Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Suuuuuuuch An Idiot!

emcmaster

By emcmaster
in Coping with Celiac Disease

Recommended Posts

emcmaster Collaborator
emcmaster
Posted

Anyone remember that whole mantra of once you heal and feel really good, you often become lazy and not as diligent as you were when you were first diagnosed?

I didn't believe it would happen to me, but it did.

I seriously think I got glutened EVERY DAY this past week. Every day. I thought I was being careful, but realizing that the huge bag of Doritos I ate was not gluten-free (um, DUH) brought about a huge smack in the face. Sadly, the doritos were probably one of the lesser glutenings.

I've been doing ok with my reactions to gluten, given that it happens so sparingly. The "suffering" time has been about 20% of the time it used to be.

But not this time. It's been 3 days and I'm still just as sick.

GRR. The only person I have to blame is myself. :angry:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

Even when you are dilligent it happens to be so hard on yourself. I was extremely dilligent and I still got it.

codetalker Contributor
codetalker
Posted

Welcome to the club!

darlindeb25 Collaborator
darlindeb25
Posted

Like they always say--when you fall off the horse, get right back on! It happens, don't beat yourself up!!!

Guest cassidy
Guest cassidy
Posted

I've done that as well. You can't be perfect on the diet especially when there are so many foods to avoid. I often thought about eating something bad after I've been accidently glutened because I wondered if it would make the recovery alot worse, or just a little worse. I've never done it because I don't think I could enjoy something that I knew was bad. Being pregnant now I really don't get that sick when I'm glutened and if I thought it wouldn't affect the baby I would eat a big old pizza, but fear would never let me do that.

Hope you feel better and the combination of glutenings doesn't make it that much worse.

gadgetgirl Newbie
gadgetgirl
Posted
Anyone remember that whole mantra of once you heal and feel really good, you often become lazy and not as diligent as you were when you were first diagnosed?

I didn't believe it would happen to me, but it did.

Welcome to the club! I'm right there with you - my reward for my sloppy eating over the past week has been the first head cold that I've had in almost 2 years despite being constantly exposed to bugs. And to top it off, I've completely lost my voice and have a job where I interact with heariing impaired individuals on a daily basis. Duh!!!!

Like one of the others said, I've gotten back on the horse and am eating clean and have even started to chase sugar back out of my diet - it had snuck back in when I went gluten-free.

Hope you feel better soon!

jerseyangel Proficient
jerseyangel
Posted

Hi Elizabeth,

I have to add my "don't be so hard on yourself"! It really does happen to all of us at one time or another.

You will get back to feeling well again--hopefully very soon :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


emcmaster Collaborator
emcmaster
Posted
  • Author

Thanks everyone! I appreciate the words of comfort!

I can't believe I used to feel this sick almost all the time - I feel like death warmed over. Bleh!

marciab Enthusiast
marciab
Posted

Blame it on the gluten ... It can do so many things to us, why not ??

I'm beating myself up right now over the same thing. It is just so hard to find replacements for everything ... And who really wants to believe that cross contamination can do as much harm as the real thing.

I'll stop beating myself up if you will ... marcia :blink:

SchnauzerMom Rookie
SchnauzerMom
Posted

Count me in. I messed up at a Christmas dinner at my sister-in-law's. The meat and veggies were fine but then I had dessert. Chocolate pie, I thought I could just not eat the crust and I would be alright. Wrong! I'm getting over it finally.

ajay Newbie
ajay
Posted

I visited my family for the holidays and we went out to dinner for Christmas, which is the worst day to ever go to a restaurant if you have any special concerns. Most of the food is pre-prepared and the staff is usually the least experienced, because the senior staff is on vacation. I was as careful as possible under the circumstances..and currently covered with little red spots nonetheless. And crampy and sick. Bleah.

At least we all know what to do for New Year's Resolutions!

:P

emcmaster Collaborator
emcmaster
Posted
  • Author

Thanks so much for the support!

I'm still feeling pretty bad. It got better on Friday and yesterday to where I thought the symptoms were finally going away. But then I woke up this morning in a lot of pain, really really bloated. (Guess that means I'll be wearing pajama pants at our New Year's Eve party <_< ).

I used to be dairy and fat intolerant, until early November. Does anyone know at what point I should start cutting that out again if I don't feel better soon? I'm so paranoid that those intolerances will come back...

happygirl Collaborator
happygirl
Posted

Elizabeth,

I'm sorry to hear about your rough spell. It definitely is frustrating, but you have been around on this board long enough to know that we have ALL been glutened before :(.

Get back on the gluten free horse, and we'll resolve to make 2007 even MORE gluten free :)

Laura

emcmaster Collaborator
emcmaster
Posted
  • Author

Thanks, Laura. Hope you're feeling better - how are your tests going to determine what else you have?

happygirl Collaborator
happygirl
Posted

Elizabeth,

You are sweet to ask, esp considering your recent glutening :). I will PM you if that is ok :)

Laura

lilmama Apprentice
lilmama
Posted
Anyone remember that whole mantra of once you heal and feel really good, you often become lazy and not as diligent as you were when you were first diagnosed?

I didn't believe it would happen to me, but it did.

I seriously think I got glutened EVERY DAY this past week. Every day. I thought I was being careful, but realizing that the huge bag of Doritos I ate was not gluten-free (um, DUH) brought about a huge smack in the face. Sadly, the doritos were probably one of the lesser glutenings.

I've been doing ok with my reactions to gluten, given that it happens so sparingly. The "suffering" time has been about 20% of the time it used to be.

But not this time. It's been 3 days and I'm still just as sick.

GRR. The only person I have to blame is myself. :angry:

I did the exact same ting tis week. Sat down and munched on Doritos then the light bulb went off that I just ate the wrong thing. I paid dearly for it. It had been a sucky 2 wks and every turn I was glutening myself. I'm glad the holiday is over and that everyone is finally getting well in my house.

plantime Contributor
plantime
Posted
Count me in. I messed up at a Christmas dinner at my sister-in-law's. The meat and veggies were fine but then I had dessert. Chocolate pie, I thought I could just not eat the crust and I would be alright. Wrong! I'm getting over it finally.

I did the same thing with lemon meringue at my neighbor's on Christmas Day. Although I did learn that I am not as sensitive as I was before. I guess the 9 months since the last glutening allowed a lot of healing. For which I am truly thanking God!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748
    ZENken
    Newest Member
    ZENken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.