Every One Welcome

[Guest lorlyn]

i hate celiac and it stinks. so tell me how you feel

[blueeyedmanda]

I can't say I am always fond of celiac but it has helped me become more healthy and I have learned a lot from having it in the two short years since I found out. How long have you had celiac? If this is the beginning for you, it does seem overwhelming, but it will get a lot better.

As for gluten free food, I know this is hard to believe, since you have probably had you share of nasty cardboard tasting but the food has come a long ways since I first started the diet, there are more choices.

You have found a great place where you can vent your frustrations with others. We have all been there so we know exactly how you feel. Trust me though it does get easier! Good Luck.

[lonewolf]

Sometimes I get frustrated that my diet is limited. And somedays I feel like it stinks. But for the most part, I'm thankful to be healthy. I'm supposed to be in a wheelchair, but changing my diet helped me to get healthy again, so I see it as freedom. I was an athlete growing up and I'm a PE teacher and basketball coach now, so I'm VERY happy that I escaped that wheelchair!

It's hard to look into the future to see what problems you are avoiding by taking care of yourself now, but I hope that you are thankful that you found out what your problem is. I have a 15 year old daughter who decided to go gluten-free on her own - no Celiac diagnosis or anything. She just realized that she felt better when she didn't eat gluten and decided that she didn't want to get sick like I did - she'd rather prevent the problems now than try to fix them later. Sometimes she feels like it stinks too, but it's probably easier for her because I make all kinds of treats and gluten-free "junk food" that even her friends like. The hardest part for her is watching the kids at school eat pizza at lunch. I try to make pizza at home sometimes so she doesn't feel too deprived.

[Kassie]

i actually don't think the diet is that bad. i eat a lot of what i used to just made gluten free- cookies, cakes, brownies, bread, pasta, pancakes, and so forth- plus i am not eating more fruits and vegetables. the only thing that gets me are crackers cant seem to find a good substitute for those, and when i watch some one eat a big cheesy slice of pizza or a cheeseburger.

don't get me wrong, i would really rather not have celiac, but i have learned to deal with it. i put it this way. trials make you stronger, and this is just one more really adding to your strength

[jerseyangel]

Well, I wouldn't have chosen it , but I was sick for so long before I found out I had it, that it was really a relief.

I only wish that I hadn't developed all of the other food intolerances. That really narrows my choices, but most days I am just happy to feel well.

It could always be worse

[dlp252]

At this point celiac is the least of my worries.

[Daxin]

I wouldn't say I HATE it eactly. I would not CHOOSE this if I could!

I would however say that it is more than mildly inconvienient.

[girlfromclare]

Celiac stinks yes but so do lots of other disease that are much worse than this and much harder to cope with. You are lucky that celiac disease can be handled by diet and not medications or worse... I wouldnt have chosen celiac disease for my son who is four years old but he is so wonderful on it... he isnt sick any more... he has gained weight for the first time in two years and he has lots of cool treats that he can have - gorgeous biscuits and cakes that I like to sneak myself. I know it can be hard to be different and hard to not be able to take the things we love but as a teenager i used to love being different from everyone else. I relished it! Think of it as something that makes you special and makes you stand out from the crowd! You will be happier and healthier on the celiac diet... and if you have things to get off your chest, you've found the perfect place to do it as everyone here can empathise with you!

[Viola 1]

i hate celiac and it stinks. so tell me how you feel

I don't know if I hate Celiac or the inconvenence of the disease. For the most part ... when I'm at home ... I don't even think about it. However, when it comes to going out or travelling I hate the necessity of being "picky" about ordering food etc.

Even after all these years I yearn to be able to walk into a cafe after driving for several hours and order a coffee and muffin

[Felidae]

I don't hate being gluten intolerant because I think that it has actually forced me to eat healthier. However, I do hate the inconvenience of it. I think it has prevented me from applying for certain jobs. It has made me uneasy about travelling, which is something that I have always loved.

[Guest lorlyn]

i dont ecacly hate i do feel better but its sooooooo tempting i hate the temptation part and now i feel better when i play soccer im not as tired anymore but i wish celiac was a murder and i was a cop caught celiac and put it on death row lol any replys???

i hate celiac and it stinks. so tell me how you feel

[Kara B.]

i dont ecacly hate i do feel better but its sooooooo tempting i hate the temptation part

i no how u feel. i've had celiac for about a year. @ 1st i didnt want 2 eat the diet bcuz i new wut food w/ gluten in it tastes like & some gluten free stuf is grosss!!!

wen i c sum1 has a pizza or a cinamon roll or even a pb&j sandwich i just wunt 2 go take a BIG bite out of it. its horible!!!

[Phyllis28]

After almost 29 years on a gluten-free diet is simply part of my life, though I would not have chosen to have celiac. I'm a mom of a teenager, I work full time, I travel for pleasure when I can and I travel for work about 10 weeks a year. I am happy to be healthy enough to do all these things.

The one thing that still irritates me is pushy people who won't accept "No thank you" when I refuse their offering of gluten goodies and keep insisting I eat them.

