Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ever Have Problems With Gluten Free Grains?


Yenni

Recommended Posts

Yenni Enthusiast

I seem to have a problem with rice and quinoa if I eat more than a cup of them a day. maybe a little less than that. Seems if I just take a little of them I am fine, but if I do a bit more I get a lof of gas and feel naseous.

Does anyone esle have this problem?

I think I read somehwre that the body can have problems with grains in general for a while. Not sure if that is true or not. Or if it will go away or..what.

Would be interesting to hear if others have experinced this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I am intolerant to lectins. That includes ALL grains, including rice and corn. Especially rice will cause symptoms very similar to when I eat gluten (which I don't, of course). I thought that I would outgrow some of those intolerances, but so far I haven't.

darlindeb25 Collaborator

Me too, I can't tolerate grains. I can however eat 2 ricecakes a day without trouble.

Heather22 Rookie

I am in the same boat. I don't get radical symptoms, but I always feel better when I avoid all gluten-free grains. However, I can also tolerate ~2 rice cakes a day or a handful or two of gluten-free rice krispies.

If interested, do some reading on the Paleo diet (no grains, no dairy, no soy).

PS. Ursa Major, your granddaughter is beautiful!

jerseyangel Proficient

I also cannot tolerate most grains. I was off all of them for about 6 months, and have found that I can now have about a serving of rice no more than once a week.

RiceGuy Collaborator

In looking up grains, I've found that two in particular are very easy to digest. These are millet and buckwheat. I like the roasted buckwheat, which is usually called Kasha. It tastes great, makes a wonderful hot cereal, or a replacement for rice, etc. I don't know what sort of rice you have been using, but there are many many varieties, so I'd also suggest trying a few different ones. The difference between short and long grain rices is quite large.

I'm sure there are other gluten-free grains which are also easy to digest. Google will help you locate them I'm sure.

Ursa Major Collaborator

RiceGuy, buckwheat is not a grain, but a seed (buckwheat belongs to the same family as rhubarb).

I find that I can't tolerate dark buckwheat, but light buckwheat is okay once in a while. I love cream of buckwheat from Bob's Red Mill once in a while for breakfast. I cook it with some ground hazelnuts added, and put a cut up apple or pear in. Delicious.

When I 'need' a treat, I bake some cookies or my 'special' pear crisp with a mixture of light buckwheat, ground almonds and ground hazelnuts. Of course, it won't rise, so I can only use it for cookies and crumbs. Still, it's nice to be able to have that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Felidae Enthusiast

Quinoa is high in fibre, so you may just have to have small amounts until your body gets used to it. I found I had a hard time in the beginning with all the new grains. It may have been I was trying too many or consuming too much. Mind you, I never had a problem with rice.

Yenni Enthusiast

I can eat rice cakes with no problems. The ones I get are brown rice ones. I also eat A LOT of Enjoy Life Very Berry Bars with no problems at all. This also has brown rice in it.

I have problems with Lundbergs white Jasmine Rice and regular Quinoa. If i just have a bit of it it seems to be okay, but if I eat like a regular serving of it I get naseaus the morning after and get a lot of gas (and stomach ache from the gas) especially from the Quinoa.

It doesn't leave me sick feeling as Casein, Gluten and Legumes. It just seems my stomach can't handle it, maybe it is fiber..I dunno.

Seems brown rice is easier on me so I should just get rid of the white rice and get brown instead. But I haven't had all that much regular brown rice so I am not sure what will happen yet. I am gonna try.

If I eat creme of rice (Bob's Mill) or Quinoa hot cereal I feel really bad usually. Ick! For some reason that is worse.

I eat mostly fish, chicken, turkey and ham (on sandwish) and then veggetables and fruit.

My problem is that I am allergic to nuts, almonds, apple, cherry, plums, peach, pears.

I am a little iffy with allergies when it comes to kiwi and strawberries.

So that leaves me with bananas, raspberry and the different melons to eat. I must confess I am scared of trying exotic fruits because of allergies. (And I am scared of trying new stuff when it comes to food in general because I have been sick so long and I seem to react strong to my intolerances when I get them in my system.)

