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HawkFire

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HawkFire Explorer

Where is the best place in the country to live if you have celiac disease? Some towns are better than others offering restaurants known to be friendly to celiacs and having health food shopping marts that offer extensive lines of gluten free products. Some towns and states are not known for their knowledge.


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Guest CD_Surviver

columbus ohio is not to bad to live in

happygirl Collaborator

I would guess NYC...there are so many gluten free specialty places.

There are a couple places in AZ known for their gluten free pizza---thats enough to be good!

daffadilly Apprentice

NYC second choice Austin, Texas

mamaw Community Regular

I would have to guess NY---next maybe the denver co. area. I'm not near anything so for me anywhere but here would be an improvement!!!!!!!!!! I really envy some of you having soooo many choices...

mamaw

Guhlia Rising Star

I would think Orlando, FL would be a pretty good place to live. They have all the normal Celiac standby's like Outback, Carraba's, P.F. Changs, plus they have Planet Hollywood (Celiac friendly) and all of the Disney stuff which is VERY Celiac friendly.

GFBetsy Rookie

Nope. It's definitely Utah! :D We've got the U of U (which did a huge genetic study on celiac . . . which has now moved to UC Santa Barbara, I think), fabulous GIG support groups, and TONS of people who were diagnosed during the U of U study. Just before Halloween I overheard some people in the grocery store looking for "gluten free, chocolate free, peanut free" candy . . . and of course I stuck my oar in and helped them find some!

Of course, we don't have Disneyland . . . but there are gluten free cooking classes held at a Utah grocery chain all up and down the Wasatch front . . . and if that's not cool, what is?


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tarnalberry Community Regular

Seattle has a number of places with gluten-free specific menus, including bakeries.

Los Anglese (and the whole surrounding area) had a fair number of options as well.

Sweetfudge Community Regular

Utah's pretty good, as Betsy said.

But I have to say that every time I visit my family up in Portland, I get a bit homesick...and jealous. They've got all the stuff I have to buy at health food stores in the main grocery stores! I've seen gluten free menus in many restaurants, I've even visited a gluten-free candy shop! I feel like there's so much more awareness up in PDX...wish we had that down here in UT.

Gamecreature Rookie

I used to live in Eugene and I think Oregon must be ground zero for organic food. :) I think there's a gluten-free pizza place out there, too.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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