Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Remote Control

Noel1965

By Noel1965
in Coping with Celiac Disease

Recommended Posts

Noel1965 Apprentice
Noel1965
Posted

Would love to get some feedback on this thought : I eat popcorn etc when watching tv. My family could eat anything from chips to a sandwich while watching tv. We all use the remote to change the channels and do not wash our hands at that time. Do you think this could be a factor in cc? Ditto for the computer keyboard....I don't eat the computer but my daughter does......

I was also wondering if that bottled antiseptic hand cleaner ( not sure what they are called) would work to get rid of gluten - it could be left on the coffee table.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Michi8 Contributor
Michi8
Posted
Would love to get some feedback on this thought : I eat popcorn etc when watching tv. My family could eat anything from chips to a sandwich while watching tv. We all use the remote to change the channels and do not wash our hands at that time. Do you think this could be a factor in cc? Ditto for the computer keyboard....I don't eat the computer but my daughter does......

I was also wondering if that bottled antiseptic hand cleaner ( not sure what they are called) would work to get rid of gluten - it could be left on the coffee table.

It could be a factor in cc. However, I doubt that hand cleaner would do the job...it kills germs, but doesn't actually wash anything off your hands.

Michelle

Noel1965 Apprentice
Noel1965
Posted
  • Author

Michi8 - Thanks for confirming my thoughts on the hand washing - didn't think that stuff would do the trick!

Guhlia Rising Star
Guhlia
Posted

Before we all went gluten free, I used to keep containers of baby wipes around the house. Also, gluten items were limited to the kitchen and everyone had to wash their hands after eating. I would recommend doing the wipe thing. It's easier than washing your hands non-stop.

kabowman Explorer
kabowman
Posted

I am very cautious about touching anything that the rest of the family will touch. Such as, I use the remote, wash my hands before I eat, touch the joint pantry handles, wash my hands before cooking or eating, etc.

I have not told my family about this yet, I keep this one to myself but they do wash their hands before touching dishes and pots and pans etc. but not for all the outside stuff. I think that would be going a little too far in my expectations, which are pretty high already.

I don't think I could get them to do it without thinking about it and then I could get sick, thinking they were being careful but teens just don't always think that much!!!!

teebs in WV Apprentice
teebs in WV
Posted

Here's another one - what about ice cubes? We have an ice maker but it is internal. I am sure that other ice cubes get touched besides the ones that are actually making it into someone's glass. I cringe every time someone reaches for the ice. I am about ready to quit using it.

MauriceGreene Rookie
MauriceGreene
Posted

too pedantic imo. Assuming that your remote control is not made out of carpet, how will you get cross contaminated. The only way I see it happening is if gluten gets stuck in the cracks and then falls out ( I dont see how this could happen) onto your hand then you shove your hand in your mouth.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chrissy Collaborator
chrissy
Posted

i think you could drive yourself nuts worrying about every possible thing that people "might" have contaminated with gluten.some obsessive compulsive people become so worried about contracting germs that they will wear gloves constantly. you don't want to become like that.

daffadilly Apprentice
daffadilly
Posted

well you do not have to worry about it for it to make you sick. Those of you that are not super sensitive will probably not understand or believe it . It is only those of us that can walk past a bakery & get sick on the fumes, that really get it. & believe me it is really an awful way to be. It is about like the peanut allergy, some react worse than others. & if someone eats peanuts & breathes on a peanut sensitive person, they are sick... or dead.

Nantzie Collaborator
Nantzie
Posted

I'm pretty sensitive too. I had a problem getting glutened after my MIL stayed with my kids while we were out of town. She was using hand lotion with gluten in it and doing stuff like doing the dishes and putting them away. I was getting glutened by anything she would have touched, like the silverware (for pete's sake). I had to re-wash all the silverware and no more glutening. :rolleyes::rolleyes::rolleyes: It took me over a week to figure out what it was.

Over the last year, and the first six months of being the only one gluten-free in my house, I just eventually developed a habit of washing my hands before I put anything in my mouth. Now, even with a 98% gluten-free house, I still find myself washing my hands when I don't necessarily need to anymore.

Nancy

Guest cassidy
Guest cassidy
Posted

Who knows if that could make you sick, but why chance it. I wash my hands before I touch any of my food or touch my mouth. I feel like this puts me in control and I don't feel paranoid about touching the remote or other things because even if there is gluten on my hands I'm pretty confident that I won't put it in my mouth.

Since you have non-gluten-free family members I don't think you can expect them to not eat gluten in front of the tv or computer (not saying you are trying to get them to do this). It would be nice if family members understood and just said they would be happy to make sure they didn't get you sick, but I don't think that is real world.

My gluten-free mom was down this weekend. She lives alone so her house is completely gluten-free. She started to make a sandwich directly on the counter and I had to remind her to be careful. She suggested that we have a gluten-free counter top and a gluten coutertop. In theory it sounds good, however, my husband didn't like the idea and I'm pretty sure would forget about it in a few days so I would still have to wipe down an area to make my food.

Maybe this is a good lesson for non-gluten-free kids. They can learn compassion and caring for other people. Some husbands could use learning that lesson as well.

kabowman Explorer
kabowman
Posted

I agree with the sensitivity issue - I have gotten sick off putting my gluten-free safe dressing into a microwave right after (not letting it air out for a minute) someone cooked popcorn - no corn, soy, dairy, etc for me so I am very careful and nobody in our house has ever had an issue with me insisting I cook my food first in the oven, microwave, etc. It is just safer.

I also try not to obsess (do not have OCD) but you watch the kids eating their chips, knowing they will make you sick and handling the remote, you just have to wonder, and NOT take that risk because the next day you are sick, will you remember the remote as a possible point of contamination? I won't...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will...
    2. Jacki Espo
      - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure.
    3. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

      Hi Tiffany. Thank you for writing your dituation and circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines. Way back when I was in my 2...
    4. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but...
    5. knitty kitty
      - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      Fascinating.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,955
    • Most Online (within 30 mins)
      7,748
    Mabelie
    Newest Member
    Mabelie
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.