Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Have To Avoid Wheat/gluten In Shampoo ?


breann6

Recommended Posts

breann6 Contributor

if i don't have DH- or atleast don't think i have it. do i need to avoid shampoo/conditioner and lotions with gluten/wheat/Oats in the ingred?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HawkFire Explorer

Yes.

jerseyangel Proficient
if i don't have DH- or atleast don't think i have it. do i need to avoid shampoo/conditioner and lotions with gluten/wheat/Oats in the ingred?

I do--it's just too easy for the shampoo to get into my mouth while it's running down my face in the shower :D

Lotions are just as bad or worse--they're all over your hands--then you fix your food, lick your finger, etc. That can make you sick--I actually glutened myself with hair gel before I knew better :o

Guest cassidy

It is a good idea. There was a post a while ago about how often shampoo gets in your mouth when you are in the shower - apparently it is often. It just isn't worth the risk of getting sick.

gbt Newbie

Celiac activist Alice Bast gave a talk recently here in the DC area where she said that despite having severe celiac disease, she does not bother with checking the status of gluten-free in shampoos, etc. Personally, I check my shampoo/conditioner products, as well as lotions. That's as far as I go. My soap happens to be gluten-free but I wouldn't hesitate to use a non-gluten-free soap if I had to since I also do not have dh. If you don't have dh, I think it is wise to check the obvious things that will come in contact with your lips/mouth and hands, but otherwise there is little need in my opinion. (Wash your hands often and thoroughly, however.)

Nantzie Collaborator

I don't have DH either, but I strictly avoid gluten in my hair and body products. I didn't think that the shampoo rinse water getting into my mouth would apply to me because I hate getting water on my face while I'm rinsing my hair and completely avoid it. But I'll be darned, tons of it does, even if you don't realize it. So if the wheat in the rinse water is getting in your mouth, you're getting glutened.

Nancy

Helena Contributor

I'm relatively new to this, so I'm not sure about celiac . . . but I do know (from learning about allergies) that proteins in hair/skin products are absorbed by the skin.

There is some discussion of whether peanut oil in cosmetic products can sensitize one to peanuts (the question was raised in relation to diaper cream and eczema cream---which sometimes contains highly refined peanut oil).

I wonder if I sensitized myself to sesame after using a cream on my face every day which contains sesame oil----I haven't eaten sesame for years, but I didn't know that I'm allergic to it. The hive on my skin prick test was way worse for sesame than it was for peanuts--and I go into anaphylactic shock with peanuts. Now, those tests are a guide but can be inaccurate so there is a chance I'm not actually allergic to sesame, but my allergist thinks that given the size of the hive it is safest to assume that I am. I asked him whether I could have developed an allergy from the cream-----he said it is possible, but not likely.

Anyways, this just goes to show that what you put on your body is absorbed. So unless gluten absorbed by the skin wouldn't elicit an immune system reaction for people with celiac disease (and I can't imagine that being the case), I'd say to avoid gluten in skin care/cosmetic products.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



winki4 Apprentice

Definately stay away from shampoo and lotions with gluten in them! I was one of those that pooh pooh-ed :o the idea that I should check out those pesky lables. I had always had pimple like bumps all over myself and they itched like crazy. When I finally started reading labels and stopped using items with gluten in them, magically the bumps and itching dissapeared. I am a convert now! :D

Creative-Soul Newbie

Not just shampoos and lotions...don't forget makeup, lip balms etc, and toothpaste!

At first I didn't think this was a big deal either, but don't forget that skin is the body's largest organ and things do absorb into it. It's just not worth the risk of accidentally glutening yourself...

breann6 Contributor

thanks! I am hitting the bathroom tomorrow. already confirmed makeup is okay- bare minerals- called and got a list of 'safe' products, all ones i use. i do have these weird bumps in my hair. like pimples but not pimples- maybe thats from my gluten rich hair treatment- ??

I sure hope my 'chapstick medicated' is gluten-free i LOVE that stuff :)

Thanks a ton!

Breann :D

frustratedneicey Apprentice

I myself get very painful pimple-like blisters on my scalp,back of my neck, upper back, and forehead when I use shampoos that contain wheat.

They become almost like boils, but when I asked my doctor about it, he looked at me like I am nuts (what's new)

So, I took it upon myself to stop using those shampoos. Cover girl blush gives me those blisters on my cheeks.

My Mary Kay girl wrote the company and got a list from them of what to watch for in beauty products. I am not sure where I put it, but if anyone wears make-up, mary kay or not, it would be smart to get in touch with someone that can give you the list. I am sure you can directly email them and get the same list I did.

Denise

kbtoyssni Contributor

I also replaced all my gluten-free chapsticks and lipsticks that I used before I was diagnosed. I worried that I'd eaten, put on chapstick and gotten crumbs in it. My theory is that I'm better to be safe. It's hardly any extra effort to buy gluten-free personal care products, and if it prevents me from getting sick just once, it's worth it! Not to mention that my anxiety level about gluten is nearly zero because I know everything in my apartment is gluten-free. When I lived with my parents I had a constant nagging feeling that I might get glutened at any time... Not having to worry at home means that when I do have to deal with gluten for things like going out to eat, it's not such a big deal for me.

I've also found that it's the more expensive shampoos that tend to have the all-natural gluten-y goodness in them. For once, using gluten-free products might actually be cheaper than the gluten alternative!

KaitiUSA Enthusiast

There are alot of gluten free shampoos and yes you should have gluten free shampoos.

Budew Rookie

I finally feel I am using all safe products. The diet healed all the DH but my face and scalp.

Suave is a cheap but a good product for hair.

I also found clinique to be very helpful. Many cosmetics change formulas often so they do not publish a list of gluten-free products. If you go to the clinique counter they will call and verify each product you wish to buy for you. It only takes an extra minute. Most of their products are gluten-free and reasonably priced.

My sister swore it did not matter but has noticed much healthier looking skin since changing.

Gamecreature Rookie

I do want to point out that for Gluten to have an effect on your GI tract it has to get into your mouth. Just getting it on your skin is not enough. Bear in mind that stuff we handle gets on our fingers and those get into our mouths more than we think. I recall cooking pasta and got too close to the boiling water and my automatic reaction was to stick my finger in my mouth to cool it down! So keep it off your face and hands and you won't be glutened. Needless to say, the same does not apply to other allergies that affect parts other than the digestive tract.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.