you for listening, really gotta get this out somehow, because don't have a friend in sight that is going thru any of this strife.

:P

Your message sounds so much like what I'm going through right now. I went to see Dr. Ionia Bina in Glendale last month and she seemed okay at first, but now I feel like I have to beg her to treat me. I called 2 weeks ago, they said she was on vacation and would be back next week, when I called the following week, they told me she was on vacation again!!

I feel like I have to figure this out on my own.

I will keep you posted if I find a good dr. in our area :)

  • 3 weeks later...
gryck Newbie

My children and I have all been diagnosed with celiacs and some with gluten intolerances within the past 3 years. I am looking for a good doctor in the South Jersey area or Philadelphia who understand the disease and can help us.

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    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
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    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
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    • trents
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