Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Proper Welcome To Srokie!


Canadian Karen

Recommended Posts

DingoGirl Enthusiast

p.s again

what the hell are the star ratings anyway?

(I should not be posting whilst talking on teh phone - very fragmented :blink: )


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 128
  • Created
  • Last Reply
Canadian Karen Community Regular
Karen, Lisa doesn't need spell check: she has me. She went to a fancy, high rent high school in high rent McLean, Va. and I went to a small country school, with no indoor plumbing, in Podunk, Jerkwater Junction, NC. But we were taught to spell. To Lisa, animals live in a zooz, fish live in the see, you fly in a plain, ride in a kar, and she has a some problem with her innerds, known as seliak. Her elementary school teacher, that taught her to spel, must have been sniffing some good stuf!!!! bon soir, Jim

Gosh, you gotta love him or hate him. I'm debating this fact as we speak. <_<

He was invited by my request. No future post will come from this randon guy.

OMG! Jim makes his debut at celiac.com in one of MY threads!!! I am so honoured!!!! (Oops, don't want to confuse Lisa, I should say honored..... :P:lol:) HEY! That's what's wrong! She's conversing too much with us Canucks and it's getting her confused!!!

Hugs!

Karen

Rachel--24 Collaborator
You know, I may have had something to do with that (does "University of the Celiac Gluten-Free Cult Farm ring a bell? :ph34r: )

:lol::lol:

Who could forget about the cult farm!! :lol:

but I think you're being oversensitive about it.....it was and is fantastic and wonderful. We did totally veer off over the summer and went bonkers, may have offended a few, but it's been pretty much back on track (I haven't visited ina while, miss you guys!).....
We miss you too.....you should pop in and check out all the scientificness....dont know how much of it you could take though. :P Even I have to take a break sometimes. :blink:

but I"ll tell you something. Remember that deep depression I slipped into over the summer? during those few weeks, visiting and being wacky on that forum was almost the only time I laughed. It helped me SO much, I'll never forget it. :)

Yeah....I think it helped alot of us who were going through rough times. I'm glad to have met you and I'm really glad we all had so many laughs. :wub:

tarnalberry Community Regular
I would never consider "Rachelville" to be a clique. The OMG thread was/is a place where people who are struggling with ALOT of food issues...(or illness aside from just gluten intolerance)....kind of found each other and together we try to sort things out.

I dont recall how the title of Rachelville came to be but at some point the thread lost its focus and instead of centering around health issues alot of people just started chatting. I guess its to be expected in a long running thread with alot of people posting.....but peoples health issues werent the priority anymore and serious posts were getting lost in chit-chat.

(snip)

The thing I like about Rachelville is that it was/is a place for *anyone*....the people who ventured into the thread found some kind of "comfort zone" there....which I thought was pretty cool.

If people interpreted it as a "clique".....then I'd have to say that it was a misinterpretation or an assumption....possibly based on little red titles??

Whatever the reason....the last thing I want is to be "cliquey"....so I'll remove my title so as to not give anyone that misconception. :)

I agree that you have no need to apologize. It was a natural progression, and if the post hadn't resonated with so many people (and hence, been needed), it wouldn't have grown as it did.

And since we're pretty much all adults here, I don't think anyone intends a clique - not like high school. ;) I've certainly never gotten that impression, anyway. But they happen - some people gravitate towards others, and some... we have our own semi-private solar systems. :P But the perception... read back over the posts, and you'll find almost as many different perceptions as posts! And think of how many other perceptions are out there from the people not posting. :o

I can't think of any apologies that could even be asked for. Everyone is an important part of the board (just don't put me on the welcoming committee - it'll fail :lol: ). If we're aware of , maybe it'll help in getting more newbies involved, but we're building friendships, not just a support group, and there's value in that too! :)

Hmm... interesting addendum thought... One of the reasons this may be coming up is that we may have reached a 'critical mass', where it was hard to have distinct groupings that were quite so obvious and delinated. Since we've gotten big enough for that, it's happened (over the course of quite a number of months, of course), but it's a change from, say, a year and a half ago, and the change makes it more startling. Eh... I'm just thought-wandering now...

nmw Newbie
I guess if I was a newbie I would probaly think the same...."Who is this Rachel girl....and what the heck is Rachelville??"

Exactly.

