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Recovering From A Glutening

Mtndog

By Mtndog
in Coping with Celiac Disease

Recommended Posts

Mtndog Collaborator
Mtndog
Posted

I got glutened 10 days ago and I am still wretched. Normally, if I get cross-contaminated it's about 3-4 days of wretchedness but this is just going on and on and on and on........

I think I just want someone to tell me it's going to end :(

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gfp Enthusiast
gfp
Posted
I got glutened 10 days ago and I am still wretched. Normally, if I get cross-contaminated it's about 3-4 days of wretchedness but this is just going on and on and on and on........

I think I just want someone to tell me it's going to end :(

Well I can't do that....

For me its not a simple number of days.. but a gradual reduction in the frequency and severity of the symptoms.

From times Ive been in complete control Ive had batches of D after 4-5 weeks, of course it could be something else but I think we all get to know the feeling.

One thing helps me gauge is actually my casein sensitivity. When Im 100% gluten-free its really unnoticable but after an incident I can be casein intolerant for 4-5 weeks...

Lisa Mentor
Lisa
Posted

I've been going through something similar for a week now. I am revisiting all my personal products and making a few inquiries from companies for the new products that I have introduced.

With a one time gluten, it takes me about three days to feel better. I usually don't have digestive issues but more motor issues and a dry mouth is my first indicator. It is also very difficult to type as my fingers are all over the keyboard and shake terribly.

I suspect that it is the new face lotion that I have been using for over a week now.

Hope we both feel better soon.

jerseyangel Proficient
jerseyangel
Posted

Hi Bev, you poor thing :(

I used to take a week--week and a half to get over it. Even then, I didn't feel back to normal for a while.

Lately though, I get GI stuff for a day or two, but then neuro issues like anxiety, crabbyness, dry mouth, trouble talking and itchiness. The itchies and dry mouth can go on for days. :angry:

I'm still itching from over a week ago.

Guest cassidy
Guest cassidy
Posted

It takes me 3 weeks to feel 100% again. The longest D has lasted is one week. I usualy feel better and better but I get terrible heartburn that does last for 3 weeks. I sometimes wonder if I've been glutened again while I'm still getting over the first one but I really only get glutened every 4-5 months so I doubt that it would happen twice within a week. I am very careful so this is glutening from very small amounts.

Hope you feel better soon.

SchnauzerMom Rookie
SchnauzerMom
Posted

I hope you feel better soon!

It takes 3 or 4 days for me to get over the worst of a glutening. The last time happened about a month ago.

Mtndog Collaborator
Mtndog
Posted
  • Author

Thanks everyone! It makes me feel like I am somewhat in the spectrum of normal :P (whatever the heck that means). It's been 10 days and I actually was starting to wonder if I reglutened myself but I checked everything so I'm starting to suspect that those gluten-free breadcrumbs were REAL :angry:

I hope you feel better soon too Lisa.

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gfp Enthusiast
gfp
Posted
It takes me 3 weeks to feel 100% again. The longest D has lasted is one week. I usualy feel better and better but I get terrible heartburn that does last for 3 weeks. I sometimes wonder if I've been glutened again while I'm still getting over the first one but I really only get glutened every 4-5 months so I doubt that it would happen twice within a week. I am very careful so this is glutening from very small amounts.

Hope you feel better soon.

This is exactly what I used to think....

When I found out the average person has D 2-3 times a year maximum and even high risk groups like nursing mothers 4-5 max per year I started to realise it wasn't just something else giving me the runs.

When I have been in a position to do what I call 100% gluten-free where I don't eat any packets or tins or anything that can't be 100% guaranteed I started to realise the whole process for me goes in cycles... at first its D 2-3 times a day or more but after a week I could be fine for a week then get another epidode or two... then even 4-5 weeks later I can still get an odd unexplained bout...

before I realised this i used to confuse myself by thinking I had somehow been glutened...

flagbabyds Collaborator
flagbabyds
Posted

i always find that going lactose free for a while makes me feel better and doens't make the glutening worse. It is just liek when you are first diagnosed many people go lactose free for some time while their intestines heal and then they can go back on it. It just makes my glutening less intense and more bareable so i CAN go to school with lots of fenergen in my body so i don't start throwing up.

My glutenings usually last at least a week-2 weeks and sometimes more, but I can deal with them with fenergen every 4 hours and I am usually fine cause I can't manage to miss more school this year. :o

Mtndog Collaborator
Mtndog
Posted
  • Author
i always find that going lactose free for a while makes me feel better and doens't make the glutening worse. It is just liek when you are first diagnosed many people go lactose free for some time while their intestines heal and then they can go back on it. It just makes my glutening less intense and more bareable so i CAN go to school with lots of fenergen in my body so i don't start throwing up.

My glutenings usually last at least a week-2 weeks and sometimes more, but I can deal with them with fenergen every 4 hours and I am usually fine cause I can't manage to miss more school this year. :o

That is a very good point! I take phenergan when glutened too Molly! It really works but it makes me pretty dopey (not that I'm not dopey anyway) :P . I took some last night and feel better today. It's nice to know I'm not the only one.

key Contributor
key
Posted

Have you two tried Zofran for gluttening. My doctor gave it to me for my colonoscopy so I wouldn't throw up with the prep. It worked great and I had no side effects, such as drowsiness.

