Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Forum


ICWendy

Recommended Posts

ICWendy Newbie

Hi to everyone,

My name is Wendy and I am new to this forum, and not very computer literate. I just wanted to introduce myself, and to say I hope I am doing this right.

I have multiple food allergies, but especially gluten and dairy, and a disease that effects the bladder. It is called interstitial cystitis, or IC. I am particularly wondering if any celiacs or wheat-allergic folks have bladder issues, as I think there is a link.

Anyone have any thoughts on the subject, or is there a better forum to communicate this topic?

Wendy in Portland, Oregon


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Hey Wendy:

Welcome to the forum. You will find a vast amount of information here.

I do not have blatter issues, but you may try to do a search here on the forum. Find the search area and type in blatter issues. Perhaps you can find some old posts, with the information your requested.

Just want to let you know that sometimes on the weekend, the site is quiet. Mondays get active.

Glad you have found us.

Lisa

mamaw Community Regular

Hi Wendy

I don't have any information for you about bladder issues but I just wanted to Welcome you to the site.

mamaw

jerseyangel Proficient

Hi Wendy and welcome :)

I don't have any firsthand knowledge of IC or bladder problems, but I found a thread that you might find interesting--

Open Original Shared Link

Hope that helps a little.

jesscarmel Enthusiast
Hi to everyone,

My name is Wendy and I am new to this forum, and not very computer literate. I just wanted to introduce myself, and to say I hope I am doing this right.

I have multiple food allergies, but especially gluten and dairy, and a disease that effects the bladder. It is called interstitial cystitis, or IC. I am particularly wondering if any celiacs or wheat-allergic folks have bladder issues, as I think there is a link.

Anyone have any thoughts on the subject, or is there a better forum to communicate this topic?

Wendy in Portland, Oregon

Hi Wendy

I too have bladder problems. the drs didnt give me a final diagnosis of IC but they think it might be it. i had a cystoscopy and bladder stretching procedure because i was having a lot of burning when i peed and peeing a lot. apparently my bladder was half the size of a normal person. it sort of felt like i often had a uniary tract infection but didnt. the procedure was painful but i was better after for like 6 months. lately i have having the buring again sometimes......have you had any bladder procedures done?

Jess

happygirl Collaborator

Wendy,

Happy to have you here!! This board is such a great place, and you'll almost always find someone in a similar boat, for better or for worse ;)

Ask away...we are here to help! And read, read, read. A good way to keep up on recent posts is to click on "view new posts" near the top....that can give you an overview of current topics. Or, click on the different "areas" (coping with, recipes, pre diagnosis, etc.) and you can see all the topics in each area.

hope this helps a bit...let us know what else we can do!

Laura

Nancym Enthusiast

I use the "view new posts" button at the top then I click on "Mark all posts read" when I'm done.

Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Anonymousgurl Contributor

I'm brand new here too and I find it pretty confusing! You an I are quite alike, because I too have multiple food allergies (not JUST gluten...which makes eating quite depressing...) and I have bladder problems! Aren't bladder problems quite annoying at night? haha...well anyways....hopefully we'll both figure out the site soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,068
    • Most Online (within 30 mins)
      7,748

    Nature Gal
    Newest Member
    Nature Gal
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.