Rachel--24 Collaborator
Everyone is an important part of the board (just don't put me on the welcoming committee - it'll fail :lol: ). If we're aware of , maybe it'll help in getting more newbies involved, but we're building friendships, not just a support group, and there's value in that too! :)

Yup...maybe this discussion was meant to come about and maybe positive things will come from it. :)

I agree.....the board has grown alot since I've been here.....which isnt nearly as long as you. Heck....you've probably seen the whole thing...from birth till now...from like 6 members to more than 12,000! :o

We do build friendships here though....and the board has been one of the best things to come into my life since I got sick....so yeah...alot of value in that! :)

DingoGirl Enthusiast
Yeah....I think it helped alot of us who were going through rough times. I'm glad to have met you and I'm really glad we all had so many laughs. :wub:

I am feeling all warm and fuzzy, just reading this thread! And remembering all the fun of that other crazy place. I have some pages bookmarked, from that zany time - - I made a teenager actually GO BACK and search for me, until she got there. ha ha, she didn't mind. But, I still haven't gone back to read it.....don't quite have the stamina. :huh:

Good points Tiffany. You are continually the voice of sagacity and reason here. :)

Must forage again - like a truffle pig - for food.

'night all.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
I have some pages bookmarked, from that zany time - - I made a teenager actually GO BACK and search for me, until she got there. ha ha, she didn't mind.

:lol::lol::lol:

That poor poor girl! You sent her "back" to the place where none of us dares to go..... :o

Thats hilarious.... :lol:

Must forage again - like a truffle pig - for food.

:lol::lol:

Night Susie Q :)

tiffjake Enthusiast
Hey, Tiffany..haven't seen you in so long..good to see you..about Mary Kay..said you quit selling. was it b/c it wasn't good for us celiac's..????

judy

Oh no, just got tired of selling someone elses dream! MOST of the products are ok for Celiacs, but that does not mean they are "good" products :lol: . I think you can find better, for cheaper!

Mtndog Collaborator
Karen, Lisa doesn't need spell check: she has me. She went to a fancy, high rent high school in high rent McLean, Va. and I went to a small country school, with no indoor plumbing, in Podunk, Jerkwater Junction, NC. But we were taught to spell. To Lisa, animals live in a zooz, fish live in the see, you fly in a plain, ride in a kar, and she has a some problem with her innerds, known as seliak. Her elementary school teacher, that taught her to spel, must have been sniffing some good stuf!!!! bon soir, Jim

Gosh, you gotta love him or hate him. I'm debating this fact as we speak. <_<

He was invited by my request. No future post will come from this randon guy.

OMG! Lisa- Your hubby is a hoot! Tell him to get his own account so we can tease him too :P

CarlaB Enthusiast

I just wanted to let you all know I've been reading along ... you guys crack me up! I don't have much to say because the brain fog has gotten so bad that I can't think clearly ... I'm also totally focused on my doctor's appt. in NY Friday ... but I wanted to be a part of this silly group.

I think this thread is proof that there are no cliques here ... we have certainly formed "gab groups" on certain threads because we find something on the thread that meets our needs, even if they are comedy needs, but I have always found everyone welcoming ... except maybe the person who brought me down to four stars LOL :lol: .

I think the star system should be eliminated. I did add friends because I wanted to see what that feature was .... now that I know it doesn't do anything, I didn't add anyone else.

CarlaB Enthusiast
I think the star system should be eliminated. I did add friends because I wanted to see what that feature was .... now that I know it doesn't do anything, I didn't add anyone else.

And, now I'm down to three ... and I haven't answered a post on a thread other than the OMG thread for a week now, yet my stars dropped today!!

BTW, you can tell who's lowering your stars by seeing who has visited your page ... of course, you have to guess which person did it ...

Michi8 Contributor
And, now I'm down to three ... and I haven't answered a post on a thread other than the OMG thread for a week now, yet my stars dropped today!!

BTW, you can tell who's lowering your stars by seeing who has visited your page ... of course, you have to guess which person did it ...

Do the stars go down if someone visits, but doesn't give a rating? I haven't given anyone any stars...

Michelle

CarlaB Enthusiast
Do the stars go down if someone visits, but doesn't give a rating? I haven't given anyone any stars...

Michelle

I believe they have to give a rating. Mine went down both times a certain person visited my page. I agree with the others that it's a bad idea to have the stars.