[Liz92]

After almost 29 years on a gluten-free diet is simply part of my life, though I would not have chosen to have celiac. I'm a mom of a teenager, I work full time, I travel for pleasure when I can and I travel for work about 10 weeks a year. I am happy to be healthy enough to do all these things.

The one thing that still irritates me is pushy people who won't accept "No thank you" when I refuse their offering of gluten goodies and keep insisting I eat them.

Ha ha, thats funny ya, thats probably the worst... especially when people start saying you have wierd mental food disoroders behind ur back... :angry: that makes me angry... gbut they usually believe you eventually... I think...

What do you eat and stuff when you travel??? that must be fuuussterating..

yaaa...

[Guest lorlyn]

hey every1 try light tapipoca bread it taste like normal!!!!!!!

i no how u feel. i've had celiac for about a year. @ 1st i didnt want 2 eat the diet bcuz i new wut food w/ gluten in it tastes like & some gluten free stuf is

grosss!!!

wen i c sum1 has a pizza or a cinamon roll or even a pb&j sandwich i just wunt 2 go take a BIG bite out of it. its horible!!!

[Kara B.]

i wil hav 2 try that tapioca bread

[Phyllis28]

What do you eat and stuff when you travel??? that must be fuuussterating..

yaaa...

When I travel my goal is to eat most of my own food. I rent a room with a kitchen. The Marriott chain has TownPlace Suites and Residence Inns which both have kitchens.

If traveling by car, I bring all my food and necessary cooking equipment. I precook and freeze as much as I can to put in an ice chest. I buy perishables such as milk and fruit when I get to the destination. My family usually stays in one place for a week.

If traveling by air I bring along enough food for a meal and 1/2 in my carry on luggage. If I going to somewhere I have not been before I look online for stores that sell gluten free food by using the websites of the specialty gluten free companies. These companies usually have a store locater section. I call grocery stores that look promising and get their hours, some idea of selection and distance from my hotel. I always rent a car. I eat simply - examples are plain meat, cheese, raw vegetables, fruit, gluten free cereal, soft boiled eggs, milk, juice, yogurt, Hormel deli meats, gluten free bread and gluten free goodies I find that are not available at home. The following is a list of food I consider packing in my check-in suite case in a soft sided lunch box with blue ice:

Slices of homemade pizza - frozen

Homemade Salad dressing - leak proof container

Homemade chicken nuggets - frozen

Baked Potato - frozen

The blue ice and soft sided lunch box allow me to bring my lunch to work while I am on travel. I also make sure I have Plastic forks, spoons, knives, bowls and plates. Sometimes I bring them, other times I buy them when I get there.

I also try to locate safe gluten free restaurants in the area I stay in using the internet.

It takes bit of planning but this is what works for me. I know from reading the posts of other celiac travelers that other travel strategies are available.

[Kara B.]

When I travel my goal is to eat most of my own food. I rent a room with a kitchen. The Marriott chain has TownPlace Suites and Residence Inns which both have kitchens.

If traveling by car, I bring all my food and necessary cooking equipment. I precook and freeze as much as I can to put in an ice chest. I buy perishables such as milk and fruit when I get to the destination. My family usually stays in one place for a week.

If traveling by air I bring along enough food for a meal and 1/2 in my carry on luggage. If I going to somewhere I have not been before I look online for stores that sell gluten free food by using the websites of the specialty gluten free companies. These companies usually have a store locater section. I call grocery stores that look promising and get their hours, some idea of selection and distance from my hotel. I always rent a car. I eat simply - examples are plain meat, cheese, raw vegetables, fruit, gluten free cereal, soft boiled eggs, milk, juice, yogurt, Hormel deli meats, gluten free bread and gluten free goodies I find that are not available at home. The following is a list of food I consider packing in my check-in suite case in a soft sided lunch box with blue ice:

Slices of homemade pizza - frozen

Homemade Salad dressing - leak proof container

Homemade chicken nuggets - frozen

Baked Potato - frozen

The blue ice and soft sided lunch box allow me to bring my lunch to work while I am on travel. I also make sure I have Plastic forks, spoons, knives, bowls and plates. Sometimes I bring them, other times I buy them when I get there.

I also try to locate safe gluten free restaurants in the area I stay in using the internet.

It takes bit of planning but this is what works for me. I know from reading the posts of other celiac travelers that other travel strategies are available.

That sound like a lot of work and preparation. I will have to consider it sometime if I travel.

[darlindeb25]

I agree with Donna--celiac is the least of my problems now. Of course my problems are because of celiac disease to begin with.

[Viola 1]

I agree with Donna--celiac is the least of my problems now. Of course my problems are because of celiac disease to begin with.

Isn't that the truth!

[Carriefaith]

When I was diagnosed with celiac disease, I was actually thankful because I didn't have to take meds for life and it wasn't a terminal illness. There were a few times where I would get annoyed at food limitations. Now sometimes I wish celiac disease is all I had to worry about... I spend a lot of time worrying if something I'm eating is going to give me a severe allergic reaction.

[babygirl1234]

celiac disease can be very hard for me at times because i see something i used to like and say" i wish i could have that" LOL

[Guest lorlyn]

im sooooooo upset i want a cinnimon role!! i eat them im my dreams! lol but ill get

over it tell me wat temptats yall

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