Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Calling For A Prayer For My Sister!


blueeyedmanda

Recommended Posts

blueeyedmanda Community Regular

Today when I got home from work, I got a call from my mom, my sister who is 20, had been up all night with bad "D" and ended up with a Dr's appointment this morning. At the Dr her blood pressure bottomed out and she passed out. She was rushed to the hospital and she is dehydrated.

I was just informed she has a Gastro Infection and has other tests pending.

I am worried, she has been healthy and never really sick now she is in the hospital and can barely breathe!!

Please send a little prayer her way. She is scared and I wish i could be there with her but she is over 2 and 1/2 hrs away.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

I hope that she is okay....you must be so worried! But, the good thing is that she is getting the care she needs. Please keep us updated to let us know.

She will be in my prayers.

Viola 1 Rookie

That is so scary for you and the rest of the family. I'm sending prayers her way.

Keep us up to date.

Lisa Mentor

Good wishes and thoughts her way.

Guhlia Rising Star

Amanda, that's horrible! I will keep her in my prayers. Please let us know how things go over the next few days. Hopefully they'll have some answers relatively quickly so you and and your family aren't in the dark for long. Let me know if you need anything. I'm not too far away if you need help. Anything, just let me know.

blueeyedmanda Community Regular

Thanks Everyone!

Angie-You are wonderful. I am glad you are so close. You are a great friend.

Right now she is resting, and my parents have left her. She is in a small hospital up in NEPA. She was in a room with an elderly person who was not doing too well, but they moved her into her own room, I am hoping so not to tramatize her. She has never been in a hospital.

I am a little angry, they waited until after 8 to give her an IV, she was so thirsty and hadn't had a thing, her Dr had ordered an IV at 12 when she went to the hospital, but for some reason it didn't get put in till 8 :blink: Poor girl! Hopefully she will get some sleep.

My poor mom, had to watch her daughter gasp for air and pass out a few times. I wish I could be there with them.

mouse Enthusiast

My thoughts and prayers are with your sister. Hopefully you will have some answers soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

Your poor mother... I can't even imagine what that would be like watching your daughter suffer like that. It's ridiculous it took them that long to follow doctor's orders, especially since she was dehydrated. Hopefully that won't cause any setbacks in her recovery. Do they have any clue yet what is going on? I'm assuming she's being admitted over night, right? Does she have a boyfriend/husband/best friend who will be able to spend time with her while she's in the hospital? That always helped me. When I was in the hospital getting diagnosed with Celiac I was so sick I thought I was going to die and the only thing that brightened my day was my husband coming in and getting flowers from friends. I was in for a week. Hopefully your poor sister won't be in nearly that long. I hope they figure things out right away.

Will you be able to get out there this weekend if she's still sick or do you work this weekend?

Canadian Karen Community Regular
Today when I got home from work, I got a call from my mom, my sister who is 20, had been up all night with bad "D" and ended up with a Dr's appointment this morning. At the Dr her blood pressure bottomed out and she passed out. She was rushed to the hospital and she is dehydrated.

I was just informed she has a Gastro Infection and has other tests pending.

I am worried, she has been healthy and never really sick now she is in the hospital and can barely breathe!!

Please send a little prayer her way. She is scared and I wish i could be there with her but she is over 2 and 1/2 hrs away.

That is absolutely negligent that she had to wait that long for an IV when she was dehydrated!

I remember when Eileen (my oldest dd, who is now 13) was 8 years old, she got sick in the morning, was sick both ends every 10 minutes all day long, and by 7 pm, her eyes sunk right in her face and she looked "off"...... I rushed her up to the after hours clinic and they took one look at her and rushed her next door to the hospital and she had an IV in her arm 2 minutes after arrival. She ended up being in the hospital for 1 week. It was a very nasty case of rotavirus......

Sending prayers and positive thoughts your sister's way!

Hugs.

Karen

blueeyedmanda Community Regular

I am hoping to get there this weekend, I dont work but with the IVF I have to go into clinic on certain mornings. I was supposed to go this past weekend...but with the interstates being closed I was stuck here, I-81 is the main way there.

No one is allowed to stay overnight, but her boyfriend was there up until they chased him out. At Hershey they allow people to stay overnight. I don't do well in hospitals (yet I work there which is odd) While I was in same day surgery and had complications in Sept, I had to stay overnight and having John there helped so much.

