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Canadian Karen

A Proper Welcome To Srokie!

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Hi srokie and JackieM,

I'm one of the extremely grouchy skeptical people so feel free to point out any time you think I'm being unfair.

I think, if nothing else, I hope you learn that all information you receive from whatever source should be considered and questioned if necessary. No one person has all the right information, and even on issues of cross contamination people have different opinions and experiences.

And welcome


"But then, in all honesty, if scientists don't play god, who will?"

- James Watson

My sources are unreliable, but their information is fascinating.

- Ashleigh Brilliant

Leap, and the net will appear.

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I recently found this site via surfing for Johnny Rivers links. I couldn't figure out why his name was associated with Gluten free until I read it was a post from Dingogirl about him. As I got into reading some things here, I soon started learning that this disease, which a friend of mine suffers from, but she refers to it as intolerance, maybe that is correct too, I don't know. So if it were not for me following Dingogirls post that was on Google, howza bout thaaat, I would never have all this information here.

oh my goshhhhhhhhhhhh, so something good HAS come out of me dating JR? :huh: I have to tell you, this just cracks me up, that you can google him and then find this! I must be quite careful in what I say...... :ph34r:

Welcome, Jackie!

Hi srokie and JackieM,

I'm one of the extremely grouchy skeptical people so feel free to point out any time you think I'm being unfair.

yup, me too - - grouchy and skeptical! :ph34r: It comes from my dad......I'm still working on it. ;)


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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oh my goshhhhhhhhhhhh, so something good HAS come out of me dating JR? :huh: I have to tell you, this just cracks me up, that you can google him and then find this! I must be quite careful in what I say...... :ph34r:

:lol::lol:

I was just gonna pm to make sure you saw how your Johnny Rivers stories led someone to learn about Celiac!! :o Seeeeee your stories *are* pertinent to the board!! :D

I still dont think I know who he is...I must Google. :ph34r:


Rachel

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Srokie, did she tell you if it was B-12 or not that you were not absorbing? All that talk of bread,eclairs, and baquettes started giving me pain.

There is not one of us on this board who can't empathize with how you have felt. I still do not absorbe my B-12 anymore because of this disease so I am constantly taking sublingual B-12's as opposed to shots. I know when I am low in B-12, I get very fatigued.

I am happy when people find out they are Celiac at a younger age. I hate to think of them suffering the decades I and many others have suffered from this disease and the irrepairable damage it has done to us.I am never happy anyone has this disease. It is not an inexpensive or convenient disease to have.

We need our governments to wake up and see how disabling this disease really is, perhaps if some of them had this they would get on board with us in many ways

I have enlarged the font on here in hopes of making it easier on Judy, without the yelling of caps..

Welcome Srokie..again from me.

See how nice people are...Rusla...thank you so very much for the large print. Got a notice from Scott about my Caps..i've been working on it but can't seen to get them larger for me to read while typing. will try to enlarge now and see if it comes up on the reply.

god so much work to figure this out.

my god ti worked when it come up but doesn;t help while typeing.

guess i'll just have to do the post and then caps and do a 'edit'

lord all mighty

thanks Rusla, your the best.

j


Judy in Southern CA

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I still dont think I know who he is...I must Google. :ph34r:

How could you NOT know who Johnny Rivers is!?!?!

Oh wait, that "24" in your name must have something to do with your age....


"But then, in all honesty, if scientists don't play god, who will?"

- James Watson

My sources are unreliable, but their information is fascinating.

- Ashleigh Brilliant

Leap, and the net will appear.

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How could you NOT know who Johnny Rivers is!?!?!

Oh wait, that "24" in your name must have something to do with your age....

I am clueless also :(

Lisa-52


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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I was just gonna pm to make sure you saw how your Johnny Rivers stories led someone to learn about Celiac!! :o Seeeeee your stories *are* pertinent to the board!! :D

:lol::lol::lol: Y'all just can't imagine how extremely funny I find this....oh and thanks, Rachel, for thinking of me. ;) Pertinent? me? :huh:

check this out

http://johnnyrivers.com/

(could thsi thread be ANY more off topic?)


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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A heartfelt and warm welcome from myself also srokie! Glad we can all start over (wish we could start over with our bodies before gluten ruined them!)


A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.

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I can't believe someone found this site via Johnny Rivers- that is WAY too funny! See, it really is a small world. And Susie- you are NEVER grouchy. :P

Lisa-52 :lol: :lol: :lol:

I'm Beverly-39.