I also get a lot of stomach ache from brussel sprouts and avocado.

I feel trapped. If I sit and think of this too much I get almost a panicky feeling so I try to just think "here and now".

I have been thinking I should maybe look into getting allergy shots for the nuts and fruits so I can eat more stuff. Not sure how that all works. IF it works.

I also seem to have troubles eating Vitamins. I posted about that in another thread. They are free from the stuff I can't have (Kirkman Labs) but they make me so, so hungry. I feel I have to eat all day when I eat them. I am like good for one hour and then I need to eat again and my blood sugar goes down so much I shake and feel crappy. As soon as I stop with the vitamins this stopps. Really weird. I have had a couple of different Vitamns and they have all been this way so far.

I do take Calsium with no problems.

Food is my enemy. On the good side of things I have finally started to feel better, so I feel I am on the right track with my celiac/gluten intolerance.

I should look into Bob's Mills Buckwheat next time I go to the store.

Felidae Enthusiast
If I eat creme of rice (Bob's Mill) or Quinoa hot cereal I feel really bad usually. Ick! For some reason that is worse.

This is my personal opinion, but I have had problems with Bob's Red Mill products. Maybe you could try another brand just in case.

Also, it takes time for your body to heal. I got sick off and on in the beginning and it took about eight months before I felt great. Try to find something that makes you feel good and then only introduce the new grains slowly and in small portions. It will get easier and I hope you start to feel better.

Felidae Enthusiast
I eat mostly fish, chicken, turkey and ham (on sandwish) and then veggetables and fruit.

My problem is that I am allergic to nuts, almonds, apple, cherry, plums, peach, pears.

I am a little iffy with allergies when it comes to kiwi and strawberries.

So that leaves me with bananas, raspberry and the different melons to eat. I must confess I am scared of trying exotic fruits because of allergies. (And I am scared of trying new stuff when it comes to food in general because I have been sick so long and I seem to react strong to my intolerances when I get them in my system.)

I also get a lot of stomach ache from brussel sprouts and avocado.

If you can eat dairy, you could make yogurt smoothies with bananas, raspberries and some fruit juice.

It is a little bit like trial and error in the beginning since your system is healing. Give it time and maybe in the future you will be able to reintroduce new items.

RiceGuy Collaborator
RiceGuy, buckwheat is not a grain, but a seed (buckwheat belongs to the same family as rhubarb).

Yeah, I know. It's just easier than having to explain that ever time I mention buckwheat. Then when someone asks about a grain, it's as if I'm not supplying relevant information. It works as a grain in meals and as a flour, and has a nutritional profile like a grain, so I just let it go at that. But thanks for clarifying anyway. For those who didn't know, it's good info. Especially if one happens to be allergic to rhubarb.

I find that I can't tolerate dark buckwheat, but light buckwheat is okay once in a while.

Ever try the Kasha? Perhaps the roasting of it makes it acceptable to your system. I don't know which type is normally used, or if there is ever a distinction made, but the stuff I get looks sorta medium-brown to me. I'm sure if you see it you'll have a better idea which type they used. I've had both the whole and the ground Kasha. Both cook up to have a pleasingly smooth, creamy texture, and taste great (at least to me :) ).

RiceGuy Collaborator
I can eat rice cakes with no problems. The ones I get are brown rice ones. I also eat A LOT of Enjoy Life Very Berry Bars with no problems at all. This also has brown rice in it.

I have problems with Lundbergs white Jasmine Rice and regular Quinoa. If i just have a bit of it it seems to be okay, but if I eat like a regular serving of it I get naseaus the morning after and get a lot of gas (and stomach ache from the gas) especially from the Quinoa.

It doesn't leave me sick feeling as Casein, Gluten and Legumes. It just seems my stomach can't handle it, maybe it is fiber..I dunno.

Seems brown rice is easier on me so I should just get rid of the white rice and get brown instead. But I haven't had all that much regular brown rice so I am not sure what will happen yet. I am gonna try.

