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AmandaD

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AmandaD Community Regular
AmandaD
Posted

Hi guys. It's freezing her in Wisconsin. -2 F can you believe that? I'm cracking!

Anyways, I need a good lotion and before I was diagnosed I always used the Eucerin products like Aquaphor, etc...

They aren't open yet to call and I haven't seen anything on their site in their FAQ's.

Do you guys know if their products are gluten-free?

(For instance, right now I"m only using Cetaphil gentle cleanser because that's the only one that's gluten-free...)

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AmandaD Community Regular
AmandaD
Posted
  • Author

Hi - I'm just posting this again to see if anyone answers...?

ebrbetty Rising Star
ebrbetty
Posted

I've been using "avon moisture theraphy Intensive hand cream" I emailed them and was told its safe. Its amazing stuff, my hands get so bad they would bleed, now they're so soft. I order on line, its in a white tube, blue lettering 4.2 oz.

my hubby has rosacea, nothing the dr gave him helped, he used this on his face and it all went away in 2 days!!

hope this helps :D

AmandaD Community Regular
AmandaD
Posted
  • Author

FYI - I was told by Eucerin today that they can't guarantee any of their products are gluten-free (incl. aquaphor).

lorka150 Collaborator
lorka150
Posted

I highly recommend Burt's Bees Hand Salve! I also use Vaselin Intensive Therapy. I have very dry skin.

wowzer Community Regular
wowzer
Posted

I've been using ST.Ives Extreme Relief Intensive Healing Advanced Therapy Lotion. (Unscented . Hypo-Allergenic) It is one of the few lotions that feels soothing to me. Early I had posted a reply that I had received from St. Ives that listed all their products that contain gluten and this WAS NOT on that list.

wowzer Community Regular
wowzer
Posted

I've been using ST.Ives Extreme Relief Intensive Healing Advanced Therapy Lotion. (Unscented . Hypo-Allergenic) It is one of the few lotions that feels soothing to me. Early I had posted a reply that I had received from St. Ives that listed all their products that contain gluten and this WAS NOT on that list.

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runnerjen Apprentice
runnerjen
Posted

I use Udderly Smooth Udder Cream on my hands. It's gluten-free, it's thick, but isn't at all greasy. Open Original Shared Link

For my body, I use Amlactin, which used to only be available with a prescription. You can usually find it near the pharmacy, or you can ask for it. It is gluten-free as well as corn free :)

Open Original Shared Link

Guest KG in FL
Guest KG in FL
Posted

"(For instance, right now I"m only using Cetaphil gentle cleanser because that's the only one that's gluten-free...)"

Is this really the ONLY gluten free cleanser?

cajun celiac Rookie
cajun celiac
Posted

Why do we need to use gluten-fre body products? Gluten doesn't absorb through the skin does it? Is it just the risk of having it on your hands and therefore contaminating food? :huh:

jerseyangel Proficient
jerseyangel
Posted
"(For instance, right now I"m only using Cetaphil gentle cleanser because that's the only one that's gluten-free...)"

Is this really the ONLY gluten free cleanser?

No, perhaps she meant that the cleanser is the only *Cetaphil* product that is gluten-free. There are many gluten-free facial cleansers out there.

I use Zia Moisturizing Cleanser. It can be found at health food stores, Whole Foods and Wegman's Natural Marketplace.

There are also many other widely available brands.

ArtGirl Enthusiast
ArtGirl
Posted

I cook a lot, and wash my hands a lot, which doesn't help with dry skin. Rather than use hand lotion all the time, just to be quickly washed away, I keep a small container of a mixture of coconut oil and olive oil and use this generously while I'm in the kitchen. It's "food" so I feel I'm not contaminating my food with lotion ingredients (however safe) and is dirt cheap. It's nice on my lips, too.

When I'm not cooking, I use Savonnerie lotion www.gfsoap.com and Badger Balm (similar to Burt's Bee's balms). Both these products contain no gluten and no corn derivatives (which is usually in the vitamin E/C/A, etc.). Badger makes a lip balm, too, that's safe for those with corn allergies.

Open Original Shared Link

Felidae Enthusiast
Felidae
Posted
Why do we need to use gluten-fre body products? Gluten doesn't absorb through the skin does it? Is it just the risk of having it on your hands and therefore contaminating food? :huh:

You're right about gluten not being absorbed through the skin. I use gluten-free lotion because I'm always putting it on may hands and sometimes I'll put my finger in my mouth to bite off a hang nail....

It's just an extra precaution.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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