Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are Chronic Sinus Infections Associated With Celiac?


ami27

Recommended Posts

ami27 Apprentice

I'm not sure which category I fit in 'cause my bloodwork came back negative from my doctor. I had already been 2 weeks or more gluten free and I don't trust the results. I know I feel better when I don't eat gluten. I have been feeling bad for over a week and finally went to the doctor yesterday. I have a sinus infection and a middle ear infection. I get a sinus infection about every 6 months or so. I was recently tested for allergies food and air borne. They came up negative. The only foods I was allergic to was oats and a few spices. I don't see any other reason why I would get these so often. I've asked for years and there has never been a good explanation. I would just like to hear of others experiences. Thanks.

Ami


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Hi Ami, and welcome!

I've been gluten-free for about a year and a half now, and although I have a cold now, it's the first one I've had since going gluten-free! I seriously think that I got sick because of the added stress, not only of the holiday season, but anxiety about some other things that I have going on right now.

There are others, as well as myself, who have noticed fewer colds and sinus problems/infections since starting the gluten-free diet.

Since you had been gluten-free at the time of your blood tests, the results may have been skewed. And, since you feel better off gluten, I would keep at it and see how you feel in 6 months as far as the sinus problems are concerned. You may find that you are not getting the infections as often (or at all).

plantime Contributor

I have an allergy to grasses, so eating wheat made my nasal passages swell. This caused bacteria to be trapped, and infections to grow. I haven't had a sinus infection since I went gluten-free, thank God!

GlutenWrangler Contributor

Ami,

I did read of others having chronic sinusitis associated with celiac disease/gluten intolerance. I had chronic sinusitis for a very long time. It didn't clear up when I went on the diet, but once I started getting allergy shots it disappeared. So I'm not sure if my sinusitis was associated with my celiac disease, but I have definitely heard of a correlation between the two.

-Brian

dlp252 Apprentice
Ami,

I did read of others having chronic sinusitis associated with celiac disease/gluten intolerance. I had chronic sinusitis for a very long time. It didn't clear up when I went on the diet, but once I started getting allergy shots it disappeared. So I'm not sure if my sinusitis was associated with my celiac disease, but I have definitely heard of a correlation between the two.

And, I am just the opposite, lol. Allergy shots didn't help mine at all even after 3 years, but as soon as I went gluten and casein free they went away. I have a sinus infection now, but this is the first one in 1 full year since going gluten/casein free and I think the reason I got this one was because I was very run down and ate some things I shouldn't have (not gluten or casein however).

missy'smom Collaborator

You didn't mention how you treat the infections. I hope you don't mind some unsolicited adice on how to. I used to get them all the time and the doctors kept giving me all sorts of antibiotics that really didn't agree with me. I tried going to an ear/nose throat specialist and that didn't help either. This all was pre-gluten free. I read about rinsing the nasal passages in Dr. Weil's book and rarely ever have to go in for meds. I know of many others who have had very good results with this too. Some allergy sufferers do this everyday but I do it when I start to feel one coming on or when allergy season is at it's worst. You take a 1/4 tsp. of regular salt and dissolve it in a cup of warm water, some add baking soda but I'm not sure of the amount. Some use a netti pot, others a contraption puchased at a pharmacy. I use a tea cup and plug one nostril while fully submerging the other. Then suck the water up. It will come out through your mouth. I've found this most effective right away after I wake up in the morning because that's when all the congestion is right there. It feels a little strange at first but doesn't hurt. It helps clear out the gunk as well as reduce the swelling. This time you may want to check with dr. before you try it just because of the ear infection.

Of course I don't know how this would correlate to gluten. I suspect mine are from dust, mold, pollen etc. Who knows. I just know this works.

sunshinen Apprentice

Allergy shots, regular nasal flushes, ENT, etc... None of it helped. I still had chronic sinus infections (literally 7 times a year) for about 3 years. I have not had one since going gluten free. It was a sudden and 100 percent turn around when I started the diet.

(I do still use a neti pot on a regular basis, because I have always had severe airborne allergies. And if you do a nasal rinse, I HIGHLY recommend a neti pot. I absolutely hated rinsing my nose with any other method, but the neti pot makes it easy.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ArtGirl Enthusiast

I highly recommend the nasel wash. I know of others who eliminated sinus infections just by doing this - and have read from several here on this board who after going gluten-free never had another sinus infection (as have those who have posted in this thread).

I want to add one more thing. My husband had a lot of trouble with a stuffy head and sneezing (not chronic infections, though) - and thought it was hay fever. When he found out he was sensitive to milk products and eliminated this from his diet, the "hay fever" went away. The stuffy sinusus always return when he accidentally eats butter or whey.