Mango04 Enthusiast
I believe they have to give a rating. Mine went down both times a certain person visited my page. I agree with the others that it's a bad idea to have the stars.

I wonder if non-members are allowed to rate us? I have a hundred something profile views :blink:, but only a few members have visited my profile

CarlaB Enthusiast
I wonder if non-members are allowed to rate us? I have a hundred something profile views :blink: , but only a few members have visited my profile

I just logged out, visited your page, and could not rate you. So, it seems that only members can rate you, and it always tells you who last visited your page. Some sweety (and I know who you are ;) ) raised my rating after reading the post here. :)

Mtndog Collaborator
I just logged out, visited your page, and could not rate you. So, it seems that only members can rate you, and it always tells you who last visited your page. Some sweety (and I know who you are ;) ) raised my rating after reading the post here. :)

That' so cute! Yeah- I have a problem with it. I PM'd Scott and am waiting to hear back.

Rachel--24 Collaborator

Yeah...I think the star ratings is just not needed here. Maybe Scott can disable that feature??

The only purpose it can possibly serve is to make people feel bad cuz they either dont have any stars...or someone took their stars away...or whatever.

It very much reminds me of elementary school when people used to pass around "slam books"....rate this person from 1-10....who is your favorite person?....who do you dislike the most?...etc. Very lame.

So all its gonna do is create conflict since people go around adding and taking away peoples stars....especially if you can actually *see* who's doing it.

It seems like it would be hurtful to peoples feelings.

Theres nothing really positive about it. We should all be either set to 5 stars or no stars at all. Thats my opinion.

GFBetsy Rookie

Only read the last few posts, so I may be repeating a comment . . .

but didn't Max Lucado write a book about some puppets who always put gold stars or black dots on each other depending on what they thought of each other? And the whole point was that when you ignore the stars and dots (because you love yourself, I guess), they fall off. I wonder: if we ignore the stars, will they fall off the computer screen?

Judyin Philly Enthusiast

I've questioned the stars and asked about then here and in other threads since the day i logged back on.

A know i have put 5 stars on someone who was blank..but it i went to add a star to someone who had 4 to make it a 5 star i was not allowed to do so..

so can't imagine how you would make someone lose stars..

takes too much mental energy for me.

i'm choseing to ignore them and not bring it up again.

judy

CarlaB Enthusiast
Only read the last few posts, so I may be repeating a comment . . .

but didn't Max Lucado write a book about some puppets who always put gold stars or black dots on each other depending on what they thought of each other? And the whole point was that when you ignore the stars and dots (because you love yourself, I guess), they fall off. I wonder: if we ignore the stars, will they fall off the computer screen?

:lol::lol: Maybe Scott can make that happen.

The part I think is bad is that people rate based on personal feelings, not necessarily quality of answers. Then a newbie, non-member comes on to read information and thinks the stars are some kind of official rating, but they don't have anything to do with a person's knowledge at all, just whether others on the board like them.

jayhawkmom Enthusiast
but didn't Max Lucado write a book about some puppets who always put gold stars or black dots on each other depending on what they thought of each other? And the whole point was that when you ignore the stars and dots (because you love yourself, I guess), they fall off. I wonder: if we ignore the stars, will they fall off the computer screen?

YES!! It's called You Are Special, and I read that book to my Sunday school class a couple weeks ago!!! LOL!!

Honestly, I have no idea what stars y'all are talking about. I just wondered if Srokie hung around, and it looks as if she's flown the coop, eh??

CarlaB Enthusiast
I've questioned the stars and asked about then here and in other threads since the day i logged back on.

A know i have put 5 stars on someone who was blank..but it i went to add a star to someone who had 4 to make it a 5 star i was not allowed to do so..

so can't imagine how you would make someone lose stars..

takes too much mental energy for me.

i'm choseing to ignore them and not bring it up again.

judy

I think it's an average of the ratings the person has received ... so if you try to add a star to someone who only has four, until their average is high enough, they will still only have four stars.

I made this larger so Judy could see it easily ... I'm not shouting.

Viola 1 Rookie
I think it's an average of the ratings the person has received ... so if you try to add a star to someone who only has four, until their average is high enough, they will still only have four stars.

I made this larger so Judy could see it easily ... I'm not shouting.

