Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Indigestion And Other Awful Symtoms


rutland

Recommended Posts

rutland Enthusiast

Ive been dealing with the most awful indigestion symptoms whenever I eat anything. What happens is I get hungry, I sit down and eat, then afterward I feel that the food just sits there and doesnt process. Then I get the chills, nausea, tired, and pain in my back?

All I had today was a bowl of veg soup and apple sauce and that just sat in my stomach and made me feel sick. Then I start to get irritable, depressed, moody, anxius, and I cant think straight. I dont get this. Sometimes when I eat dinner it will sit in my stomach all night and then I wake up around 3:00 in the morning with nightsweats, nausea, and a racy heart, and racing mind. I feel that Im doing everything to help myself heal but I must be missing something. I have an appt. with the doc on Mon. so hopefully he can investigate further.

What I want to know is, is this a normal part of healing from celiac, Ive been gluten-free for four months, Does it take longer than that to heal? Also does anyone else go through this and if so what do you take to get through. I mean... can anyone give any suggestions as to the enhancement of digestion, product brands? What about things like pepto bismol or alka seltzer? Are they gluten free? I need a remedy!!!!!

Steph


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

I experienced those same symptoms. Chills, nightsweats, brainfog, joint pain, confusion, etc. I havent experienced the symptoms as severely as I used to....mainly because I'm extremely careful of what I eat. I dont eat processed foods (except one kind of ice cream) and I only eat organic foods.

My list of foods that dont cause too much grief is very small...I only eat 5 foods for now. I'm going through treatments to calm my immune system down so that I can eat alot more foods. I also have environmental intolerances....my immune system just went haywire. :huh:

Prior to this I never had a sensitivity to anything my entire life. <_<

I dont believe that those symptoms are caused by gluten if you are 100% gluten-free.

You may be intolerant to other foods, you may have candida, you may have something else going on.

For me it turned out to be Lyme Disease.....I wasnt aware of the infection until it took me down. Other things piled on top of that, gluten intolerance, candida, multiple chemical/food sensitivities, etc. If you're not improving on the diet there very well could be something else going on.

I hope you feel better soon.

Guest cassidy

Have you tried digestive enzymes? In the beginning I was still not feeling well, but I was better than I was when I was on gluten. I started drinking aloe which calms and heals your stomach lining and taking digestive enzymes which help you break down food and probiotics which help your intestines get a good balance of bacteria. All those things help me. Now, if I get a stomachache I take a digestive enzyme and it really helps.

Your system may still be healing, and as Rachel suggested, staying away from processed foods and keeping a food diary may help. After going gluten-free I discovered that lots of other things bother me - chocolate, citrus, strawberries, pineapple, kiwi, potatoes, tomatoes, green peppers, etc. It took a while to figure all that out, but I'm doing much better now. I can have a few bites of the above and I'm fine - just not a bunch.

Hopefully, your doctor can help, but if he/she isn't very open minded and doesn't understand celiac well, they may not be a big help. I would not recommend taking prescription antacids like aciphex. I take apple cider vinegar pills for heartburn - it is much safer and works better.

key Contributor

Stef,

I deal with this almost same thing. I feel as if my food doesn't digest, nausea and my heart racing. You may want to look into reflux? I was having it and I am doing better. I do take digestive enzymes. Also pepto-bismol if it is real bad. I find I have this after being gluttened alot. Also dramamine helps me with nausea.

Are you on any drugs? I was taking Lexapro and I swear it was giving me nausea and indigestion. I didn't know it, but it is a side effect. Also I think the heart palpitations were from that.

I can relate to feeling the same way. It stinks to feel as if you are already being extremely careful and not eating anything processed, not eating out, etc. and then still having problems.

I know for a fact that being gluttened makes my food not digest. I also try and limit my dairy intake.

Right now I am taking Prilosec for a few weeks.

Hope you feel better soon,

Monica

Marlene Contributor

Hi Steph,

Gluten intolerance/ Celiac affects the duodenum area which is where a lot of enzyme production takes place. It can also affect your pancreas, gall bladder, and bile ducts. When this happens, you will have difficulty digesting your food. (If you still have your gall bladder, do whatever it takes to keep it. I had mine out and my symptoms became much worse.) There is a hormone called CCK (not sure what that stands for) which is produced in the duodenum. This hormone tells your body when to start digesting food, sending through enzymes, and releasing bile. Celiac disease affects CCK, causing a lot of problems with indigestion. You might want to try taking a very good digestive enzyme, L-glutamine, and a probiotic. If you can stay away from things like Losec (acid inhibitors), I would. After awhile of taking those, your stomach will not produce enough acid and then you will really not be able to digest your food at all.

I am not a doctor but have learned all the above through research and my own miserable problems with indigestion, malfunctioning gall bladder, and gluten intolerance. I just can't figure out how it is that people like us can learn all of this but most doctors (including Gastro specialists) don't know anything other than "IBS".

Hope you find relief and start feeling better soon. Don't forget that an adult can take up to 2 years to heal completely.

Marlene

rutland Enthusiast

Thank you for all the info. This has been really helpful.

I just bought a really reputable and good digestive enzyme and already I notice a difference. It seems that I must be severely deficient in certain enzymes my body needs to digest the food I eat. It literally felt like my body didnt know what to do with the food that was in my stomach and then a cascade of miserable symptoms would follow.

Marlene, I wasnt aware of what celiac can do to the gallbladder and other digestive organs but it makes so much sense to me now. For the longest time I had a chronic pain in my liver/gallbladder area and I do believe that there is healing to do in that region as well. Thankfully I found a good digestive enzyme by Enzymedica that seems to be helping me a lot.

Can anyone reccomend an excelllent probiotic. I just ordered one from enzymedica. dont know if its the best though.

I believe that there is a huge difference in brands of products out there. For digestion I need to be on the best.

grannynanny Rookie
Can anyone reccomend an excelllent probiotic. I just ordered one from enzymedica. dont know if its the best though.

Hi Steph,

I'm taking Three-Lac, sold by Global Health Traxx. I believe it's considered a probiotic, but it's definitely touted as helping to control the candida overgrowth which our celiac symptoms have created over the years.

Sue


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.