Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So I Have A Twin Brother Right....

JerryK

Recommended Posts

JerryK Community Regular
JerryK
Posted

Probably some of you remember my discussion about my tooth enamel loss. Brother has that also and had to have all his teeth capped. His gums and teeth were in terrible shape.

Now I've had a difficult time convincing my brother that our tooth enamel loss, is clearly something genetic and could be consistent with Celiac. He complains frequently that he hurts all over, is tired all the time..he's on an antidepressant, he takes Xanax...etc....AND he weighs about 30 lbs more than my

170.

Now I think, just because he doesn't have glaring gastro symptoms, he's still displaying a lot of

symptoms of Celiac and it could well be the cause of his pain/fatigue/depression.

I sent him a list of symptoms and he mentioned that he gets mouth ulcers all the time....

Any thoughts on this....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

Yup, it sounds like some of my symptoms and yes Celiac can cause all of that and more.

Now some people don't want to know because they believe if they hide their head in the sand and they can't see you then you can't see them. So he figures if he ignores it and does nothing about it then it will go away. He is so wrong, it will only get worse. He should get tested because not just being your brother but your twin makes him highly probable to being Celiac.

Tell him not to be such a chicken and get something done before this disease leaves him with as little teeth as I have or worse, kills him.

covsooze Enthusiast
covsooze
Posted

I feel for you - me and my sister both have coeliac and we are convinced our father does because of his symptoms, but he had a negative blood test (he didn't have the full panel) and is not willing to take it any further, despite us telling him he could end up feeling so much better. it's a really difficult one.

Guhlia Rising Star
Guhlia
Posted

Jerry, perhaps when you get a positive diagnosis it will motivate him to seek help. If not, just make sure he KNOWS exactly how GREAT you feel after going gluten free. You could mention that you're much less tired, have more energy, etc... Focus on his symptoms that you share... Perhaps this will motivate him.

mommida Enthusiast
mommida
Posted

My sister has some obvious symptoms of celiac disease. i.e. vomiting after some meals and always anemic. :huh:

She is very happy to be thin and be able to eat anything she wants and will not get tested until..... Well I really don't know what would make her ever get tested. :blink:

L.

If your brother is at least looking at the information, listening to you, and asking questions he is doing more than any of my siblings. :ph34r:

eleep Enthusiast
eleep
Posted

I also have a twin brother! He's also got symptoms that look a lot like celiac -- worse anxiety than I've ever experienced, however, and also a tendency to be pigheaded (okay -- I do that too sometimes). He's actually been to the hospital a number of times for what they thought were thyroid issues, but no clear diagnosis ever seems to have surfaced from that.

I sent him my Enterolab results and talked with him about what they meant a couple of times, but I don't think I got anywhere -- as my other brother pointed out, we don't know how my twin could ever handle going gluten free since he seems not to know how to cook at all and lives off of hot pocket-type things.

Frustrating, but all I can do is provide the information, discuss the risks of being an untreated, undiagnosed celiac, and strongly recommend that he see a doctor about this. It's nice to hear about people with siblings who are a little more able to accept their influence!

Kody Rookie
Kody
Posted
Probably some of you remember my discussion about my tooth enamel loss. Brother has that also and had to have all his teeth capped. His gums and teeth were in terrible shape.

Now I've had a difficult time convincing my brother that our tooth enamel loss, is clearly something genetic and could be consistent with Celiac. He complains frequently that he hurts all over, is tired all the time..he's on an antidepressant, he takes Xanax...etc....AND he weighs about 30 lbs more than my

170.

Now I think, just because he doesn't have glaring gastro symptoms, he's still displaying a lot of

symptoms of Celiac and it could well be the cause of his pain/fatigue/depression.

I sent him a list of symptoms and he mentioned that he gets mouth ulcers all the time....

Any thoughts on this....

Sounds like me... err, except the denial part.

Uh oh, typo... I mean to say sounds like he could be a Celiac :D (Celiac causes all of those symptoms).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,935
    • Most Online (within 30 mins)
      7,748
    Kristina Windom
    Newest Member
    Kristina Windom
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Help I’m cross contaminating myself,

      By Wheatwacked · Posted

      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Bitters for digestion?

      By Wheatwacked · Posted

      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By lehum · Posted

      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.