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Mouth Sores

Guest pdwillis

By Guest pdwillis
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

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Guest pdwillis
Guest pdwillis
Posted

How common are mouth sores when you have celiac. My son gets them all the time, and we are still in the waiting game of seeing if he has celiac. Or does mouth sores mean it is another auto-immune disorder. I have tried to google some information and it shows lupus. Does lupus and celiac sometimes go hand in hand. Is there anything to do for mouth sores?

paula

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2kids4me Contributor
2kids4me
Posted

aphthous ulcers is a fancy name for mouth sores or canker sores. It is very common to get mouth sores with celiac. Before we found out my daughter was celiac, she had them frequently, sometimes so many it hurt to eat and we had to only have soft food, no juice etc.

Since gluten free, not one !

sandy

if you google: aphthous ulcers and celiac many articles will come up

Electra Enthusiast
Electra
Posted
How common are mouth sores when you have celiac. My son gets them all the time, and we are still in the waiting game of seeing if he has celiac. Or does mouth sores mean it is another auto-immune disorder. I have tried to google some information and it shows lupus. Does lupus and celiac sometimes go hand in hand. Is there anything to do for mouth sores?

paula

I used to get horrible mouth sores I actually call them "craters" because they are the biggest baddest mouth sores I have ever laid eyes on. My daughter also gets them and they often think it's hand, mouth and foot disease, but she never gets any hand or foot stuff and none of the kids in day care catch it, so we know it's Celiac. The ones we get are way beyond the normal canker sores, they are huge and form massive holes in your mouth before they are done EEK!! They are horribly, horribly, horribly painful. I wouldn't even wish them on my worst enemy!!

evie Rookie
evie
Posted
I used to get horrible mouth sores I actually call them "craters" because they are the biggest baddest mouth sores I have ever laid eyes on. My daughter also gets them and they often think it's hand, mouth and foot disease, but she never gets any hand or foot stuff and none of the kids in day care catch it, so we know it's Celiac. The ones we get are way beyond the normal canker sores, they are huge and form massive holes in your mouth before they are done EEK!! They are horribly, horribly, horribly painful. I wouldn't even wish them on my worst enemy!!

I used to get those bad sores on my inside cheeks + tongue, would be hard to eat. After getting to the right Dr (dermatologist) I was put on a med for Citicidal Pemphoid. It is realted to DH and Celiac, did no know that @ the time so ws on the ned for 7 years. After celiac diagnosis and lots of time I got off it and only use a special mouth rinse when I have small flare ups. I know how painful it can be so if you and daughter are gluten free you have a good chance of improvement after several months. Best wishes for you!! :blink: evie

Electra Enthusiast
Electra
Posted
I used to get those bad sores on my inside cheeks + tongue, would be hard to eat. After getting to the right Dr (dermatologist) I was put on a med for Citicidal Pemphoid. It is realted to DH and Celiac, did no know that @ the time so ws on the ned for 7 years. After celiac diagnosis and lots of time I got off it and only use a special mouth rinse when I have small flare ups. I know how painful it can be so if you and daughter are gluten free you have a good chance of improvement after several months. Best wishes for you!! :blink: evie

Thanks Evie,

I've actually been gluten free for about a month, but my daughter has to continue eating Gluten until her Endoscopy at the end of the month. I haven't had mouth sores since going gluten free (except for one tiny one when I was accidentally glutened)!! Hopefully I won't EVER get them that bad again!!

Kaycee Collaborator
Kaycee
Posted

I would get mouth ulcers, not a lot but a few. I remember one very big extremely painful sore, Ouch.

But since being gluten free they have all but disappeared. So I think there is a connection there. My teenage son gets them, has been tested for coeliac but results came back negative, he also has reflux, so there is a worry that he has it.

Cathy

Guest pdwillis
Guest pdwillis
Posted
I would get mouth ulcers, not a lot but a few. I remember one very big extremely painful sore, Ouch.

But since being gluten free they have all but disappeared. So I think there is a connection there. My teenage son gets them, has been tested for coeliac but results came back negative, he also has reflux, so there is a worry that he has it.

Cathy

He has a really bad one on his face by his lips, the doctor just called and once us to take him in for a strep test, but i really dotn think it is strep. He gets them all the time in the last year. We are also going iin to have the whole celiac test done, He had it done a couple of weeks ago but he only did the Iga and Igg test, which the Igg test was high.

paula

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Felidae Enthusiast
Felidae
Posted

I had them all the time prior to going off gluten. I didn't know why I got them back then. I haven't had one since being gluten-free.

Corkdarrr Enthusiast
Corkdarrr
Posted

Try taking some L-Lysine. You can find it at any drug store. I just take a whole bunch of it all day long until they start to fade away.

