Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Lynne - Tiredofdoctors

mouse

By mouse
in Introduce Yourself / Share Stuff

Recommended Posts

Mtndog Collaborator
Mtndog
Posted

I thank all of you. Armetta for getting the ball rolling even when she felt yucky, Lisa and Laura- for compilig everything. If they get this I am so flying down to Lou-ville for thaat week. :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 112
  • Created
  • Last Reply
Rusla Enthusiast
Rusla
Posted

Armetta, Lisa, and Laura, I want to thank all of you for thinking of this for Lynne and Dave. I don't know how many letters you rounded up. I do hope they take it to heart what we have all said. Not only does Lynne need this but she deserves this.

Lisa Mentor
Lisa
Posted

Armetta, I thank you for your gift of compassion, generosity and the knowledge of "it's just the right thing to do". Good things happen, to good people making it happen.

Thoughts to you, Lisa

Lisa Mentor
Lisa
Posted
Armetta, Lisa, and Laura, I want to thank all of you for thinking of this for Lynne and Dave. I don't know how many letters you rounded up. I do hope they take it to heart what we have all said. Not only does Lynne need this but she deserves this.

Just to clarify........Armetta is in command, Laura and I are the ground crew. Metta., has the yucks, so we are the stand ins. :blink:

Thanks and yes she does.

Turtle Enthusiast
Turtle
Posted

I think it's really great how everyone came together and made every effort to help out on this project!

Thanks to Metta and her ground crew for all their hard work and organization!!

Keep us posted!!!!

num1habsfan Rising Star
num1habsfan
Posted

Hmm does that mean I missed the cut-off? :blink:

~ lisa ~

  • 4 weeks later...
angel-jd1 Community Regular
angel-jd1
Posted

Just curious if They made the cut??

-Jessica :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I should have posted this earlier:

All the little pieces are coming together and they should be ready to submit VERY soon. It is a technical process and full of lots of detail. Hopefully, within a week or so, the whole package will be sent off and submitted.

All of those who care or have written a letter, it is a gift that you bring. Thank you :)

Armetta, is force behind this project. Hopes and prayers could make it happen. But, lets get there first.

Lisa

I will post with any news or updates.

Mtndog Collaborator
Mtndog
Posted

No one deserves it more than our Lynne! :rolleyes: :rolleyes:

debmidge Rising Star
debmidge
Posted

is there still time for more? I got bombarded at work and didn't get to my letter...

happygirl Collaborator
happygirl
Posted

Deb, if you want to get it to me soon, I can include it! I'll PM you my email.

xoxo

  • 3 weeks later...
angel-jd1 Community Regular
angel-jd1
Posted

Any updates? Did they make the cut. They should be hearing back by now I would think. This was all done forever ago :)

-Jessica :rolleyes:

Lisa Mentor
Lisa
Posted

Lynne and Dave have been sick with the flu and Lynne had a bad case of pneunonia and is recovering and feeling better. They are looking for a good sunny day to arrange the video.

Lynne, you can chime in here......... :D

Laura has done a great deal of work getting the letters in perfect submission. Thanks you so much Laura for you hard work and a lot of you private time.

Armetta has the package ready to go when the video is complete.

We are wishful, for Lynne. It would be soooo cool.

Armetta or I will let you know when the package has been submitted and you guy will be the first (well, second) to know!

Lisa

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines. Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured...
    2. Trish G
      - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Fiber Supplement

      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement. Thanks again
    3. Wheatwacked
      - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      If you were wondering why milk protein bothers you with Celiac Disease. Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
    4. Wheatwacked
      - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      My TMJ ended when I lost a middle lower molar. I had an amalgam filling from youth (1960s) that failed and the tooth broke. I had what was left pulled and did not bother to replace it. My bite shifted and the TMJ went away. I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
    5. trents
      - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

      Yes, I wondered about the units as well. That large number sure looked more like what we're used to seeing in connection with total IGA scores rather than TTG-IGA. The total IGA test is given to determine if you are IGA deficient. In the case of IGA deficiency, other IGA tests will b skewed and their scores cannot be trusted. Elevated total IGA can point...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,343
    • Most Online (within 30 mins)
      7,748
    JosieS
    Newest Member
    JosieS
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      ttg iga high (646 mg/dl) other results are normal

      By knitty kitty · Posted

      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      My TMJ ended when I lost a middle lower molar.  I had an amalgam filling from youth (1960s) that failed and the tooth broke.  I had what was left pulled and did not bother to replace it.  My bite shifted and the TMJ went away.  I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      Yes, I wondered about the units as well. That large number sure looked more like what we're used to seeing in connection with total IGA scores rather than TTG-IGA. The total IGA test is given to determine if you are IGA deficient. In the case of IGA deficiency, other IGA tests will b skewed and their scores cannot be trusted. Elevated total IGA can point to other health issues, some of them potentially serious, or it can mean nothing. But it doesn't look like you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.