If white rices give you problems that brown doesn't, then to me it sounds like maybe the lack of fiber, or the high starch-to-fiber ratio might be setting things off balance for your digestive system.

Personally, I never liked "ordinary" long grain brown rice. It just turns my stomach such that I can't tolerate it. However, Lundberg's short grain brown (especially the sweet brown) is wonderfully yummy IMO. The texture is so nice - cooks up with a sort of creaminess to it, instead of being all dry and stuff. This also seems to make it less prone to sticking and burning, though I generally never have that happen with anything I make anyway.

Looking for answers Contributor

Quinoa is not technically a grain . . . which I just found out a week or so ago. Here's a quote from a Web site: "Though not technically a grain, quinoa can substitute for nearly any grain in cooking. Actually the seed of a leafy plant, quinoa

Budew Rookie

First of all Jenny great thread. We have more in common than you can imagine. I'll write you.

Second Rice guy thanks so much for the great info on buckwheat. I have buckwheat in my frig but have been a bit nervous about trying it but a hot breakfast with apples sure sounds tempting : )

Right now I am on the elimination system in an adding back phase. Jan is white potato month. So far so good and YUM! I am hoping the after 1.5 years off nightshades and a focus on healing I may be able to handle some of the foods I once eliminated. White potato is the beginning of adding back some nightshades.

But next month buckwheat sounds like a good choice. I also want to retest tapioca. I wonder if my reactions to tapioca were really rice.

I have been off all grains and legumes for several months now. I have tested grains one by one. Most give me migraines. I even suspect that the corn cellulose used to make tampons triggers migraines for me. No tampons no migraines this month. First time ever. If this holds true a couple more months I'll be convinced.

Maybe someone has the skinny on corn. I wonder why corn syrup doesn't seem to be a problem.

I also wonder about how corn on the cob compares to popcorn and cornmeal. If I should even consider trying them. Well I'm quite sure the cornmeal is out.

Also I wonder if rice is more easily accepted when it has been processed into a cake or a cripsy. I can't tolerate eating white or brown rice. And new grist beer is a sure headache.

Thanks guys!

Budew

diamondheart Newbie
Maybe someone has the skinny on corn. I wonder why corn syrup doesn't seem to be a problem.

Budew

I just found out I have an intolerance to corn syrup! Corn syrup is really bad stuff - highly processed. It's bad for colitis and IBS. It's written about in this book: "The Self-Help Way to Treat Colitis and Other IBS Conditions" by De Lamar Gibbons, M.D. Not everything in this book seems accurrate to me, but my doctor thinks this guy is on to something with the corn syrup.

Other problems with corn is that it's highly genetically modified. Even if you buy the stuff that says non-GMO corn, how can you really be sure if the company you buy it from doesn't test? No one knows what impact GMO grains have on our bodies. I guess corn also has a lot of mold that people react to.

Quinoa has a soapy layer on the outside that needs to be soaked off. A lot of people react to the sapinoids in quinoa, including me. So, I just don't bother with it.

There are some good cookbooks that talk about soaking grains to make them more digestible. "Nourishing Traditions" and "The Garden of Eating" are the two that I know of.

Claire

Budew Rookie

Thanks for the sources. I'll check them out. Budew

Yenni Enthusiast

Yes, I know qUinoa and buckwheat technically are seeds, but oh well. ;)

If white rices give you problems that brown doesn't, then to me it sounds like maybe the lack of fiber, or the high starch-to-fiber ratio might be setting things off balance for your digestive system.

Personally, I never liked "ordinary" long grain brown rice. It just turns my stomach such that I can't tolerate it. However, Lundberg's short grain brown (especially the sweet brown) is wonderfully yummy IMO. The texture is so nice - cooks up with a sort of creaminess to it, instead of being all dry and stuff. This also seems to make it less prone to sticking and burning, though I generally never have that happen with anything I make anyway.

I am gonna check that Lundbergs short brown rice you mentioned. Thanks!