I went in and saw that you had four now, and tried to raise it to five, but it wouldn't cooperate, so I think we should just ignore them all and know that we are all five stars on this board :P

CarlaB Enthusiast
I went in and saw that you had four now, and tried to raise it to five, but it wouldn't cooperate, so I think we should just ignore them all and know that we are all five stars on this board :P

:P Thanks!! :rolleyes: That's so sweet. I'm not worried about it ... I agree with how Rachel put it, it's juvenile. If it were some kind of official ranking based on quality of answers, it would be potentially useful information, but it's not. I would only ever give anyone 5 stars. :rolleyes:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,300
    • Most Online (within 30 mins)
      7,748

    Liss28
    Newest Member
    Liss28
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I completely understand the frustration of finding reliable gluten-free ingredients—it's exhausting when trusted products disappear or companies don't respond to safety inquiries. For teff flour in bulk, check out Azure Standard or Bulk Foods; both often carry gluten-free grains in larger quantities and clearly label dedicated facilities. For soy flour, Anthony's Goods tests for gluten and offers bulk options, though always verify their current certifications. For beans, peas, and lentils, Palouse Brand is a great choice—they're GFCO-certified and transparent about their farming practices. As for lentil elbow macaroni, Explore Cuisine offers similar pastas, though cross-contact policies vary. When companies don't respond, I lean on third-party certifications (GFCO, NSF) or stick with brands like Jovial or Edward & Sons that prioritize allergen safety. It's a constant hunt, but hopefully these leads help! Have you tried local co-ops or ethnic markets for teff? Sometimes they stock bulk African or Indian brands with clear labeling.
    • Scott Adams
      Beans in desserts are a fantastic way to add moisture, structure, and protein while keeping recipes gluten-free. Black bean brownies are a classic, but other beans like adzuki and pinto can also work well—adzuki beans are naturally sweet and often used in Asian desserts, making them great for cookies or cakes. Lentils, especially red lentils, blend smoothly into batters and can replace flour in recipes like blondies or muffins. Since you’re allergic to chickpeas, you might try navy beans or cannellini beans for a milder flavor in vanilla-based desserts. For less crumbliness, blending cooked beans into a paste helps bind the dough, and adding a bit of xanthan gum (if tolerated) can improve texture. If you’re experimenting, start with recipes that replace half the flour with bean purée before going fully flourless. Have you tried using aquafaba (bean liquid) as an egg substitute? It works wonders in gluten-free baking too!
    • lmemsm
      This may make you feel better about cross-contamination: https://nationalceliac.org/celiac-disease-questions/do-i-need-new-designated-pans-plates-and-utensils/ https://theceliacscene.com/rethinking-cross-contamination-no-need-to-be-so-careful/ I use Tom's of Maine or a toothpaste that states it's gluten free.  I have allergic reactions to some toothpastes so some of the toothpastes in health food stores are usually safer for me. They're typically gluten free as well. Spices can contain cross-contamination from gluten.  There are a few lists online of spices that are safe for celiacs.  I also grow my own herbs and use them in place of store bought when I can.  I think Badia lists their spices as gluten free and Spice Lab has some gluten free too. Knitty Kitty has a great point about nutritional deficiencies and B vitamins.  I got a lot of aches and pains when I got off gluten.  I tried to replace wheat with other healthy grains like teff, buckwheat and sorghum.  Limiting one's diet too much and not getting enough vitamins, can make someone feel worse.  A lot of the gluten free foods in the stores are made with lower quality ingredients than the wheat varieties.  I try to replace all my foods with homemade options.  Then I know the quality of the ingredients and which vitamins I may be high or low in.  Probiotics or prebiotics can help with bathroom issues.  Better to get them in foods if possible and not pill form.  My doctors keep recommending magnesium too.  It's not supposed to be taken alone, but they don't seem to care about that.  It's easy for vitamin D to be low too.  That was another thing doctors told me to take.  Unfortunately, they didn't monitor it and it went too high.  Again, better from natural sources like food and sunlight.  However, supplementing can help if you're not getting enough.  Some sources say to take D with K2.  You may want to have iodine levels checked.  If you add iodine, make sure to get sufficient selenium for thyroid.  You can get iodine naturally in most seaweed.  Nori may also be one of the few non-animal sources for B12.  