Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heat Intolerance Anyone?


outOfThisWorld

Recommended Posts

outOfThisWorld Newbie

Now I really struggle in heat, and since it is summer here in australia I feel some what limited in what I can do. When I get into a hot car I flush, sweat and feel extremely uncomfortable due to the heat. Basically I am intolerant to heat. I can walk around in winter in shorts and tshirts and often dont feel cold.

I understand that heat intolerance can be associated with thyroid problems, but I was wondering if anyone has experienced this from celiac, and if gluten-free helped to reduce/eliminate problem?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kaycee Collaborator

I don't have this problem. I did when I was a bit more overweight. Would that be a possibility?

I know Australia is hotter than here in New Zealand so it could be the heat and when I plan my holidays over there I try not to do it inthe summer.

As for summer we have not got it yet here in Northland. It is warmish, but that is about all.

I notice now, and probably because of my age I get flushes and then I feel the cold more.

Cathy

outOfThisWorld Newbie

Lets just say I am definetely not overweight. In fact I am very skinny and struggle to put on weight. Thats why I am struggling to understand it. I sweat a lot, get flushed and very hot easily; yet I am skinny and get told I look fit. Its very frustrating since I can't get my head around it and I have been like this for many years.

I don't have this problem. I did when I was a bit more overweight. Would that be a possibility?

I know Australia is hotter than here in New Zealand so it could be the heat and when I plan my holidays over there I try not to do it inthe summer.

As for summer we have not got it yet here in Northland. It is warmish, but that is about all.

I notice now, and probably because of my age I get flushes and then I feel the cold more.

Cathy

ravenwoodglass Mentor

Yes I did, notice the past tense there. I also had problems with the cold. My internal thermostat seems to have finally regulated. I didn't have any problems with out 90 degree summer days like I used to and this winter I can keep my heat at 65 and feel comfy. It did take a long time to resolve, but then again it took a long time to heal with a lot of my gluten related problems, but healing has helped this issue.

CarlaB Enthusiast

I am thin and heat intolerant, but for me it's a symptom of Lyme Disease rather than my gluten intolerance.

Bacteria don't like heat (that's why you get a fever naturally), so could you have some kind of chronic bacterial infection?

I thought being cold was associated with thyroid, but maybe that's only when it's low.

RiceGuy Collaborator

I also have been intolerant to heat, and still am to some degree (pun intended). I would develop a severe migraine-type of headache, and be very dizzy, body trembling, turn white, and feeling about to faint at any moment. If it got bad enough I'd puke too. This would begin at around 75F if I was sitting still in the shade. Any physical activity required a lower temp to avoid getting ill.

After being gluten-free, this has lessened a bit I think, though I haven't had to put it to any real test yet, thank goodness.

Electra Enthusiast

NOPE I'm the opposite. I am cold all the time!! I used to have hot flashes before I found out I had Celiac and went Glutan Free, but haven't had any in a while. I'm FREEZING most of the time and LOVE the heat!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Donna F Enthusiast

I've been heat intolerant too, although I believe I am better since being gluten-free. Weak, dizzy, headache, etc... I try to spend as much time as possible indoors in the summer.

I always attributed it to my hypoglycemia. The heat tends to make my sugar drop very quickly, thus the symptoms which, for me, are hypoglycemia symptoms. This same thing happens if I exert myself. Even if I've eaten within a reasonable amount of time, if I exert myself I find my sugar dropping quickly as though I hadn't eaten at all.

outOfThisWorld Newbie

Its good to hear I am not the only one experiencing this, although I wouldn't wish it on anyone. Anyway I should get celiac bloodtest results in a couple of days. As I see it I will be going gluten-free no matter what the results. I highly doubt I will get positive results so I will probably true going gluten-free for a short period of time and see what happens.

Generic Apprentice

All during the time before I was diagnosed at age 13, I was a radiator. I was extremely skinny. The last year before my diagnosis I looked like an ethiopian child. I was so warm that when my family went camping my parents and my sister would argue over who I would sleep with. (to keep them warm) LOL

I too, would get very sweaty, dizzy and about 95% of the time i woud throw up. I have been gluten free for about 19 years now and I tend to be cold more so than hot. It took about 5 or 6 years for it to go away, but it sure didn't happen quite as often. Maybe once a year in the summer.

On rare occassion I will get that over heating feeling, but I think it has been when I have gotten a mild glutening and I am unaware of it otherwise. I now love the warm summers. On a side note I do know when I have been glutened that I tend to be alot warmer (I can't tell). Boyfriends, etc. have mentioned it to me in the past.

FYI if I'm not making any sense i'm on percocet from surgery so forgive me. I'm a little loopy. LOL

Laurie

Viola 1 Rookie

I also have trouble with heat. Much rather have the cold, you can at least dress for that. If my friends and family want to golf with me they have to go out very early in the morning. :lol: And we live in Canada.

lorka150 Collaborator

Heat intolerance is actually a very common symptom of MS. The doctors joke is that the 'real' diagnosis is to see if they can stand up after you plunk 'em in a hot tub.

outOfThisWorld Newbie

Got my Celiac bloodtest results back today and everything is normal. Now I just have to figure out which path to take.

