Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Forum


ICWendy

Recommended Posts

ICWendy Newbie

Hi to everyone,

My name is Wendy and I am new to this forum, and not very computer literate. I just wanted to introduce myself, and to say I hope I am doing this right.

I have multiple food allergies, but especially gluten and dairy, and a disease that effects the bladder. It is called interstitial cystitis, or IC. I am particularly wondering if any celiacs or wheat-allergic folks have bladder issues, as I think there is a link.

Anyone have any thoughts on the subject, or is there a better forum to communicate this topic?

Wendy in Portland, Oregon


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Hey Wendy:

Welcome to the forum. You will find a vast amount of information here.

I do not have blatter issues, but you may try to do a search here on the forum. Find the search area and type in blatter issues. Perhaps you can find some old posts, with the information your requested.

Just want to let you know that sometimes on the weekend, the site is quiet. Mondays get active.

Glad you have found us.

Lisa

mamaw Community Regular

Hi Wendy

I don't have any information for you about bladder issues but I just wanted to Welcome you to the site.

mamaw

jerseyangel Proficient

Hi Wendy and welcome :)

I don't have any firsthand knowledge of IC or bladder problems, but I found a thread that you might find interesting--

Open Original Shared Link

Hope that helps a little.

jesscarmel Enthusiast
Hi to everyone,

My name is Wendy and I am new to this forum, and not very computer literate. I just wanted to introduce myself, and to say I hope I am doing this right.

I have multiple food allergies, but especially gluten and dairy, and a disease that effects the bladder. It is called interstitial cystitis, or IC. I am particularly wondering if any celiacs or wheat-allergic folks have bladder issues, as I think there is a link.

Anyone have any thoughts on the subject, or is there a better forum to communicate this topic?

Wendy in Portland, Oregon

Hi Wendy

I too have bladder problems. the drs didnt give me a final diagnosis of IC but they think it might be it. i had a cystoscopy and bladder stretching procedure because i was having a lot of burning when i peed and peeing a lot. apparently my bladder was half the size of a normal person. it sort of felt like i often had a uniary tract infection but didnt. the procedure was painful but i was better after for like 6 months. lately i have having the buring again sometimes......have you had any bladder procedures done?

Jess

happygirl Collaborator

Wendy,

Happy to have you here!! This board is such a great place, and you'll almost always find someone in a similar boat, for better or for worse ;)

Ask away...we are here to help! And read, read, read. A good way to keep up on recent posts is to click on "view new posts" near the top....that can give you an overview of current topics. Or, click on the different "areas" (coping with, recipes, pre diagnosis, etc.) and you can see all the topics in each area.

hope this helps a bit...let us know what else we can do!

Laura

Nancym Enthusiast

I use the "view new posts" button at the top then I click on "Mark all posts read" when I'm done.

Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Anonymousgurl Contributor

I'm brand new here too and I find it pretty confusing! You an I are quite alike, because I too have multiple food allergies (not JUST gluten...which makes eating quite depressing...) and I have bladder problems! Aren't bladder problems quite annoying at night? haha...well anyways....hopefully we'll both figure out the site soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    2. - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    3. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    4. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,842
    • Most Online (within 30 mins)
      7,748

    Julia Duffee
    Newest Member
    Julia Duffee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.