Yenni Enthusiast
I just found out I have an intolerance to corn syrup! Corn syrup is really bad stuff - highly processed. It's bad for colitis and IBS. It's written about in this book: "The Self-Help Way to Treat Colitis and Other IBS Conditions" by De Lamar Gibbons, M.D. Not everything in this book seems accurrate to me, but my doctor thinks this guy is on to something with the corn syrup.

Other problems with corn is that it's highly genetically modified. Even if you buy the stuff that says non-GMO corn, how can you really be sure if the company you buy it from doesn't test? No one knows what impact GMO grains have on our bodies. I guess corn also has a lot of mold that people react to.

Quinoa has a soapy layer on the outside that needs to be soaked off. A lot of people react to the sapinoids in quinoa, including me. So, I just don't bother with it.

There are some good cookbooks that talk about soaking grains to make them more digestible. "Nourishing Traditions" and "The Garden of Eating" are the two that I know of.

Claire

Had no idea Quinoa have a layer on it. Thanks for that info.

Those two books are on my list to get.

Yenni Enthusiast
If you can eat dairy, you could make yogurt smoothies with bananas, raspberries and some fruit juice.

It is a little bit like trial and error in the beginning since your system is healing. Give it time and maybe in the future you will be able to reintroduce new items.

Unfortunately I can't have any Casein/Dairy.

I am starting to feel I can't eat much these days. I have a lot of allergies to a bunch of fruits and nuts too.

Yenni Enthusiast
First of all Jenny great thread. We have more in common than you can imagine. I'll write you.

Second Rice guy thanks so much for the great info on buckwheat. I have buckwheat in my frig but have been a bit nervous about trying it but a hot breakfast with apples sure sounds tempting : )

Right now I am on the elimination system in an adding back phase. Jan is white potato month. So far so good and YUM! I am hoping the after 1.5 years off nightshades and a focus on healing I may be able to handle some of the foods I once eliminated. White potato is the beginning of adding back some nightshades.

But next month buckwheat sounds like a good choice. I also want to retest tapioca. I wonder if my reactions to tapioca were really rice.

I have been off all grains and legumes for several months now. I have tested grains one by one. Most give me migraines. I even suspect that the corn cellulose used to make tampons triggers migraines for me. No tampons no migraines this month. First time ever. If this holds true a couple more months I'll be convinced.

Maybe someone has the skinny on corn. I wonder why corn syrup doesn't seem to be a problem.

I also wonder about how corn on the cob compares to popcorn and cornmeal. If I should even consider trying them. Well I'm quite sure the cornmeal is out.

Also I wonder if rice is more easily accepted when it has been processed into a cake or a cripsy. I can't tolerate eating white or brown rice. And new grist beer is a sure headache.

Thanks guys!

Budew

I got your PM the other day. I haven't been online much at all so I haven't answered it yet, but I will. ;)

Yenni Enthusiast
Quinoa is not technically a grain . . . which I just found out a week or so ago. Here's a quote from a Web site: "Though not technically a grain, quinoa can substitute for nearly any grain in cooking. Actually the seed of a leafy plant, quinoa
Felidae Enthusiast

Some quinoa that you buy has the soapy layer washed off. Ancient Harvest brand is washed and the flakes are great as an oatmeal replacer in cookies.

Yenni Enthusiast
Some quinoa that you buy has the soapy layer washed off. Ancient Harvest brand is washed and the flakes are great as an oatmeal replacer in cookies.

Thanks! I'll remember that brand.

Yenni Enthusiast

I thought it would be nice to mention that now when I have looked at the Dr Fine seminar (via DVD) it was mentioned by one of the doctors that there is no buckwheat produced in the US that is safe from cross contamination from Gliadin. There were some other issues with other grains and seed (incl. Quinoa) with another protein...