***************************

Beverly

Gluten free since 2005

In the midst of winter, I found there was within me an invincible summer.

Albert Careb

36_35_6[1].gif

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(could thsi thread be ANY more off topic?)

Well.....seeing how Srokie has ran for the hills...I guess the topic really has no point. :huh:

Sooo...on that note I would like to welcome JackieM to the board. :D

I'm really glad that Susan's Johnny River stories brought you to this board....and its great that you're taking the time to learn more about your friends diet!! :)

How could you NOT know who Johnny Rivers is!?!?!

Oh wait, that "24" in your name must have something to do with your age....

Nope...I'm clueless at 35 :ph34r:


Rachel

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I am clueless also :(

Lisa-52

When I heard the song I knew it but he was first popular in 1964 - that's 40 years ago. I was still a twinkle in my daddy's eye then.... :blink:

And please not one get upset - I'm not trying to offend anyone by how long ago it was. I think it's great that we can share this stuff.


Tanya

Canadian eh and new to all of this!

DH Diagnosed December 20, 2006

Waiting on Gatro appt. until April!

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When I heard the song I knew it but he was first popular in 1964 - that's 40 years ago.

Awwww....see...its not so strange that I dont know who he is....aside from being Susan's ex. :P


Rachel

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I can't believe someone found this site via Johnny Rivers- that is WAY too funny! See, it really is a small world. And Susie- you are NEVER grouchy. :P

Lisa-52 :lol: :lol: :lol:

I'm Beverly-39.

:lol: Susan - 45 (JR is 19 years older than I). And yes, occasionally GROUCHY!!!! :ph34r: (remember, I was one who may have hurt Srokie's feelings.)

Well.....seeing how Srokie has ran for the hills...I guess the topic really has no point. :huh:

Sooo...on that note I would like to welcome JackieM to the board. :D

I'm really glad that Susan's Johnny River stories brought you to this board....and its great that you're taking the time to learn more about your friends diet!! :)

Nope...I'm clueless at 35 :ph34r:

IT really is great that Jackie is trying to learn about her friend's diet. Interesting how that came about.

When I heard the song I knew it but he was first popular in 1964 - that's 40 years ago. I was still a twinkle in my daddy's eye then.... :blink:

And please not one get upset - I'm not trying to offend anyone by how long ago it was. I think it's great that we can share this stuff.

We're not always as trigger-happy as we've been lately......you're not offending! Good to have you here.


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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When I heard the song I knew it but he was first popular in 1964 - that's 40 years ago. I was still a twinkle in my daddy's eye then.... :blink:

And please not one get upset - I'm not trying to offend anyone by how long ago it was. I think it's great that we can share this stuff.

The song is called "Secret Agent Man", can't remember who sang it, but it was a theme song for a tv show in the 60's if I recall. (sort of a 007 type show).

I'll have to keep an ear out for Jonny Rivers.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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The song is called "Secret Agent Man", can't remember who sang it, but it was a theme song for a tv show in the 60's if I recall. (sort of a 007 type show).

I'll have to keep an ear out for Jonny Rivers.

It was also in the Austin Powers movies (at least the first one) and then he made some $$ by singing a bastardized version of it for Walmart...... :lol:

What I love is when I'm walking through TJ Maxx or something, just minding my own business, and a song comes on....

"....summer rain, taps at my window......"

and I just smirk to myself and kind of crack up, like a mad woman....... :P


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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It was also in the Austin Powers movies (at least the first one)

HEY...I think I heard "Secret Agent Man" before!!

Probably from the movie. :ph34r:


Rachel

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Welcome new board friends...glad you peristed and stayed.


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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Well I'm confooozed, let's see, then came Srokie, Srokie not, Srokie welcome, Srokie gone like a big bird. For what it is worth, I'm sticking around, as long as you want me here. Sorry it all took a turn for the worse. Enuff said from me on that subject.

Ok, now to Johnny Rivers. Summer Rain happens to be my favorite song of his. That was in 1968. Other songs that may help some of you out are Memphis, Mabelline, Poor Side of Town, and many others, In the 70's a song called Rockin Pneumonia and the Boogie Woogie Flu. I remember being told that B) Secret Agent Man B) theme song was from a 60's tv show. I don't really remember the show. Maybe we could google it and find out? lololol Sometimes people will say they never heard of him, but if you name a couple of songs sometimes they say, 'oh yeah I remember that one.'

