Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

All Symptoms Are Gone

Chloe123

Recommended Posts

Chloe123 Newbie
Chloe123
Posted

You, guys....

Here is the thing. All my life I had a little here, a little there. I always knew there was something wrong with me :D , but I could not pinpoint the problem. I was always bloated, swollen in the mornings, cold hands and feet, no energy, cramps (severe), always pale, my hair fall out always (irritaiting, or rather depressing :rolleyes: )etc, etc. Lately I started having this numb feeling in my legs and no sex drive ( I am not 30 yet!!) What a nice picture. Needless to say, I would never in a right mind to go to a doctor. Just don't trust them. Period. I had my fair share of them. A week ago I started my salad diet which always made me feel better. So here I am eating my salads and started feeling much better and than after a few days I ate a salad with bread and felt like throwing up. Strange. And than it heat me - could I be possible bread-wheat sensitive? Isn't bread have that thing called gluten? What is gluten, anyway? May be I just making things up? Just out of curiousity I went to the book store and I opened a book on gluten and OH MY GOD!!! I had almost every single symptom!!!! I ran to the health store and likely it had a gluten free section (lucky me) - I stayed on gluten free diet for a week and ALL of my symptoms are GONE. This feels so good but also weird becasue I had all these symptoms all my life and eventually they became a part of my personality, and when they are gone, what do you do :o

I have never had my belly so small in my entire life. I have never woken up in the morning not swollen. My hair now like to stay on my head :rolleyes: Sex drive is coming back?? looks like, or rather feels like it :D

This all happend just a week ago and I just had to share it with somebody. Normally I am a calm person but being so changed in a good way just makes me type type type :blink:

Well, just wanted to share the good news with people who understand this whole gluten thing, because others just don't get it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

Dang, I could see you doing your happy dance right through my computer screen!

Chloe123 Newbie
Chloe123
Posted
  • Author

me again,

now when I am thinking - my grandfather died of stomach cancer, his daugher (my aunt) cannot not have children and had severe digestion problems and had some of her intestines sergically removed, etc...

Did i just avoided some bad health problems down the road and I mean BAD??

emcmaster Collaborator
emcmaster
Posted
me again,

now when I am thinking - my grandfather died of stomach cancer, his daugher (my aunt) cannot not have children and had severe digestion problems and had some of her intestines sergically removed, etc...

Did i just avoided some bad health problems down the road and I mean BAD??

Possibly. :)

Congrats on finding out you have a problem with gluten. I, too, made the connection myself. It's pretty great to feel so good, isn't it?

Chloe123 Newbie
Chloe123
Posted
  • Author
Dang, I could see you doing your happy dance right through my computer screen!

I am rather shaking at this point :lol: The whole thing has not sunk to my jiggling braind yet. I did not do any testing to confirm that I am gluten sensitive but what just happened in such a short period of time... I am positive that I have it. I really would like to know the damage, though, that happened to my poor guts :( but hopefully staying off of gluten will heal them sometime.

Chloe123 Newbie
Chloe123
Posted
  • Author
Possibly. :)

Congrats on finding out you have a problem with gluten. I, too, made the connection myself. It's pretty great to feel so good, isn't it?

Well, congrats to you, too :lol: What are the chances that would happened? I mean, the connection. The symptoms are so ... here and there, if you know what I mean.

This is so wonderful. It feels like leaving the prison ( not that I ever been there :lol: ) Feels very free and healthy

Kaycee Collaborator
Kaycee
Posted

Chloe, welcome. Like you, I went on a diet and lo and behold, all my symptoms improved at the start, but I was still eating a bit of gluten, so they came back. But unlike you, I took another year to really get down to the bottom of what was wrong with me, and by then I had self diagnosed myself visited the doctor and the test results confirmed it.

I know how much you hate doctors, but have you thought to go see one to get a diagnosis? That way you can be sure it is what you have, as somewhere down the track you might doubt it and go back to eating bread etc. I have found having a diagnosis stops the wondering whether it is or not coeliac. But be warned there can be false negatives with he testing, but there are few false positives for coeliac. In regard to this, and your results come back negative, for your own health don't overlook the fact that you look and feel so much better gluten free.

But you would have to get the doctor pretty quick, because if you leave it too long, you will not be able to get an accurate diagnosis as your antibody levels will have gone down and a biopsy would not show up any damage if your body has healed. Worth thinking about particularly if you want to know what damage has been done already. Staying of gluten will heal your stomach and possibly reduce your chances of getting intestinal cancer.

