Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Have To Avoid Wheat/gluten In Shampoo ?


breann6

Recommended Posts

breann6 Contributor

if i don't have DH- or atleast don't think i have it. do i need to avoid shampoo/conditioner and lotions with gluten/wheat/Oats in the ingred?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HawkFire Explorer

Yes.

jerseyangel Proficient
if i don't have DH- or atleast don't think i have it. do i need to avoid shampoo/conditioner and lotions with gluten/wheat/Oats in the ingred?

I do--it's just too easy for the shampoo to get into my mouth while it's running down my face in the shower :D

Lotions are just as bad or worse--they're all over your hands--then you fix your food, lick your finger, etc. That can make you sick--I actually glutened myself with hair gel before I knew better :o

Guest cassidy

It is a good idea. There was a post a while ago about how often shampoo gets in your mouth when you are in the shower - apparently it is often. It just isn't worth the risk of getting sick.

gbt Newbie

Celiac activist Alice Bast gave a talk recently here in the DC area where she said that despite having severe celiac disease, she does not bother with checking the status of gluten-free in shampoos, etc. Personally, I check my shampoo/conditioner products, as well as lotions. That's as far as I go. My soap happens to be gluten-free but I wouldn't hesitate to use a non-gluten-free soap if I had to since I also do not have dh. If you don't have dh, I think it is wise to check the obvious things that will come in contact with your lips/mouth and hands, but otherwise there is little need in my opinion. (Wash your hands often and thoroughly, however.)

Nantzie Collaborator

I don't have DH either, but I strictly avoid gluten in my hair and body products. I didn't think that the shampoo rinse water getting into my mouth would apply to me because I hate getting water on my face while I'm rinsing my hair and completely avoid it. But I'll be darned, tons of it does, even if you don't realize it. So if the wheat in the rinse water is getting in your mouth, you're getting glutened.

Nancy

Helena Contributor

I'm relatively new to this, so I'm not sure about celiac . . . but I do know (from learning about allergies) that proteins in hair/skin products are absorbed by the skin.

There is some discussion of whether peanut oil in cosmetic products can sensitize one to peanuts (the question was raised in relation to diaper cream and eczema cream---which sometimes contains highly refined peanut oil).

I wonder if I sensitized myself to sesame after using a cream on my face every day which contains sesame oil----I haven't eaten sesame for years, but I didn't know that I'm allergic to it. The hive on my skin prick test was way worse for sesame than it was for peanuts--and I go into anaphylactic shock with peanuts. Now, those tests are a guide but can be inaccurate so there is a chance I'm not actually allergic to sesame, but my allergist thinks that given the size of the hive it is safest to assume that I am. I asked him whether I could have developed an allergy from the cream-----he said it is possible, but not likely.

Anyways, this just goes to show that what you put on your body is absorbed. So unless gluten absorbed by the skin wouldn't elicit an immune system reaction for people with celiac disease (and I can't imagine that being the case), I'd say to avoid gluten in skin care/cosmetic products.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



winki4 Apprentice

Definately stay away from shampoo and lotions with gluten in them! I was one of those that pooh pooh-ed :o the idea that I should check out those pesky lables. I had always had pimple like bumps all over myself and they itched like crazy. When I finally started reading labels and stopped using items with gluten in them, magically the bumps and itching dissapeared. I am a convert now! :D

Creative-Soul Newbie

Not just shampoos and lotions...don't forget makeup, lip balms etc, and toothpaste!

At first I didn't think this was a big deal either, but don't forget that skin is the body's largest organ and things do absorb into it. It's just not worth the risk of accidentally glutening yourself...

breann6 Contributor

thanks! I am hitting the bathroom tomorrow. already confirmed makeup is okay- bare minerals- called and got a list of 'safe' products, all ones i use. i do have these weird bumps in my hair. like pimples but not pimples- maybe thats from my gluten rich hair treatment- ??

I sure hope my 'chapstick medicated' is gluten-free i LOVE that stuff :)

Thanks a ton!

Breann :D

frustratedneicey Apprentice

I myself get very painful pimple-like blisters on my scalp,back of my neck, upper back, and forehead when I use shampoos that contain wheat.

They become almost like boils, but when I asked my doctor about it, he looked at me like I am nuts (what's new)

So, I took it upon myself to stop using those shampoos. Cover girl blush gives me those blisters on my cheeks.

My Mary Kay girl wrote the company and got a list from them of what to watch for in beauty products. I am not sure where I put it, but if anyone wears make-up, mary kay or not, it would be smart to get in touch with someone that can give you the list. I am sure you can directly email them and get the same list I did.

Denise

kbtoyssni Contributor

I also replaced all my gluten-free chapsticks and lipsticks that I used before I was diagnosed. I worried that I'd eaten, put on chapstick and gotten crumbs in it. My theory is that I'm better to be safe. It's hardly any extra effort to buy gluten-free personal care products, and if it prevents me from getting sick just once, it's worth it! Not to mention that my anxiety level about gluten is nearly zero because I know everything in my apartment is gluten-free. When I lived with my parents I had a constant nagging feeling that I might get glutened at any time... Not having to worry at home means that when I do have to deal with gluten for things like going out to eat, it's not such a big deal for me.

I've also found that it's the more expensive shampoos that tend to have the all-natural gluten-y goodness in them. For once, using gluten-free products might actually be cheaper than the gluten alternative!

KaitiUSA Enthusiast

There are alot of gluten free shampoos and yes you should have gluten free shampoos.

Budew Rookie

I finally feel I am using all safe products. The diet healed all the DH but my face and scalp.

Suave is a cheap but a good product for hair.

I also found clinique to be very helpful. Many cosmetics change formulas often so they do not publish a list of gluten-free products. If you go to the clinique counter they will call and verify each product you wish to buy for you. It only takes an extra minute. Most of their products are gluten-free and reasonably priced.

My sister swore it did not matter but has noticed much healthier looking skin since changing.

Gamecreature Rookie

I do want to point out that for Gluten to have an effect on your GI tract it has to get into your mouth. Just getting it on your skin is not enough. Bear in mind that stuff we handle gets on our fingers and those get into our mouths more than we think. I recall cooking pasta and got too close to the boiling water and my automatic reaction was to stick my finger in my mouth to cool it down! So keep it off your face and hands and you won't be glutened. Needless to say, the same does not apply to other allergies that affect parts other than the digestive tract.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    2. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748

    jenny44
    Newest Member
    jenny44
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.