Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease And Pneumonia

Mango04

By Mango04
in Related Issues & Disorders

Recommended Posts

Mango04 Enthusiast
Mango04
Posted

I could be imagining this but I think I've read that there's some sort of connection between celiac disease and pheumonia? Can anyone tell me more about this...

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


georgie Enthusiast
georgie
Posted

Is there ? I have had pneumonia 3x. First was when I was 11. Always a viral type that wiped me out for weeks.

nikki-uk Enthusiast
nikki-uk
Posted

The pneumococcal vaccine can be recommended for coeliacs as they may suffer from spleen problems

Open Original Shared Link

hannahsue01 Enthusiast
hannahsue01
Posted

I am 24 and have had pnemonia 3x. In 5th 8th and 12th grades. I had a shot after my epesode in 8th grade but still got it one more time leaving me gasping for air with a trip to the er and then admission. I donno if there is a link or not. It would be interesting to know though.

trents Grand Master
trents
Posted
The pneumococcal vaccine can be recommended for coeliacs as they may suffer from spleen problems

Open Original Shared Link

I wasn't aware that celiac disease can predispose one to spleen problems. Anybody have a link for more info on that issue?

I have had pneumonia twice, once in my early 30's and again just a few weeks ago and I'm now 55. Neither case was particularly intense and I was over them quickly. This last time I wouldn't even have known it except for the pleurisy pain. I didn't even run a fever. Films showed I had a little lower left lobe infiltrate, though.

Steve

tarnalberry Community Regular
tarnalberry
Posted

I don't think there's a good understanding for the entirety of the mechanism of the relationship, but it's there.

chrissy Collaborator
chrissy
Posted

the incidence of IgA deficiency is higher in celiacs than it is in non-celiacs. maybe this has something to do with it??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chgomom Enthusiast
chgomom
Posted

Well alot of us...have some degree of aspiration.....with the reflux some of us get in the middle of th enight particularly. which is why you might wake up and cough etc....

I dunno if anyone has that here...but some of my friends do...

theprincess Newbie
theprincess
Posted

I get pnuemonia at LEAST two times a year. I wonder if the antibiotics have gluten in them....hmmm....

2kids4me Contributor
2kids4me
Posted

The connection is related to autoimmune disorders in general - because autoimmune disease is not fully understood. 1) Patients have an immune system that can be altered by conditions like a viral or bacterial infection (they can serve as a "trigger" for further immune difficulties 2) a person with an existing disease may get sicker with pneumonia than a person without immune disease.. (a diabetic will have loss of diabetic control because of a bacterial/viral illness, a celiac may get an exacerbation of neurologic or GI symptoms, etc)

Most people with a chronic illness are eligible for pneumoccal pneumonia shots if they choose.

There are over 60 different autoimmune conditions which would qualify as chronic and thus the person would be eligle for the vaccine. That's where celiac fits in.

Hope this helps :)

mouse Enthusiast
mouse
Posted

Yes Ashley, you have to ask about each med at the pharmacy to make sure there is not gluten in the pills you will be taking. Some pharmacies don't know the answer and you have to call the drug manufacture to find out. There are also some links on this forum to check the gluten safety of drugs. I have a couple of doctors that write two of the meds on the RX, with the first one being the preferred one. That way I can check and make sure that one of them is at least gluten free.

chewymom Rookie
chewymom
Posted
Well alot of us...have some degree of aspiration.....with the reflux some of us get in the middle of th enight particularly. which is why you might wake up and cough etc....

I dunno if anyone has that here...but some of my friends do...

Oh uggh. Don't even tell me this. I have a son who had pneumonia once a month from age 6-14 months, when it was finally discovered that he was aspirating reflux into his lungs. He finally had surgery for reflux at 18 months. Now I'm wondering if he should be tested. I know eventually the whole family should be, but I just don't want to deal with this!!! :(

Guest Kathy Ann
Guest Kathy Ann
Posted

Interesting information. 3 years ago I had a horrendous bout with pneumonia. 105 fever for days. It was the first time for me, but it was bad and came completely out of the blue. Took me a LONG time to get over it too.

Mango04 Enthusiast
Mango04
Posted
  • Author

.

2kids4me Contributor
2kids4me
Posted

So they couldnt even tell if it was viral bacterial etc? Usually clincial history and xrays can at least put it into a general category.

For info on pneumonia:

Open Original Shared Link

Atypical pneumonia due to Mycoplasma and Chlamydophila usually cause milder forms of pneumonia and are characterized by a more drawn out course of symptoms unlike other forms of pneumonia which can come on more quickly with more severe early symptoms. Mycoplasma pneumonia often affects younger people and may be associated with symptoms outside of the lungs (such as anemia and rashes), and neurological syndromes (such as meningitis, myelitis, and encephalitis). Severe forms of Mycoplasma pneumonia have been described in all age groups.

In up to 65% of cases, the organism (such as bacteria or virus) that is causing pneumonia is not identified even with testing.

Pneumonia is more likely to occur in people whose immune system is weakened by an existing illness, such as the flu, cancer, or AIDS, and in people with chronic conditions, such as sickle cell disease, heart disease, diabetes, kidney disease, asthma, chronic bronchitis, chronic obstructive pulmonary disease (COPD), emphysema, or cystic fibrosis.

Since ingesting gluten may have caused physcial stress on the body it is possible that it made you more susceptible to any of the many organisms that can cause pneumonia. Many otherwise healthy people contract pneumonia every year with fall being the the most common time.

  • 4 years later...
GlutenFreeManna Rising Star
GlutenFreeManna
Posted

This is an old thread, but I wanted to bring this topic up again. Last month I had brochitus that now has turned into walking pneumonia. The same thing happened to me about four years ago. the only difference is four years ago I was not gluten free and I was in the hospital with full out pneumonia. This time I have been gluten free for ten months and the pneumonia is not bad enough to hospitalize me. I wonder if while my immune system is still compromised enough for me to get sick, it is slightly better than it was four years ago due to being gluten free. Has anyone been on the gluten free diet for many years (and used to get pneumonia often prior to going gluten free) noticed a decrease in the severity or number of cases they got the longer they were gluten free?

  • 1 year later...
MAasaMom Newbie
MAasaMom
Posted

I know this is an old thread...but my brother who has yet to be tested for celiac disease has had a number of bouts with pneumonia - the last of which landed him in the ICU. As a child I had chronic asthmatic bronchitis - and pneumonia a number of times...anemia, weird autoimmune eye problems, I could go on and on. In my 40's my resp. issues (never have been a smoker) started to haunt me...getting the flu vaccine on two separate years with a year in between lead to near pneumonia. Told my brothers to get tested for celiac-hopefully they will listen. We are all in and around the age that health issues start to crop up...I think my diagnoses and gluten-free diet led to my first healthy winter this past year in a long, long time. So yes, the immune system interference with celiac disease and who knows GS-gluten sensitivity as well can lead to a multitude of infection issues.

Bronchial pneumonia is listed on the UChicago list of disorders assoc. with celiac disease: Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess...
    2. Roses8721
      - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    3. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    4. Scott Adams
      - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    5. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy

      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,473
    • Most Online (within 30 mins)
      7,748
    Kelly Hannon
    Newest Member
    Kelly Hannon
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      gluten-free Oatmeal

      By Roses8721 · Posted

      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.