Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long After Being Gluten Free Did Your Sleep Improve


Guest marshlakemom

Recommended Posts

Guest marshlakemom

I am curious if any of you can remember approximately how long after being completely gluten free that you noticed an improvement in your sleep patterns.

I have been having problems with my sleep for all of my life, and although diagnosed with Celiac at the age of thirty two, didn't remain true to the diet at all times, and consequently have major sleep issues.

I have been completeley gluten free now for just over a week, and haven't noticed any improvement yet, should I be looking at a three months off???

I know this sounds nuts that I haven't been following a completely gluten free diet, but I just have tested my fate for so long now, but I think I am finally getting it into my head that I NEED TO STAY OFF GLUTEN, and just maybe my sleep and exhaustion will improve.

Thanks guys,

Deb


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Deb:

I am sorry that you have been had a long line of sleep problems. This has not been one of mine, but quite the opposite.

Therefore, I am not the one to answer you questions, but perhaps others will post with similar experiences.

Be patient, there are others out there. :)

Kaycee Collaborator

Deb, sorry you are not sleeping well. That was me too prior to being gluten free.

I think it took me about a month or two to see any improvement in my sleeping. To start with I was quite on edge when I first found out I had coeliac, so sleep was more of a problem at the start. But now I sleep like a log. Unless of course I have eaten something that does not agree with me, and that is usually gluten by mistake.

So Deb, it might take a while, it can be a bit like withdrawals as well, which does not help with sleep. But hang in there and I am sure you will notice an improvement in you sleep soon, and not only that but other things you probably never realised were gluten related.

Catherine

IrishKelly Contributor
I am curious if any of you can remember approximately how long after being completely gluten free that you noticed an improvement in your sleep patterns.

I have been having problems with my sleep for all of my life, and although diagnosed with Celiac at the age of thirty two, didn't remain true to the diet at all times, and consequently have major sleep issues.

I have been completeley gluten free now for just over a week, and haven't noticed any improvement yet, should I be looking at a three months off???

I know this sounds nuts that I haven't been following a completely gluten free diet, but I just have tested my fate for so long now, but I think I am finally getting it into my head that I NEED TO STAY OFF GLUTEN, and just maybe my sleep and exhaustion will improve.

Thanks guys,

Deb

It took me 4-5 months (and a Super B Complex vitamin everyday...i take nature made because they are gluten free ;) ).

jerseyangel Proficient

Sleep was something that improved for me right away after going gluten-free. I was having problems sleeping prior to that--both falling asleep and staying asleep.

Guest marshlakemom

Hi All

You guys are great, thanks for the responses, I appreciate each one. I know I'm being a "bit" optimistic by thinking my sleep should improve within a week, and I agree that our body probably does go through a bit of withdrawal once becoming completely gluten free.

I will keep you posted.

Deborah

TestyTommy Rookie

I had lots of sleep problems before going gluten-free. It took a few months til it got significantly better. I'm 8 months gluten-free and still having problems sleeping. I haven't slept through the night in over nine years, but it's getting better.

So be patient. Especially if you've been damaged for many years like a lot of us, it will take many months of being strictly gluten-free to get better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



marciab Enthusiast

Mine got a little better after 6 months, but it has only been in the last month that I can sleep all nite and wake up rested. So, one year for me ... marcia

elonwy Enthusiast

I used to have really bad insomnia, the "not able to fall asleep no matter how tired you actually are" kind. This started to get better after about 2-3 months on the diet. I now only get that way if I've been glutened or am really stressed out. Its really nice to know that when I'm going to bed, I'll probably be asleep soon. I fall asleep so easily now that sometimes I wake up and I've fallen asleep with the light on.

I have Sonata as a backup for emergencies, and that helps me supplement when I'm having falling asleep issues.

Elonwy

georgie Enthusiast

The day I was Glutened last week - I ended up having a nightmare that night. Is that a normal reaction ??

sspitzer5 Apprentice

I'm 1.5 years gluten-free and my sleep has improved, but not dramatically. My main problem is staying asleep. I've recently started taking time realeased melatonin and it's helping a lot.

S

  • 3 weeks later...
munchkinette Collaborator

My sleep issues are connected to other things. I sleep a lot better when I can exercise, but I never had the energy to exercise because of the anemia. I've started getting enough energy to exercise in the last 2-3 months, so that's about six months since I've gone gluten free.

par18 Apprentice

For me in the beginning there were two issues keeping me from sleeping much at all. One was I was so malnourished I could not get enough exercise to get tired. I was eating a lot of food each day with no appetite. The other more important issue was just plain "anxiety". I could not convince myself in the beginning I would recover. I would lay awake in the bed for hours and stare at the clock. It was as if I was afraid I would fall asleep and never wake up. I had to take some medication for about 6 weeks to help calm me down. Finally I started to notice some positive physical changes (gained a few pounds). When I realized I was not going to die anytime soon I relaxed and was able to give up all meds. Today everything is fine.

Tom

suzannabanana Newbie

I have had chronic sleep problems for ages. Gluten-free since March with slow improvement in various areas. My NP gave me amatryptaline recently instead of Ambien CR (have tried several meds and naturals). She says it slows down the gut and that is what I'm finding. I have averaged probably 6 out of 7 full nights of sleep since starting, where I was getting 1/7 for years and years and years.

Ellen Newbie
I'm 1.5 years gluten-free and my sleep has improved, but not dramatically. My main problem is staying asleep. I've recently started taking time realeased melatonin and it's helping a lot.

My daughter has the same problem...but she's 5.5 years old and part of that is a kid just plain fighting going to sleep! Her doctor told us the melatonin was good for getting you to sleep, but it doesn't keep you asleep. Magnesium is what keeps you asleep once you get there. He reccomended epsom salt baths twice a week to help boost her magnesium levels. That seems to have helped alot...she's sleeping through the night after 2 weeks of baths. Since she's only 5 they only do it twice a week, but I imagine an adult could take the baths more often, or even take a magnesium supplement. Hope this helps!

emi-220 Rookie

I've had sleep problems my whole life. I could never fall asleep and I was always so fatigued (though I'm not sure if the always being tired part was related to the celiac or just because I didn't get much sleep to begin with). I've only been on the gluten free diet for about a week and my sleep hasn't improved much. It sounds like it will get better though according to what everyone else has said so that's good.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.