Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have Any Of You Had Problems?


vampella

Recommended Posts

vampella Contributor

I called safeway to night to ask if there was gluten in their paper towel. I called and said Hi, Can you tell me if there is gluten in this product? she said, why does that matter, more than ONCE and she was so rude about it. I was blown away by her comment and said some paper towels contain it as a binding agent or something and she said well why does it matter? I said because my daughter has celiac disease and can't have gluten she said, well hold on...went away and left me on hold came back and said I don't have product info on that one. I was like umm ok and hung up on her. I couldn't believe how RUDE she was. OMGOSH

This is the first time I've had a problem. Have any of you encountered people like this?

Point me to a safe paper towel if you can too please!!! bounty and all the brand names were closed so I tried safeway, NOT AGAIN!!

Char


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AmyTopolski Apprentice

I was told that Bounty are gluten free. I have also had problems with this. Mostly from Huggies. They say that they may but their products aren't intended for ingestion. Well toddlers put their hands in their mouths! We don't use them anymore. I find it safer to stay with companies who are willing to help to the fullest.

Amy

happy4dolphins Enthusiast

HI, I wrote an e mail to zest and they sent me back an e mail saying that gluten doesn't matter if it's in soap and I should check with the doc (that was the shortened version).

Nicole in Michigan

zansu Rookie

and then there was red lobster who said, we change our menu so often that we can't keep track of stuff like that. Guess where I have NOT eaten in 3 years! I just wish I had a Bonefish here!

kbtoyssni Contributor

Yes, and I won't buy products from companies who can't seem to get their act together on gluten.

The company I have the most trouble with is Target generic brand. Because Target contracts with other companies to make their generics so you call Target and they give you the phone number of who makes it, but since they're just a contract company they don't have good customer service since they rarely deal directly with the customer.

sparkles Contributor

Supervalue grocery stores are willing to check for gluten but I have to send them the UPC code so they can check.... that is too much of a hassle so I just don't eat their store brand. I tend to go with manufacturers I can trust to mark their foods or products gluten-free. I haven't had lots of trouble with getting response from the manufacturer and if I do, they go on my "NEVER BUY PRODUCTS FROM THOSE MANUFACTURERS" list!!!! For the most part, I have found the people in the Customer Service Department very helpful. I always include my phone number when I send an email and I bet about 25% of the companies I contact, call me for follow up info. Some companies care and will go out of their way to make sure that there products are safe or at least inform you when there products are not safe for celiacs. As for the rest of them, well, I just don't buy from them. I shop Target MAYBE once a year!!! I shop Sam's Club and WalMart all the time. They label their food and are really helpful when I call with a question. I know WalMart has a bad rep in some areas but when it comes to the gluten-free questions, they are really helpful so I shop them all the time.

happy4dolphins Enthusiast

HI, I did find the Zest reply in my emial. SO, here it is.

Nicole

Recently you requested personal assistance from our on-line support

center. Below is a summary of your request and our response.

If this issue is not resolved to your satisfaction, you may reopen it

within the next 7 days.

Thank you for allowing us to be of service to you.

Subject

---------------------------------------------------------------

HI, I'd like to know if Zest Aqua is gluten free....

Discussion Thread

---------------------------------------------------------------

Response (RightNow Administrator) - 10/06/2006 10:44 PM

Thanks for contacting Zest.

We know Celiac is a serious disease, so we want to give you clear

information regarding the use of our beauty care products. If wheat and/or

gluten aren't directly added to a product by us, these ingredients

won't be listed on our packages. Like many companies, we often purchase

the scents for fragranced products from outside suppliers, and the

components of these substances are proprietary information belonging to those

companies. Therefore it's possible that a very small amount (generally

parts per million) of gluten may be present.

We sought advice from physicians; they told us it would be very

unlikely a person with Celiac disease would have a reaction from a trace

amount of gluten coming into contact with his skin or hair. This is because

wheat, rye, barley and/or gluten generally cause symptoms when they're

ingested. Since our beauty care products are designed to be used

externally on the skin, their use shouldn't be an issue for someone with

this disease.

Since gluten sensitivity can vary among people, it would be best if you

consulted with your physician about the use of all types of consumable

goods, if you haven't already. You might even consider using one of

our fragrance free products that doesn't list gluten or wheat extracts on

the label.

Thanks again for getting in touch with us. I hope this response has

been helpful to you. For more information about Celiac, you may want to

check out Open Original Shared Link and Open Original Shared Link

P&G Beauty Care Team

Customer - 10/04/2006 10:38 PM

HI, I'd like to know if Zest Aqua is gluten free.

Auto-Response - 10/04/2006 10:38 PM

Title: Samples

Link:

Open Original Shared Link

Title: News sponsorship

Link:

Open Original Shared Link

Title: Is personal information encrypted?

Link:

Open Original Shared Link

Question Reference #061005-000127

---------------------------------------------------------------

Product Level 1: Zest

Category Level 1: What's in it?/Ingredients

Date Created: 10/04/2006 10:38 PM

Last Updated: 10/06/2006 10:44 PM

Status: resolved by newton


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



vampella Contributor

I have to say that e-mail from P& G angers me.

I don't care what YOUR doctor says. my 3 year old washes her hand and eats, sucks her thumb and she gets glutened from even trace amounts.

So things on the skin and in the hair DO MATTEr...EErrr that bugs me.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,027
    • Most Online (within 30 mins)
      7,748

    EmmaGraceeee
    Newest Member
    EmmaGraceeee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.