Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Encopresis And Celiac

Willow5

Recommended Posts

Willow5 Rookie
Willow5
Posted

My son has encopresis. He started out with the clay colored stools and then with a cycle of constipation for about 4 days followed by a large bm followed by a couple of days of diahrea. Up to a couple of times daily he soils his underwear. We have battled with this for a long time - he is now 10. He is being treated with miralax and scheduled sits on the toilet. My daughter who is 2 started up with the same symptoms - that is when I thought of celiac.

We got son tested and he came in low equivical results for Anti Gliadin AgG, I then got husband tested, he came in low equivical on Anti Gliadin AgA, then I got tested and came in about 3 times higher than normal on the Anti Gliadin AgG. Since then my mother came in positive with the Tissue Transglut Antibody.

So somehow there seems to be a leaning to possible Celiac. I am wondering if anyone else has kids with encopresis.

Nan

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2kids4me Contributor
2kids4me
Posted

My son has struggled with it off an on... we just figured out that it is related to 2 things - lactose and consitipation. Our daughter just started going lactose free and as an experiment we had son go lactose free..he decided he didnt have to worry so he went back on regular milk etc. Lo and behold but his "wet toots" [as he calls them] returned withing 6 hours of lactose in his diet, after a few days of having no problem (when lactose free)

The cause varies but it seems to be -for our son - related to lactose (he is also celaic/diabetic).

Now I am wondering if the dairy is also behind the constipation too.......

Willow5 Rookie
Willow5
Posted
  • Author

thanks for the input, my son does drink dairy, have tried no dairy before but not combined with gluten free... always a new twist! thanks again, Nan

AmandaD Community Regular
AmandaD
Posted

I don't know if this relates but when I was about 8 I had encoperesis and constipation issues throughout all of childhood.

I was diagnosed by my doc with Celiac last year. (They wondered if all those years of constipation were really undiagnosed celiac)...

  • 2 weeks later...
Willow5 Rookie
Willow5
Posted
  • Author
I don't know if this relates but when I was about 8 I had encoperesis and constipation issues throughout all of childhood.

I was diagnosed by my doc with Celiac last year. (They wondered if all those years of constipation were really undiagnosed celiac)...

How did you overcome encopresis? Do you remember soiling? Was it concious or an uncontroled situation? I often wonder if my son does it because he doesn't care, is too busy or truely can't control it! I notice with my 2 yr old daughter that her constipation clears up on gluten-free. My son age 10 eats too much Gluten too often to notice if there could be any improvement.

TCA Contributor
TCA
Posted

My son had this until going gluten-free. He wasn't constipated, just couldn't control his bowels at all. After a month gluten-free he was completely potty trained, but still has accidents if he gets gluten unintentionally. We had a foster son who had MAJOR problems with this. It turned out that he had an impaction the size of a grapefruit. Once that was cleared out, the problem went away. He's no longer here, but with his ADHD issues I now wonder if gluten may be an issue for him.

AmandaD Community Regular
AmandaD
Posted
How did you overcome encopresis? Do you remember soiling? Was it concious or an uncontroled situation? I often wonder if my son does it because he doesn't care, is too busy or truely can't control it! I notice with my 2 yr old daughter that her constipation clears up on gluten-free. My son age 10 eats too much Gluten too often to notice if there could be any improvement.

I was so young I barely remember, except that I wouldn't go to the bathroom for days and days. Then the doc started having me do mineral oil and orange juice drinks and eventually it wasn't so bad...but I had some issues basically until I turned 30 which is when my GI did the bloodwork and found out I had celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 6 years later...
julpez Newbie
julpez
Posted

Hi my son is 6 and always has had encopresis ( i thought he was always straining who new he was holding it in ) He has also always broke out into different rashes that have never been diagnosed clearly???? He's always sick with cold& cough?? I have to say his stools are not always hard he just tries to hold them in! He is going to get tested for Celiacs this week as our doctor seems to think its all connected in some way. I will post results.

kareng Grand Master
kareng
Posted

Hi my son is 6 and always has had encopresis ( i thought he was always straining who new he was holding it in ) He has also always broke out into different rashes that have never been diagnosed clearly???? He's always sick with cold& cough?? I have to say his stools are not always hard he just tries to hold them in! He is going to get tested for Celiacs this week as our doctor seems to think its all connected in some way. I will post results.