Heat intolerance is actually a very common symptom of MS. The doctors joke is that the 'real' diagnosis is to see if they can stand up after you plunk 'em in a hot tub.
  • 1 year later...
SacGFGirl Explorer

I've been sensitive to heat and humidity since I can remember. The heat makes me really tired, unproductive, gives me horribble headaches and makes me cranky. I've been gluten free for almost 4 years, but in the summertime I have to wake up really early to get things done because all I can do is nap in the afternoon. Is heat sensitive a symptom of celiac disease? What about fainting? That happens sometimes too but it sometimes is linked to heat and other times I'm not sure. Does anyone have any suggestions or answers? Thanks

sandpiper Apprentice
Got my Celiac bloodtest results back today and everything is normal. Now I just have to figure out which path to take.

Just a quick thought about your symptoms and your recent tests that are back. Have you had your thyroid panel done recently? If so, did the doctor run more than just the normal TSH? Running your free T4 and free T3 is a better test to check, as these tests will start to be a more accurate judge of how and what your thyroid is doing. Also getting a ultra sound of the gland. I don't know if you mentioned your age, but alot of woman more than men will have a thyroid issue after fifty, or having given childern.

I was dx with graves disease way too late and suffered with it for years. Heat intolerance and sweating racing heart, fatigue, mood swings, and alot of other "fun" symptoms can go along with this disease. I went gluten-free about seven years ago and decided to challenge it back in my diet to be tested, I could only take this challenge for two weeks as I felt the results too much. If your tests have come back negative, as many will probably state here and agree if eating gluten free does make you feel better then that could be an answer enough for you.

Hope that you can get some answers soon and feel better.

Best to you,

Susie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

    2. - Midwesteaglesfan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

    3. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,268
    • Most Online (within 30 mins)
      7,748

    Kristine Ryder
    Newest Member
    Kristine Ryder
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Borky
      I just recently saw something on this.  Has anyone tried test strips?  Which brand is better?  Not sure how they really work and if they really do work.  Thank you, Nancy (aka Borky)
    • Wheatwacked
    • Wheatwacked
      Hello @Midwesteaglesfan and welcome. A result greater than 10 U/mL is considered positive. Some labs use 15 as the cutoff, but 34 is in the positive.  The endoscopy and biopsy is looking for damage to your small intestine.  I don't don't think 5 days is enough to repair the damage. This comment is effectly your answer, regardless of your biopsy results.  The endoscopy has been the Gold Standard diagnostic, and most healthcare providers won't diagnose celiac disease until your intestinal lining Marsh Score reaches stage 3. You don't really want to wait for the damage to get worse, especially since only five days mostly gluten free gave you relief.  Yes, migranes is one of the 200 symptoms that may be caused by Celiac Disease. Malabsorption Syndrome is often comorbid with celiac disease.  The western diet is deficient in many vitamins and minerals.  That's why gluten processed foods are fortified.  Gluten free processed foods are not; Vitamin D deficiency is a virtual given.  40 to 60% of the industrial population is deficient in vitamin D, Damage to the intestinal lining from celiac disease can decrease the number of vitamin D receptors.  So now you get no vitamin D from the sun (skin cancer scare) the major source of vitamin D, plus absorbtion from food is poor because of intestinal damage.   Low iodine intake is getting more of a concern because the major source of iodine used to be bread (dough conditioner with iodine was stopped in the US in the 1970s), dairy (lactose intolerance from eating quick pickles with vinegar instead of fermented pickles which supply lactase excreting lactobacillus to improve Lactose intolerance. Commercial Dairies have wheat, barley and rye added to the cow feed. Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein causing the problem.  And people use less iodized salt.  In the US intake of iodine dropped 50% from 1970 to 1984. Switch to Grass fed only milk and consider supplementing Liquid Iodine drops to your diet.  The omega 6 to omega 3 ratio of commercial milk is 5:1; Organic milk is 3:1 and grass fed milk is 1:1. The typical western diet is around 14:1, optimum for humans is 1:1.  Wheat flour is 22:1 omega 6:3.  Choose vegetables lower in omega 6, it is inflammatory. Eat fermented foods and switch to Grass fed only milk.  Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein.   
    • Midwesteaglesfan
      At 41 years old I have been fighting fatigue and joint pain for a couple months.  My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right.  Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist.  He was extremely thorough and sat with me and my family for a good hour asking questions and listening. He ordered X-rays of all my joints and more bloodwork.  He suspected some sort of reactive inflammatory arthritis.  My TTG (Tissue Transglutaminase) came back at 34. he told me to try going gluten free and out me on Salfasalzin to help the join inflammation.  Over the next couple days going gluten free and doing a lot of research and talking to people with celiacs,  we found that I should have an upper endoscopy for insurance purposes in the future.  I reached back out to my rheumatologist and expressed this concern and he got back to me stating I was correct and resume regular gluten diet and stop the medication until after that scope.     They were able to schedule me in for 2 days later.  I had been gluten free, or as close to it as I could be for about 5 days.  I know I ate some brats with it but wanted to use them up.  My symptoms had gotten slightly better in those 5 days.  I felt less fatigue and joint pain was slightly better(it had gotten really bad) so for these last 2 days I’ve gone crazy with wheat bread, pasta and such.  I’m hoping those 5 days didn’t screw this endoscopy up.  I can’t imagine after a life of gluten, my intestines healed in 5 days and after eating gluten again for these couple days,  my stomach hurts, joint pain is coming back up so I know the inflammation is there.   Hinesight after this diagnosis, I have had chronic migraines since my late teens.  Has that been a lingering symptom of celiacs all these years?  I’ve never really had the stomach issues, for me it came in heavy these last couple months as the fatigue, just always feeling tired and exhausted.  And the joint pain.     So getting in the car for the 2 hour drive to the hospital for this scope now.     Wish me luck!
    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.