By the way gluten is the protein found in wheat, rye, barley, a few other grains I can't remember and possibly oats. I only say possibly oats, as some people with gluten problems can tolerate oats.

Cathy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


needtobebetter Apprentice
needtobebetter
Posted
You, guys....

Here is the thing. All my life I had a little here, a little there. I always knew there was something wrong with me :D , but I could not pinpoint the problem. I was always bloated, swollen in the mornings, cold hands and feet, no energy, cramps (severe), always pale, my hair fall out always (irritaiting, or rather depressing :rolleyes: )etc, etc. Lately I started having this numb feeling in my legs and no sex drive ( I am not 30 yet!!) What a nice picture. Needless to say, I would never in a right mind to go to a doctor. Just don't trust them. Period. I had my fair share of them. A week ago I started my salad diet which always made me feel better. So here I am eating my salads and started feeling much better and than after a few days I ate a salad with bread and felt like throwing up. Strange. And than it heat me - could I be possible bread-wheat sensitive? Isn't bread have that thing called gluten? What is gluten, anyway? May be I just making things up? Just out of curiousity I went to the book store and I opened a book on gluten and OH MY GOD!!! I had almost every single symptom!!!! I ran to the health store and likely it had a gluten free section (lucky me) - I stayed on gluten free diet for a week and ALL of my symptoms are GONE. This feels so good but also weird becasue I had all these symptoms all my life and eventually they became a part of my personality, and when they are gone, what do you do :o

I have never had my belly so small in my entire life. I have never woken up in the morning not swollen. My hair now like to stay on my head :rolleyes: Sex drive is coming back?? looks like, or rather feels like it :D

This all happend just a week ago and I just had to share it with somebody. Normally I am a calm person but being so changed in a good way just makes me type type type :blink:

Well, just wanted to share the good news with people who understand this whole gluten thing, because others just don't get it.

needtobebetter Apprentice
needtobebetter
Posted

Hi ya...Congrats glad you are well ...

Ive ben ill for 14 month snow not knowing whats happening to me been treated for candida massive yeast infection...

Symptoms: Massive bloat with food, eat wheat gluten, dairy get canker sores, shaking, sick, bloated and constipation....

My prob is I have had so many tests I think th e docs think I am nuts...but I am not ....

How long did it take you to get rid of your bloat on the salad diet ???

PLease let me know would really appreciate it xx

Mand

:(

You, guys....

Here is the thing. All my life I had a little here, a little there. I always knew there was something wrong with me :D , but I could not pinpoint the problem. I was always bloated, swollen in the mornings, cold hands and feet, no energy, cramps (severe), always pale, my hair fall out always (irritaiting, or rather depressing :rolleyes: )etc, etc. Lately I started having this numb feeling in my legs and no sex drive ( I am not 30 yet!!) What a nice picture. Needless to say, I would never in a right mind to go to a doctor. Just don't trust them. Period. I had my fair share of them. A week ago I started my salad diet which always made me feel better. So here I am eating my salads and started feeling much better and than after a few days I ate a salad with bread and felt like throwing up. Strange. And than it heat me - could I be possible bread-wheat sensitive? Isn't bread have that thing called gluten? What is gluten, anyway? May be I just making things up? Just out of curiousity I went to the book store and I opened a book on gluten and OH MY GOD!!! I had almost every single symptom!!!! I ran to the health store and likely it had a gluten free section (lucky me) - I stayed on gluten free diet for a week and ALL of my symptoms are GONE. This feels so good but also weird becasue I had all these symptoms all my life and eventually they became a part of my personality, and when they are gone, what do you do :o

I have never had my belly so small in my entire life. I have never woken up in the morning not swollen. My hair now like to stay on my head :rolleyes: Sex drive is coming back?? looks like, or rather feels like it :D

This all happend just a week ago and I just had to share it with somebody. Normally I am a calm person but being so changed in a good way just makes me type type type :blink:

Well, just wanted to share the good news with people who understand this whole gluten thing, because others just don't get it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,221
    • Most Online (within 30 mins)
      7,748
    Hissyfit33
    Newest Member
    Hissyfit33
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Watch this space!  😊
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Low iron and vitamin d

      By lizzie42 · Posted

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.