Just to let you know - this thread is 6 years old. Most or all of the posters are no longer active on the forum.

  • 4 years later...
Mumofzoey Newbie
Mumofzoey
Posted
On 22/10/2006 at 0:03 PM, Willow5 said:

My son has encopresis. He started out with the clay colored stools and then with a cycle of constipation for about 4 days followed by a large bm followed by a couple of days of diahrea. Up to a couple of times daily he soils his underwear. We have battled with this for a long time - he is now 10. He is being treated with miralax and scheduled sits on the toilet. My daughter who is 2 started up with the same symptoms - that is when I thought of celiac.

 

We got son tested and he came in low equivical results for Anti Gliadin AgG, I then got husband tested, he came in low equivical on Anti Gliadin AgA, then I got tested and came in about 3 times higher than normal on the Anti Gliadin AgG. Since then my mother came in positive with the Tissue Transglut Antibody.

 

So somehow there seems to be a leaning to possible Celiac. I am wondering if anyone else has kids with encopresis.

 

Nan

Hi, my 5 Year old daughter had just been diagnosed with both celiac disease and encopresis.  I'm trying to find out if they both go hand in hand, but I know celiac is an auto immune disease.  I'm still trying to learn all this and try and get my head around it. Her other siblings don't have it and she's had issues ever since she was born, only reason it took 5 years to get her diagnosed was by taking her to a different Dr, our old Dr kept turning us away and told told to use movicol ?? I was so so so angry with that Dr 

kareng Grand Master
kareng
Posted
1 minute ago, Mumofzoey said:

Hi, my 5 Year old daughter had just been diagnosed with both celiac disease and encopresis.  I'm trying to find out if they both go hand in hand, but I know celiac is an auto immune disease.  I'm still trying to learn all this and try and get my head around it. Her other siblings don't have it and she's had issues ever since she was born, only reason it took 5 years to get her diagnosed was by taking her to a different Dr, our old Dr kept turning us away and told told to use movicol ?? I was so so so angry with that Dr 

Maybe when zthe Celiac damage is healed , the other  problem will dissipate?

cyclinglady Grand Master
cyclinglady
Posted
2 hours ago, Mumofzoey said:

Hi, my 5 Year old daughter had just been diagnosed with both celiac disease and encopresis.  I'm trying to find out if they both go hand in hand, but I know celiac is an auto immune disease.  I'm still trying to learn all this and try and get my head around it. Her other siblings don't have it and she's had issues ever since she was born, only reason it took 5 years to get her diagnosed was by taking her to a different Dr, our old Dr kept turning us away and told told to use movicol ?? I was so so so angry with that Dr 

Hi!  

This is going to sound weird, but I am happy you have a diagnosis.  I hope, like Karen, that your daughter's other issue will resolve on a gluten free diet.  Your best defense is to research, research and research.  Learn all that you can about the gluten-free diet.  You can check out our Newbie 101 thread located under the Coping section of the forum.  

I assume you meant that the rest of your family was tested for celiac disease  when you stated that the siblings do not have it.  All first degree relatives should be tested even if asymptomatic.  

We are here to help!  

  • 2 weeks later...
CeliacMommaX2 Enthusiast
CeliacMommaX2
Posted

I know this started out as an old post, but I wanted to comment that an encopresis diagnosis is what led us to finding celiac in our 4 year old.  What helped us to beat the encopresis is Dr. Collins method- Soiling Solutions.  (plus I'm sure the gluten-free diet helped!)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    2. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    3. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    4. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
    5. cristiana
      - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott. Have manufacturers ever said why that should be the case?
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,440
    • Most Online (within 30 mins)
      7,748
    Lillian Steele
    Newest Member
    Lillian Steele
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By cristiana · Posted

      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.