I got the biggest kick out of finding this site when surfing for his website. It is a nice site, but today I tried to check out the J Rivers message board forum, and it is closed. hmmm oh well. one forum closes and another opens and I just shuffled in. How cool is that. Hey Dingogirl, something's about that Summer Rain song?? I'm intrigued by that one. lol

It's just funny how life brings you to new things. Sometimes it's good to let have a little play in the steering wheel of life,it brought me here, how special is that! :)

It really is cool that I landed here searchin JR . lol I once had an acquaintance that dated Rob Grill of the Grass Roots. I thought that was cool, until she told me that she learned that he wasn't the bag of chips she thought he was. lol

Dingogirl has me really curious about her knowledge of JRivers. (Johnny not Joan) lol Nice to be welcomed here by all. I think I may have posted too much here on this thread concerning Rivers. I'm still finding my way around here trying to learn the board and what to do and not do. lol

JackieM

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Hmmmmmmmm.......wonder why the JR forum is closed down. Well Jackie, you are too funny and I'm glad you found yoru way here. :) You might enjoy some of our other goofier threads - Rachelville 2 or the (currently dorman) Silly Yak thread - -

I will pm you a little bit about JR. ;)


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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Hmmmmmmmm.......wonder why the JR forum is closed down. Well Jackie, you are too funny and I'm glad you found yoru way here. :) You might enjoy some of our other goofier threads - Rachelville 2 or the (currently dorman) Silly Yak thread - -

I will pm you a little bit about JR. ;)

Welcome Jackie! And the Silly Yyak thread is NOT dormant! I just posted something on it for YOU Susie Q!


***************************

Beverly

Gluten free since 2005

In the midst of winter, I found there was within me an invincible summer.

Albert Careb

36_35_6[1].gif

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Hmmmmmmmm.......wonder why the JR forum is closed down. Well Jackie, you are too funny and I'm glad you found yoru way here. :) You might enjoy some of our other goofier threads - Rachelville 2 or the (currently dorman) Silly Yak thread - -

I will pm you a little bit about JR. ;)

From what I could see earlier it looked as though there was some problems with something not acceptable being posted like spam, adult sites or something like that. I know when I have gone there before to look there would always be one or two there. Maybe they got tired of it, so they just closed it.

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Hi srokie and JackieM,

I'm one of the extremely grouchy skeptical people so feel free to point out any time you think I'm being unfair.

I think, if nothing else, I hope you learn that all information you receive from whatever source should be considered and questioned if necessary. No one person has all the right information, and even on issues of cross contamination people have different opinions and experiences.

And welcome

Jestgar, well put. I'm a sketic as well, but not as grouchy. (You grouchy?)

I always question what I am told and see how or if that imformation applies to my own situation, I never ever believe anything just because someone told me it was true, but it gives me food for thought and maybe looking at the problem in a different angle, and I never expect anyone to follow my opinions 100%.

It is our own responsibility to do our research and come up with our own answers, and through this forum I have found my answers quicker, but then at times I have been on wild goose chases, but I still have found my answers.

So far I don't seem to have come across anybody else on this forum with the same problems or symptoms as me, but then I am not looking for sameness all the way through, we are all different and with wide ranging personalities and ideas, and that is the beauty of this forum.

Cathy

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Hi Srokie. I am not on this board too much, just pop in now and then and answer the questions I think I have an answer to, and discuss those things that I have something to add to. I just read the toilet paper/paper towel thread, so I am late to the drama, but I just want to say that I, personally, try to always add "my opinion" or "I think" just to cover my butt in my posts.

I hope you weren't scared away!!! Please do hang around. I was "attacked" by a board member some time ago, over something really stupid, and I left the board for a while, but I enjoy the ideas, and the conversation, as long as we all agree that it is our opinion (most of the time) that we are sharing. Anyway, welcome, and I hope you are doing well. ~TiffJake


EnteroLab test positive for gluten intolerence and 2 gluten intolerence and celiac genes

DQ2 and DQ3 sub type DQ7 in December 2005

Gluten-free since Enterolab test, December 2, 2005.

Lame Advertisement Test positive for gluten intolerence in Sept 2005.

THEN found out that my fathers mother had nontropical sprue, she passed away at 40 from (stomach) cancer, had holes in her intestines when they caught it. I had no idea....

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Tiffany, it is so nice to see you again. :) I"m sorry you were attacked. You were missed. And, I am enjoying the Bare Mineral (that's right, foks, this darling girl sent me her stuff that she wasn't using! )

:rolleyes:


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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