Brazil nuts are a good source of selenium and you only need a few a day to meet RDA.  Some brands of nuts specifically say gluten free.  Unfortunately, there are issues with Brazil nut production and they're much harder to find this year. The more you can vary your diet the better.  One study said aim for at least 30 different foods in a week.  You might want to try kiwi fruit.  There were some studies that said eating kiwi improved mood.  It also has a covering which most people don't eat, so that should protect what's inside from contamination. I've limited my diet quite a bit over the years because of migraines, so I know how uncomfortable it can be finding safe foods.  However, I'm afraid limiting diets like that may actually be causing more harm than good.  It's something I'm trying to work on.  I keep trying to expand the number of foods I eat and my recipe repertoire.  I made a list of brands of foods that I've found that are gluten free so I have a guide when I'm shopping.  
    • knitty kitty
      Hello, @Dora77, I agree with you that your doctors aren't very knowledgeable about Celiac Disease.  My doctors didn't recognize nutritional deficiencies either.  I became very deficient in vitamins before I was diagnosed, so having experienced similar, I understand what a difficult time you're having.   Poor absorption of essential nutrients is caused by the damage done to the intestines by Celiac Disease.  The gluten free diet can be low in essential nutrients, so supplementing to boost your absorption is beneficial.  New symptoms can develop or worsen as one becomes more and more deficient.   There's eight essential B vitamins that our bodies cannot make, so they must come from our food and supplements.  These eight B vitamins work together, like instruments in an orchestra.  They need to be supplemented together with essential minerals like magnesium.   Deficiencies in the B vitamins can have overlapping symptoms.  Some symptoms can be traced to specific B vitamins.  OCD can be traced to low Pyridoxine Vitamin B 6.  Yes, I had OCD and washed my hands until my skin cracked and bled.  ADHD symptoms can be traced to low Thiamine Vitamin B 1.  ADHD is something one is born with.  People who are born with ADHD have a metabolic problem with getting sufficient thiamine into their brain cells.  People who develop symptoms of ADHD later in life are more likely to be low in Thiamine.  The same symptoms appear if one is not getting sufficient thiamine from the diet.  Yes, I developed symptoms of ADHD.  These symptoms improved and disappeared after supplementing with Thiamine and the other essential nutrients. I was diagnosed with Type Two Diabetes.  99% of diabetics of both types are deficient in Thiamine because our kidneys don't re-absorb thiamine properly.  Thiamine is needed to make insulin and digestive enzymes in the pancreas.  Poor digestion (floating, undigested stools) can result with insufficient pancreatic enzymes.  The gall bladder (upper right quadrant) needs thiamine to make and release bile which also helps with digestion.  Constipation is also a symptom of Thiamine and magnesium deficiencies.  The thyroid is another organ that uses lots of Thiamine, too.  Low thyroid hormones can be due to insufficient thiamine, selenium, iron, and iodine.  Swelling of hands, face and feet are also symptoms of thiamine insufficiency.   Our bodies use thiamine to make energy so organs and tissues can function.  Thiamine cannot be stored longer than three weeks.  If our stores are not replenished every day, we can run out of Thiamine quickly.  If we do get some thiamine from our diet, symptoms can wax and wane mysteriously, because a twenty percent increase in dietary thiamine causes an eighty percent improvement in brain function and symptoms.  Thiamine interacts with all the other vitamins in some way.  Many other vitamins and their metabolic processes won't work without thiamine.  In Celiac Disease you are apt to be low in all the essential nutrients, not just thiamine, but thiamine deficiency symptoms may appear first. Talk to your dietician about eating a nutritionally dense gluten free diet.  Keep in mind that processed gluten free foods do not contain sufficient vitamins to be useful.  Processed gluten free foods are filled with saturated fats and excess fiber (that could explain your constipation).  Dairy products, milk and cheese can cause problems because Casein, the protein in dairy, causes the same autoimmune reaction that gluten does in some.  Your current restricted diet is dangerous to your health.  I followed the Autoimmune Protocol Diet (Dr. Sarah Ballantyne).  It's a Paleo diet that promotes intestinal healing.   Discuss with your doctors about correcting nutritional deficiencies as soon as possible.   Interesting reading... https://pubmed.ncbi.nlm.nih.gov/34165060/ https://pubmed.ncbi.nlm.nih.gov/21816221/#:~:text=Lipid-soluble thiamin precursors can,and attention deficit%2Fhyperactivity disorder.
    • max it
×
×
  • Create New...