Monica

Oh, first question. I haven't really been able to tell how long my gluttenings last, but before my bowel habits return to normal it is about 3 days. The idea of not eating dairy for awhile afterwards is great. I am going to try this one next time. My GI doctor just recently gave me some antispasmodics for when this happens too, so I hope that works. I had a bad gluttening right at Christmas and twice in one week! I thought I was going to have to go to the ER. I hope I never get that bad off again. It started me on a bad road. I lost like 6 pounds. Tried Nexium and that made me even sicker, which took me six weeks to figure out that I couldn't digest my food while taking that stuff. I think it is poison to my body.

I hope you feel better.

Monica

hez Enthusiast
hez
Posted

I have been sick since before Christmas. I now have a doctor appointment at the end of this month. I just can't take feeling this bad all the time.

Usually, it takes me a full month to feel back up to 100%. However, I have had what I think might be slight cc and the "d" lastet a couple of days.

I really wish I knew what made me so sick! It was not anything obviously gluten. I do not eat gluten. I will not eat it here or there I will not eat it anywhere! Can you tell I have been reading Green Eggs and Ham :rolleyes:

I have rechecked everything and even put myself on a bland diet. I have not noticed a difference.

It sounds like you are in the normal range for feeling like crap.

I hope you feel better soon Bev.

Hez

blueeyedmanda Community Regular
blueeyedmanda
Posted

I would say 1-3 days for me, when it comes to "D" some of my other less bothersome symptoms can last longer but the "D" is the one that slows me down and it is by far the most annoying one to try and go to work or live a life with.

darlindeb25 Collaborator
darlindeb25
Posted

It takes me 3 or 4 days to get pass the intial symptoms and then 3 weeks to recover.

  • 3 weeks later...
Mtndog Collaborator
Mtndog
Posted
  • Author
I do not eat gluten. I will not eat it here or there I will not eat it anywhere! Can you tell I have been reading Green Eggs and Ham :rolleyes:

Hez

Omg- I love that. :lol:

CMCM Rising Star
CMCM
Posted

I just had to comment on this. I've noticed the exact same thing with gluten and casein! I always thought I was so terribly dairy intolerant (hence casein intolerant, since I tested that way, and perhaps lactose was a problem too). But now that I'm being 100% gluten free, the dairy problems are gone. :P

Well I can't do that....

For me its not a simple number of days.. but a gradual reduction in the frequency and severity of the symptoms.

From times Ive been in complete control Ive had batches of D after 4-5 weeks, of course it could be something else but I think we all get to know the feeling.

One thing helps me gauge is actually my casein sensitivity. When Im 100% gluten-free its really unnoticable but after an incident I can be casein intolerant for 4-5 weeks...

oceangirl Collaborator
oceangirl
Posted
I just had to comment on this. I've noticed the exact same thing with gluten and casein! I always thought I was so terribly dairy intolerant (hence casein intolerant, since I tested that way, and perhaps lactose was a problem too). But now that I'm being 100% gluten free, the dairy problems are gone. :P

Bev and Lisa,

Sorry you are unwell and I hope you are better soon. I am going on 3 weeks of feeling "glutened" after doing very well (for the most part) for awhile. In fact it's a year ago I was being scheduled for endoscopy and colonoscopy. I feel quite miserable and can't find the culprit- I don't know what to eat anymore! How long can you last on bananas and rice? I am starting to think, dread, that I have something else wrong but I'm so sick of going to doctors! Anyway, in the past 9 months, getting over a glutening took approximately a week and a little more for me.

Feel better soon,

lisa

Mtndog Collaborator
Mtndog
Posted
  • Author
Bev and Lisa,

Sorry you are unwell and I hope you are better soon. I am going on 3 weeks of feeling "glutened" after doing very well (for the most part) for awhile. In fact it's a year ago I was being scheduled for endoscopy and colonoscopy. I feel quite miserable and can't find the culprit- I don't know what to eat anymore! How long can you last on bananas and rice? I am starting to think, dread, that I have something else wrong but I'm so sick of going to doctors! Anyway, in the past 9 months, getting over a glutening took approximately a week and a little more for me.

Feel better soon,

lisa

I hear you!!!!!!!!! I actually called my GI but can't get in until late March. I think the last week it's been stomach flu. I said this in another post..it's amazing how the symptoms are the same bur FEEL entirely different. Different kind of headache, different kind of nausea, etc. I hope you feel better too!

mellajane Explorer
mellajane
Posted

I as well get sick for 5 to 7 days sometimes. It is so rough hang in there it will be over soon... I dont know if this helps but when i get sick i take a lot of baths and just let the water run on my stomach... Its very relaxing and usually helps me sleep...Good luck it will be over soon!

eleep Enthusiast
eleep
Posted

When I got glutened in October, it took three weeks for the emotional, flu-ish, brainfoggy and digestive issues to subside. Since then, I've finished up a course of acupuncture treatment and I just got glutened last week -- it took about six days for all that stuff to fade away, so I think the acupuncture has helped my body rally to the cause better.

Tash-n-tail Rookie
Tash-n-tail
Posted

My experiences tend to cycle and have a correlation on my immediate reaction or dealing with the gluttening.

On a "good" cycle, 3 to 4 days of misery. A "bad" cycle and I'm out for four weeks and another two to recover and move again. :blink: The main reason that I take all this so seriously and strive to be disciplined.

Get better soon!

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      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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