TygerCubs Rookie

I went gluten free about 2 weeks ago and the sinus pain I had been having for months went way within 3 days! I also found I could breath really clearly through my nose. I actually had surgery on my nose once o correct the deviated septum so I could breath but it never made mch of a difference and now it is all clear as though it was swollen and now is not.

Marie

SillyBoo Newbie

I had sinus problems for almost 10 years prior to being diagnosed in October. For 4-5 months prior to my diagnosis, I mostly stopped eating wheat because I discovered that avoiding wheat allowed me to stop taking Claritin. I think this is one of the clues that prompted my Dr. to test for Celiac when I was suffering from chronic fatigue. Since going gluten free in October, my sinuses are slowly getting better. I do think there is quite a connection for me between my sinus problems and Celiac.

ami27 Apprentice

Thanks for all the replies and advice. This time I am taking a round of antibiotics which I really dislike doing. But, I also have a netti pot which I will find and start using again. I used to use this, but without much luck. Maybe now that I'm gluten free it will be more helpful. I really think gluten has been what has caused me so many issues for so long. I really appreciate all of you here. I've learned a lot just from reading your wisdom and experiences over the past month or so.

Ami

dlp252 Apprentice

Ami - you're welcome...I didn't have much luck with the nasal rinsing either. I tried it for several months, but the sinus infections kept coming every six weeks or so. Talk about hating antibiotics, I was on them for nearly 3 years...every six weeks for 10 days or so. I'd get over the infection and have one maybe two good weeks, then I'd get another one.

The only time in the 3 years prior to going gluten/casein free that I was relatively healthy for any length of time was when I did a very strict low carb diet, with no processed foods--just fruits, veggies and meats, and which naturally didn't contain gluten--that time was about 3 months free of infections, and the infections came back when I started eating the low carb processed stuff which contains gluten. The second time was when my doctor had me do a low carb, rotation diet, which had no gluten--that time I did the diet for 6 months and didn't have any infections during that time.

In fact, at the end of that six months I went on a cruise and on the cruise (last few days) I started taking some bites of gluten stuff that wasn't on my diet, by the time I got home I was having full pieces of whole wheat toast, and guess what, I got REALLY sick with a horrible sinus infection. That incident is what lead me to discovering the gluten/casein connection for me and as I said above, it had been a whole year that I'd been sinus infection free, lol.

Looking for answers Contributor

I'm gluten intolerant and do not have Celiac Disease, but suffered with sinus infections and chronic bronchitis before going gluten free. Since making the switch, I'm proud to report that I haven't had one cold, sinus infection, etc. For just this reason, I highly recommend that you adhere to a gluten free diet--I'm amazed how much stronger my immune system is now. :rolleyes:

jeaninedc Newbie
Allergy shots, regular nasal flushes, ENT, etc... None of it helped. I still had chronic sinus infections (literally 7 times a year) for about 3 years. I have not had one since going gluten free. It was a sudden and 100 percent turn around when I started the diet.

(I do still use a neti pot on a regular basis, because I have always had severe airborne allergies. And if you do a nasal rinse, I HIGHLY recommend a neti pot. I absolutely hated rinsing my nose with any other method, but the neti pot makes it easy.)

Same here! My MAIN symptom was sinus infections. I finally had a full allergy checkup after about 2 years of getting at least one sinus infection every 4-8 weeks (and having to take antibiotics to clear them each time). The result came back as slightly allergic to wheat so I went on a gluten free diet. Today I have the first infection in 1.5 years (since I started the diet) and it's because I had a bit of gluten on about 4 different occasions last month. I have now learned my lesson.

BTW, I do the salt water rinse every night since I am allergic to several things and it helps. But if I don't eat gluten, colds don't become infections, if I do no matter what I do the only way to clear them is with antibiotics.

Hope this helps.

Generic Apprentice

Most likely what you are experienceing is from a weakened immune system. For instance when you get a cold you get alot of snot in your sinuses, etc. That is an open invitation for bacteria to have a hay day and cause an infection.

Your immune system is weakened due to the continual attacks on your body and it is hard for it to fight viral and bacterial infections. Going gluten free, your body is not fighting the attacks and your immune system is able to rebuild itself. Therefore it is more able to resist infections and viral attacks.

I myself have suffered from chronic sinus infections after going gluten free. gluten-free since 1988. I have been fighting an infection in the roots of my tooth/sinus. I had surgery 2 days ago to clean out the upper root part. Come to find out my root had grown really far into my sinus.

He had to drill into my jaw bone to get to the infection. When he sprayed water on the incision in my gum, water would go up my nose into my sinus cavity and down the back of my throat. Yuck! I hope it clears it up. I have to go see an ear/nose/throat specialist now.

-Laurie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    2. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

    5. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.