He said rice was fine though.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

    2. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

    3. - Seabeemee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

    4. - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      EMA Result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,165
    • Most Online (within 30 mins)
      7,748

    AmynDevyn
    Newest Member
    AmynDevyn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
    • trents
      Welcome to the celiac.com community, @Seabeemee! The fact that the genetic testing shows you do not have either of the two genes associated with the potential to develop celiac disease (HlA DQ2 and HLA DQ8) pretty much ensures that you do not have celiac disease and the biopsy of the small bowel showing "normal villous architecture" confirms this. But you could have NCGS (Non Celiac Gluten Sensitivity) which would not damage the villous architecture. You could also have SIBO (Small Intestine Bacterial Overgrowth) or H. Pylori infection. Both of these conditions would thrive on carbs and you do say you feel better when you don't eat a lot of carbs. And with your resection of the small bowel, that could be causing it's own problems like you describe. When was that surgery done? You have had over 1 foot of your small bowel removed by that surgery in 2022 so that would certainly challenge digestion and nutrient absorption.  Edited
    • Seabeemee
      My Doctor messaged me that I have no sign of Celiac disease so until I meet with her next week I don’t know what the labs mean. I am being evaluated by my new GI for Celiac disease because of digestive issues (bloating, distention, fullness in mid section, diarrhea).  I also have been diagnosed with GERD and some associated issues hence the endoscopy. I also was diagnosed with NAFLD after an abdominal CT scan in December - which surprises me because I gave up alcohol 5 years ago, workout 5 days a week, cardio / weights and cook from scratch every night. Anecdotally,  I do feel better when I do not eat a lot of carbs and have been staying away from gluten 95% of the time until my follow up.  History: I had an emergency bowel obstruction operation in August 2021 for a double closed loop obstruction, open surgery removed 40 cm of my small intestine, my appendix, cecal valve and illeocectomy. Beside the fact that this put me in the situation of no longer being able to absorb Vitamin B12  from my diet and having to  inject Vit B 12 2x a month, I also became Iron deficient and am on EOD iron to keep my levels high enough to support my Vitamin B12 injections, as well as daily folic acid. I tested positive for pernicious anemia in 2022 but most recently that same test came back negative. Negative Intrinsic Factor. My results from the biopsies showed 2nd part of Duodenum, small bowel Mildly patch increased intraepithelial lymphocytes with intact villious architecture. Comment: Duodenal biopsies with normal villous architecture and increased intrepithelial lymphocytes (Marsh I lesion) are found in 1-3% of patients undergoing duodenal biopsy, and an association with celiac disease is well established however the specificity remains low. Similar histologic findings may be seen in H pylori gastritis, NSAID and other medication use including olmesartan, bacterial overgrowth, tropical sprue and certain autoimmune disorders. So my GI ordered Labs for Celiac confirmation: Sorry I couldn’t upload a photo or pdf so typed below: TEST NAME                               IN RANGE and/or RESULTS RESULTS:  IMMUNOGLOBULIN A :           110 GLIADIN (DEAMIDATED) AB (IGG, IGA)                            <1.0 GLIADIN (DEAMIDATED) AB (IGA)                                     <1.0 GLIADIN (DEAMIDATED) AB (IGG)                                    <1.0 TISSUE TRANSGLUTAMINASE ANTIBODY, IGG, IGA TISSUE TRANSGLUTAMINASE AB, IGG                                     <1.0 TISSUE TRANSGLUTAMINASE AB, IGA                                     <1.0 INTERPRETATION: <15.0 ANTIBODY NOT DETECTED  > OR = 15.0 ANTIBODY DETECTED RESULTS: HLA TYPING FOR CELIAC DISEASE INTERPRETATION (note The patient does not have the HLA-DQ associated with celiac disease variants) More than 97% of celiac patients carry either HLA-DQ2 (DQA1*05/DQB1*02) or HLA-DQ8 (DQA1*03/DQB1*0302) or both. Genetic counseling as needed. HLA DQ2 : NEGATIVE HLA D08: NEGATIVE HLA VARIANTS DETECTED: HLA DA1* : 01 HLA DA1* : 05 HLA DQB1*: 0301 HLA DQB1*: 0501 RESULTS REVIEWED BY: Benjamin A Hilton, Ph.D., FACMG I appreciate any input, thank you.         
    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.