Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eating A Cracker On Purpose


floridanative

Recommended Posts

floridanative Community Regular

I've been gluten free for almost a year now and my Mother was dx'd (due to my dx) about 10 months ago. She is not careful when dining out (tries to be but her personality gets int he way) so she occaisionally gets glutened and doesn't enjoy it when it happens. I've accepted the fact that she is not as careful as she needs to be since it's her life. I know when she gets cc'd after eating out some times, she does not feel well for a day or two after. She also does not enjoy feeling badly - gets typical reaction that I luckily was never afflicted with. Bloating or a stomach ache is the worst is gets for me now which happens rarely anyway. She was at the point before her dx of being careful to know where every bathroom in town was. So today she tells me she decided to do a little gluten challenge yesterday, her b-day. The grandkids were having saltine crackers which she loves and misses so she had one. Needless to explain what followed but how ridiculous is that?! She is not a dumb person, at least I didn't think so but having a cracker to see what will happen when you really know what will happen is embarrassingly stupid. When she told me about it she was complaining that one little cracker made her sick. Duh!!!!!!!!! You have Celiac disease. I made an excuse to get off the phone. I don't feel right scolding my own Mother but I had to vent so I figured I'd bore you guys with my rant. Thanks if you had time to read. Oh and happy 2007!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hez Enthusiast

That made me laugh! The idea of scolding ones mother. My guess is she still had some denial going on, maybe. At least now she will not miss saltines so much after gettig sick!

Hez

Kaycee Collaborator

I'll go along with the denial theory, or the I just want to see what happens, but then it could be addiction and obssession.

After being symptom free for a while, I did something stupid and ate gluten. I don't know why, but the thought of this food had been nagging at me for weeks, and I did not think the craving would stop until I ate it, I never stopped to think I might want some more later on another time. Is that obsession or addiction? Probably obssession. But they are both hard things to fight with.

I must admit the food did not taste like I remembered it and it made me sick, maybe not straight away, but for a good week anyway, and guess what, I will never eat another licorice allsort in my life. And they were my favourite sweet. I do wonder if I did not give in, would I still be hankering after them?

So don't be too hard on your mum, times are tough, and being gluten free is a whole new ball game, and new skills are needed to cope. Some find it easier to adjust than others. But I imagine she has learnt her lesson and will not eat another saltine cracker again.

You are lucky you have someone in your immediate family to share all the pitfalls of gluten with, hang in there and support each other, you might not always agree with what your mum does, but you both need each other for support. Think of all of us out here, me included, whom coeliac has just struck us out of the blue, and nobody else in my family wants to know about the disease, or understands. My mother in her late 70'sI believe has it, but won't do anything about it, and I don't think dad would let her. There is nothing I can do, as she is an adult and responsible for her own choices.

A work colleague a few months back, who is not gluten intolerant thought a 5 year old was luckier than me for being diagnosed early, as she would not know what the food she is missing would taste like, but I thought I was lucky because I did know what it tasted like. I am not sure now, but I would've been better of to have just remembered what it tasted like than to eat and find it tasted different. Who knows. But one cheat, (which I find is a hard work to digest, as I can't even cheat doing crosswords) in a year is not too bad.

Happy New Year

Cathy

floridanative Community Regular

Thanks for the thoughts on why someone would do such a thing. I guess I really have had it much easier that Mother since having to go gluten free. In Dr. Green's book he says there are two kinds of people in the world (he did not coin this phrase) - those who live to eat and those who eat to live. Mother is the former and I'm the latter. I'm sure that makes a big difference in how we each dealt with having to go off gluten. Food is an emotional crutch for her which I can't understand, but I know that's her reality. Okay I feel much better now so I'm off to make my gluten free lasagne and I'm having a Redbridge beer to go with it. This is a good day after all!

sspitzer5 Apprentice

I think I can understand doing something like your mom did, although I haven't done it because I don't want to be sick. Sometimes it's just really hard to come to terms with the fact that something you've eaten your entire life can make you so sick. Especially something as simple as a saltine!