She might be there a few days. I personally think she should be in a better hospital, I am not knocking on small hospitals. I have a great community hospital down the street, I prefer it over my own hospital. No crowds so you get better attention. This hospital she is at, is not a place where there are ever young people. It is most for elderly residents in the area, they have not delivered babies there in years, no PEDS area, no young adults area. The ER has two beds. I think she has a better shot at a quicker recovery in Scranton. There is a little more advancement and if they get a diagnosis quicker, she will be on the mend sooner.

John and I are sending flowers in the morning.

My coworker who I share space with is also sick with a mystery stomach illness..... :unsure: I tried calling her tonight and her husband said she came home from work and went right to bed and has not been up since. She looked horrible all day, complained of stomach pain, body aches, chills, and she looked flushed. She had no energy, no appetite. Strangely my mom said my sister had been complaining about these things on and off for a few days. Yet last night, my mom saw my sister around 8 when she dropped by after her basketball game. My said she seemed fine. They ate some dinner. Now she is in the hospital. My thought food poisioning at first but now she is unsure too.

Well, I guess I will just go lie down and catch everyone up in the morning.

Thank You again :):):):)

lonewolf Collaborator

I hope your sister is doing better. I've sent up a few prayers for her.

Guhlia Rising Star

Any chance she ate any contaminated peanut butter??? Or that she also has Celiac on top of the infection???

blueeyedmanda Community Regular

She only eats JIF, and thats on occasion, she is not a big Peanut Butter fan. As for celiac, my sisters never showed signs of being sick, but they were also both adopted so they don't carry the same genes as my parents. We all do look very much alike though.

I haven't been able to get a hold of her yet this morning, I am hoping she is still sleeping. I am at work now and I am going to buy her some flowers to get delivered to my moms house and then my mom can take them to her.

jerseyangel Proficient

Hi Amanda,

I'm just seeing this--I truly hope that by now your sister is improving and more comfortable.

I'm so sorry for all your family is having to go through--it's a very scary thing. I will keep your sister, as well as your family in my prayers. :)

jkmunchkin Rising Star

Amanda,

I will absolutely be thinking of your sister. Please keep us all posted on her recovery.

xoxo

blueeyedmanda Community Regular

Another update.

She is still in the hospital, will not come home today as she had hoped. (she really wants a shower) She is very contagious, my mom is not good with medical jargon so she forgot the name. I believe it is Rotavirus. Carrie feels better, but because I am going through IVF and my other sister is pregnant they suggest we stay away for a few days until antibotics start working.

She did love the flowers I sent, it was a boutique of daisies. She sounded a little more energetic, but not as much as she nearly is and not as drugged up as when I spoke with her last night.

Thank you all for your support. I will keep everyone posted. :):)

Guhlia Rising Star

Wow, it sounds like she's doing much better then. That's great news. Hopefully she'll be able to come home tomorrow and get her long awaited shower. I was really worried for you guys. Tori had rotavirus last year and she was soooooooooooo sick so I can definitely sympathize. We thought we were going to have to hospitalize her for it. It's definitely not a fun thing. Ugh...

Yenni Enthusiast

I am glad she is doing better. I'll send of some good thoughts her way.

jerseyangel Proficient

I'm so glad to hear she's doing better!

Rotavirus is a nasty little bugger :angry: --my older son had it. But he got over it just fine, and so will your sister. Sounds like the worst is behind her. Bet that shower will feel like the best one she's ever had :D

Thanks for the update :)

Fiddle-Faddle Community Regular

Am sending good thoughts and prayers.

A quick word of advice--ask the admitting physician or whoever is the physician to waive the policy that doesn't allow people to stay overnight in her room, and cite the fact that the IV he ordered at noon wasn't put in until 8. Your sister needs an advocate to be with her 24 hours a day. In some ways, small hospitals can be better than big inner city ones, but the nurses are still overworked, and the mistakes are made far more often than anyone will admit.

If they don't waive the policy, call your health insurance company and raise holy heck until something changes. Tell the ins. co. about the fact that the IV ordered at noon didn't get put in for 8 hours, and that your sister's life was in jeopardy.

Whatever you do, do NOT leave your sister alone.

Viola 1 Rookie

I'm so glad she is doing better now! She will really appreciate being home again for sure.

Is rotovirus something similiar to the Norwalk (sp) virus? It does sound like it.

  • 3 weeks later...
Guhlia Rising Star

Amanda, I'm assuming your sister is fine by now, but I just wanted to check in and make sure.

blueeyedmanda Community Regular

Angie,

I am so sorry, with the whole IVF surgery I forgot to update everyone. She has been home and although looking better and overall feeling better, she still has "D" So my mom keeps making her drink pedialyte to keep her body in balance. she has been back in school, she started her internship. I have not personally seen her, but from talking to her she seemed much better.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748

    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.