Courtney

Electra Enthusiast
Electra
Posted
He has a really bad one on his face by his lips, the doctor just called and once us to take him in for a strep test, but i really dotn think it is strep. He gets them all the time in the last year. We are also going iin to have the whole celiac test done, He had it done a couple of weeks ago but he only did the Iga and Igg test, which the Igg test was high.

paula

Wow we've never gotten them on the face. We always get them inside the mouth, lips or in the back of the throat. They like to swell up the lines in the sides of our cheaks too so it feels like you have an entire vein running down the inside of your cheek that's infected OUCH they kill!!

rez Apprentice
rez
Posted
He has a really bad one on his face by his lips, the doctor just called and once us to take him in for a strep test, but i really dotn think it is strep. He gets them all the time in the last year. We are also going iin to have the whole celiac test done, He had it done a couple of weeks ago but he only did the Iga and Igg test, which the Igg test was high.

paula

There is a difference between apthous ulcers/canker sores and cold sores. I noticed that you said your son's sore is on his face. It sounds like a cold sore/fever blister. Those are more viral and can also be caused by the herpes virus, any virus, or stress. Apthous ulcers that go along w/ Celiac are on the inside of the mouth; Gum line, inside of lips or cheek. My son used to get TONS of them. He still got them after going gluten free. Dairy was triggering them too. They are white on the inside with a red line/ring around the outer edge. It he tried to eat dairy after going gluten free/they would appear within a day or two. Once he had 8 at a time. Nasty and super painful! Our doctor said it wasn't the lactose intolerance itself causing the sores, but the Celiac proper. Good luck.

rez Apprentice
rez
Posted
He has a really bad one on his face by his lips, the doctor just called and once us to take him in for a strep test, but i really dotn think it is strep. He gets them all the time in the last year. We are also going iin to have the whole celiac test done, He had it done a couple of weeks ago but he only did the Iga and Igg test, which the Igg test was high.

paula

There is a difference between apthous ulcers/canker sores and cold sores. I noticed that you said your son's sore is on his face. It sounds like a cold sore/fever blister. Those are more viral and can also be caused by the herpes virus, any virus, or stress. Apthous ulcers that go along w/ Celiac are on the inside of the mouth; Gum line, inside of lips or cheek. My son used to get TONS of them. He still got them after going gluten free. Dairy was triggering them too. They are white on the inside with a red line/ring around the outer edge. It he tried to eat dairy after going gluten free/they would appear within a day or two. Once he had 8 at a time. Nasty and super painful! Our doctor said it wasn't the lactose intolerance itself causing the sores, but the Celiac proper. Good luck.

rez Apprentice
rez
Posted

PS. There is a medicine that can help treat them that your doc can prescribe. A dental paste and some other thing.

blueeyedmanda Community Regular
blueeyedmanda
Posted

I used to get them all the time, and it was before I knew I had celiac. For the longest time, I blamed them on my wisdom teeth which were coming in crookedly, so I kept thinking the teeth were irratating the gums....turns out once I started the diet the sores went away....and I didn't get my wisdom teeth out for almost a year afterwards.

CMCM Rising Star
CMCM
Posted

There is a very STRONG correlation with lupus and celiac disease, although this fact is apparently not well known. In the book Dangerous Grains, I think it was, I read about a doctor in Australia who was handed a group of 75 hopeless lupus patients....their own doctor had given up helping them. This 2nd doctor put them all on a gluten free diet, and for every single one of them, the lupus went away, and even 5 years later it was still gone. He couldn't get the results of this one experience published, unfortunately, so this knowledge stays realtively unknown. Too bad.... :(

Yenni Enthusiast
Yenni
Posted

I have had canker sores really bad from time to time. I can get several at a time and some times I got really big ones. I remember one summer (just after I had Mononukleosis) I had one big one almost a whole summer.

Now towards the end, well probably the last year, I had them as soon as I used sulphate containing tooth past. I stopped with gluten and made sure I got a gluten free tooth past and it hasn't been bad at all.

I read about Lupus being connected to Celiac in the Dangerous Grains book also.

itsmaryj Newbie
itsmaryj
Posted
aphthous ulcers is a fancy name for mouth sores or canker sores. It is very common to get mouth sores with celiac. Before we found out my daughter was celiac, she had them frequently, sometimes so many it hurt to eat and we had to only have soft food, no juice etc.

Since gluten free, not one !

sandy

if you google: aphthous ulcers and celiac many articles will come up

My mother thought the cure for my canker sores was to put Alum on them. How horrible! I've had them often since I was quite young.

Mary

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