Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Something New I've Noticed


JerryK

Recommended Posts

JerryK Community Regular

When I eat gluten, it seems like my hands and feet are tingling and slightly numb.

I don't know if it's my imagination or what....but I certainly do notice it.

This is in addition to all the other crappy feelings....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Electra Enthusiast
When I eat gluten, it seems like my hands and feet are tingling and slightly numb.

I don't know if it's my imagination or what....but I certainly do notice it.

This is in addition to all the other crappy feelings....

My right foot and lower leg were doing that to the point of where I was losing feeling in them and I couldn't keep my balance and stuff. Then it started moving into my right hand, and now when I get accidentally glutened one finger tip on my left hand pricks constantly (it's so annoying lol). It was mostly on one side, but numbness and tingling in limbs are very good sign that gluten is causing some major damage in there. I would try very hard to stay off gluten because most nerve damage is not reversable. Good Luck and I hope you feel better soon!!

jerseyangel Proficient
When I eat gluten, it seems like my hands and feet are tingling and slightly numb.

I don't know if it's my imagination or what....but I certainly do notice it.

This is in addition to all the other crappy feelings....

Not your imagination!

In the year before I was finally diagnosed, I had increasing tingling and numbness in my legs and feet. Sometimes the bottoms of my feet would feel like they were burning.

My left arm had a sensation that is hard to describe--somewhere between numb, and tight. I also had tingling and burning in my face and mouth--and still sometimes still have the facial tingling today.

It took some time, but except for the facial tingling, it has all gone away on the gluten-free diet. When it began, I was petrified I had a more serious neurological disease. It was pretty scary--I wish I knew then what I know now.... ;)

num1habsfan Rising Star

I get this too!! that it feels that that part of my body is dead :P

~ lisa ~

GeoffCJ Enthusiast
I get this too!! that it feels that that part of my body is dead :P

~ lisa ~

i have serious issues with my hands and feet tingling. To the point where walking can be painful/difficult. Unfortunately, I've seen little improvement since going gluten free 5-6 weeks ago.

Geoff

wowzer Community Regular

I have complained about that tingling feeling for years to my doctor. It seems to have gotten better since I started the gluten free diet. It's been one month. He always thought it was because of the sinus infection I had. I still get it once in awhile, so I'm not sure if it is from eating or ingesting gluten that I didn't realize.

darlindeb25 Collaborator

Geoff--have you had your blood tested--sounds like a B12 deficiency to me. The others seem to have found the cure for their tingling, well, except maybe for wowser. I do have neuropathy and I have to take B12 daily.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast

That is usually a sign of B-12 deficiency. You need to be very careful as it gets worse meaning it is more often and painful. It will also result in your not remembering things and getting so fatigued that you can barely make it up a set of stairs. Mine became so bad that I was 2 points away from being paralyed and 4 points away from permanent brain damage. I still have problems remembering things after that. If you ever get as low as I did with B-12 you need to take B-12 either shots or sublingual for life. That is because your body loses something that you can never truly aborb B-12 and maintain without supplementation. I know when my B-12 is dropping as I get tingling and fatigued all over again.

mamabear Explorer

Definitely not your imagination...peripheral neuropathy is associated with celiac disease, and more mainstream medical literature is being published recently which will hopefully reinforce this for neurologists and internists. B12 may not be the only answer, and lab results may not confirm a deficiency, but neuropathy is diagnosable via a nerve conduction velocity test. Doctors have known for many,many years that "idiopathic neuropathy" should be closely monitored three years for associated malignancies when no source is found for the nerve damage. I find this intriguing as celiac is also associated with malignancy, and I wonder how mant patients are being missed when the neuro guys should order celiac panels,too??

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.