Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I've Finally Broken Through!


elye

Recommended Posts

elye Community Regular

How exciting...

I have written the Globe and Mail (the big Canadian national newspaper) health editor, twice, and our local paper, twice, about celiac disease and all the compelling things that we all know: the surprising incidence of the disease, the myriad of symptoms, the eventual scary consequences if it is not addressed, etc. I also have written to two local radio show personalities with the same info and a request to feature it on one of their shows. Well, no surprise...I heard nothing from anybody. Well, I wrote a letter to our Ottawa Citizen yet again yesterday, responding to an article that appeared a couple of days ago that spoke about our modern world of gluttony, and how so many of us are willing to put up with the gastrointestinal distress that comes with too much food in exchange for overindulging in excessive processed food. I jumped on this, and wrote in about how for countless numbers of unsuspecting people, the diarrhea, constipation, cramps, etc. may not have anything to do with HOW MUCH one has eaten but WHAT one has eaten: gluten. I continue from there. And they are publishing it. I am SO happy. So anyone in the Ottawa area, check the Citizen out Saturday or Sunday, the letters section. It can also be read online. Gotta start with a small audience, and hopefully it can grow!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Generic Apprentice

That's great! I find the squeaky wheel aproach works pretty well.

Jestgar Rising Star

WOOOHOOO!!!! Good for you!

RiceGuy Collaborator

Fantastic!!

On behalf of all Celiacs, a big Thank You seems most fitting. I hope it open the eyes of many readers.

MurrayM Rookie

This is me giving you a great big pat on the back!!!

When your letter gets put on the papers website, could you post a link to it on this thread? I'd love to read it.

Murray

elye Community Regular

Yep, sure thing. Should be tomorrow, which is great because Saturday is their BIG distribution day. I'm hoping there will in turn be written responses to my letter, and one big snowball.... :)

darlindeb25 Collaborator

I found this in another forum and will be taking it to our local news station. They did a segment on celiac disease a month or so ago and I am hoping they will pick up on this and follow through:

Public Service Announcement: Spreading Celiac Awareness Nationwide

Celiac Disease...If you


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elye Community Regular

Wow, Deb, that is fantastic...I'm on it!

Mtndog Collaborator

That is awesome!!!!!!!!!!!!!!!!!!

Viola 1 Rookie

Congratulations on getting published! That's fantastic! Good for you for being so persistant. :D

Thanks Deb for all that information.

elye Community Regular

Okay! Almost a week later, but it's finally appeared:

Open Original Shared Link

wowzer Community Regular

Great article Emily. I live in the USA, but was born in Canada. My little sister was diagnosed with celiac at a year old. The more I'm reading about celiac, the more of my symptoms fit. My blood test came out negative. A lot of my symptoms fit DH. I have had so many different rashes that were called anything from poison ivy to impetigo. I have been taking synthroid for over 10 years. My immune system has been out of whack for a long time. I finally went gluten free the beginning of the year. I have had many improvements since doing this. I'm 52 years old. I still am in the learning process, but have found I'm much more sensitive to gluten. Wendy

Ursa Major Collaborator

Excellent article, Emily. I e-mailed it to my oldest daughter in Kanata, she may find it interesting.

ArtGirl Enthusiast

Well written article, Emily. What a great thing that they published it. This may lead the way for more articles.

Great job.

elye Community Regular

This is so great...you cannot imagine the number of people who have come up to me today and said, "Wow! Saw your article...great stuff! So, you have this illness. You know, I'm suspecting that (fill in "I", or "my daughter", or "my mother", as they varied from person to person) may have this, too." And that's the only in I needed. It will be interesting to see if the letter has any written responses. The one thing I now regret not mentioning in the article (it's tough, because you only have a maximum of three hundred words) is the eventual consequences if the condition is not addressed. Hopefully those who suspect will go to their GP, who will tell them. Or the GI that they hopefully get a referral to...

Mtndog Collaborator

YEAH- THAT is great!!!!!!!!!!!!!!!!!!

Viola 1 Rookie

Super job Emily!! You've done us all proud!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Rectal pain

    2. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Guinness, can you drink it?

    3. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      6

      Related issues

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Brain fog

    5. - Clear2me replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Gluten free nuts


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,274
    • Most Online (within 30 mins)
      7,748

    Alea sargent
    Newest Member
    Alea sargent
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • cristiana
      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this.  I am not a medical person but it seemed like the extra pressure down there perhaps added pressure to already sensitised pelvic and rectal muscles. Coeliacs can suffer from bloating when they are first diagnosed due to the inability to digest food properly.  Lactose for me caused a lot of bloating and when I came off it temporarily after diagnosis it helped reduce bloating.  Iron supplements and the timing of taking them also caused discomfort and I had to experiment a bit with type and timing before my gut felt comfortable.   Maybe something to think about?   Some coeliacs suffer from constipation - again, just a thought, but perhaps if you had issues with that it might be a contributor.
    • Rogol72
      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    • Mari
      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer  support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead are offering supplements for your symptoms. This has helped you but you are not able to work very much.  The Programs I have seen  online usually have 3 parts. The first is a Parasite cleanse. The 2nd is the Kidney cleanse and the  3rd is a Liver cleanse and gallbladder cleanse. You need to doall these cleanses to have your whole body functioning well. I can only reccommend the program I gave you because that is the one I used and still do. (drclark.net)  When I see a newprovider and tell I have Celiacs and they look skeptical I tell them that when I am gluttoned the reaction happens 8 or more hours later with intestinal painful cramping followed by diarrhea. Providers are willing to accept tha I probably have Celiacs and are more likely order tests such as vitamin levels. Is this what happens if you eat only a small amount of Gluten? You mentioned going to Mayors. 20 years ago many Dr.s wanted to include a celiac screening as a standard test so that more people eould diagnosed and not become disabled. It did not happen but the Federal levgislature did pass a law so that Celiacs could claim deductions for the gluten free food they bought. What were you going to ask the Mayors to do?
    • Colleen H
      How bad can this get ?? Does it go away??  How long ? Thank you 
    • Clear2me
      Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat.  I am going to keep checking. Thank you. The Azure Market looks promising 😁 Take care S
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.