S

mamabear Explorer

Gosh, how I understand ! I've been gluten free for nearly 4 years now(except for the occasional glutenings) and did have a few mishaps early on....like I literally forgot I had celiac!! and took a bite of a hamburger(to the horror of my family).Or when I ordered macaroni and cheese in front of a co-worker and was chompimg away before we both were shocked I had forgotten! The foods didn't taste the same , but somewhere in my head, I think I wonder sometimes if I might just do it anyway! When I get too busy at work and frustrated and tired, I think a "real" cookie would help! How lame is that? But I know how she felt.....or at least I have been sorely tempted. I guess I wish my GI had told me celiac was a possibility so I could have gone to IHOP or Perkins one more time!! On the positive side today, I FINALLY baked the Bob's Red Mill gluten-free bread all by myself! A friend who was a cook in another life was doing this on occasion for me, but I got some time and decided to try it for myself. I am delighted to say it looks like bread! Turns out I had been selecting gluten-free foods and condiments,etc.. fot years anyway.So, go easy on her......I'm the lone ranger in my family....so far. Not that I want any of them to have it, but I know there will be some. Gee......turned into a mini-digression!

Rusla Enthusiast

Being Celiac is like being an alcoholic. In a as much as with us a little bit of wheat will hurt us and so will a little bit of alcohol take a dry alcoholic back on the road of drunkeness. The difference isw we have to eat to live and an alcoholic does not need alcohol to live. We can and have learned to eat and live without wheat, that is what your mother needs to do. But then it is her perogative to suffer if she doen't think she has suffered enough.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Saz Explorer

sorry I double posted- Not sure how to completely delete my post tho.

Saz Explorer
A work colleague a few months back, who is not gluten intolerant thought a 5 year old was luckier than me for being diagnosed early, as she would not know what the food she is missing would taste like, but I thought I was lucky because I did know what it tasted like. I am not sure now, but I would've been better of to have just remembered what it tasted like than to eat and find it tasted different. Who knows. But one cheat, (which I find is a hard work to digest, as I can't even cheat doing crosswords) in a year is not too bad.

Happy New Year

Cathy

I agree with you- You are the lucky one. I was diagnosed at 5 and by this age you can still notice a different in taste even when you get older, You might not remember exactely what real food tastes like. Although I was very ocassionaly alowed a piece of Normal bread(and I mean very ocasionaly) When I was 15 I started to eat gluten food again because I wanted real food. This went on for about 4 years but I stoped majorly cheating in september last year however had still been having some chocolate and other things. On Thursday night I ate the last piece of gluten in the form of chocolate. While gluten-free food isn't perfect it tastes great now compared to back in 90's! I have always wished that I had been dx as a baby, or very young because if I don't know what something tastes like I can't want it.

It sounds like your Mum is trying, I am sure she will get there eventually.

cathzozo Apprentice

My grandmother recently made a similar bad decision. She really wanted one of her husband's cookies, so had one. And then really regretted it. She's only been gluten-free for about 6 mos. I think so this was the first holiday season. My mom will be visiting her next week, and will be making her a bunch of gluten-free cookies to stick in the freezer so she can safely fulfill the desires of her sweet tooth. She's diabetic, so it's still cheating for that diagnosis/diet, but at least not bringing back her IBS such that she can't leave the house for several days!

I think I can understand it, though. I've had no problem replacing my sweets. I think the gluten-free sweets are pretty good, and I've found that I do a decent job of making them, but I LOVE breakfast tacos. And almost every morning, I have to consciously talk myself out of going for breakfast tacos at my favorite place -- because not only is there a pretty high chance of CC, it's also not good on my checkbook to go out for breakfast every morning. :) I don't know what part of breakfast tacos is so addictive, but it really is tough for me to say no to that!

ravenwoodglass Mentor

I don't have too much to add other than I can sympathize a bit with her. Pre gluten free I would make a snack of saltines and butter and ate them with everything. Those and the little oyster crackers, sigh. I did find a really good gluten free saltine though it took a while. Ener-g makes them, we ordered them by the case till I told our local health food store about them. Perhaps she might want to give them a try.

floridanative Community Regular

Veru interesting posts - thanks everyone.

ravenwoodglass - I gave her the Ener-G crackers and she does like them best for a gluten-free cracker. Still she says it's no Saltine and of course she's right. I guess I just don't miss anything as I've found more food than I ever knew existed that I love. One thing is for sure, if I was ever tempted to cheat -it would be with a hot Krispy Kreme doughnut - not something as boring as a Saltine.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,561
    • Most Online (within 30 mins)
      7,748

    Valentino
    Newest Member
    Valentino
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
    • knitty kitty
      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.