Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Update - Promising Signs?


DownWithGluten

Recommended Posts

DownWithGluten Explorer

Hello again. Just as a quick recap (you can skip this if you want to get to the point ;) ) ...Since as far back as I can remember, I've had stomach annoyances. Then, appendix out in 5th grade. Along with that, the discovery of hypothyroidism/Hashimoto's. Then...around 10th grade (uh...15 years old) it all took a turn for the worse. I had one of those "attacks" from eating greasy food. Violent, wretched pain only relieved by a "BM". And it stayed. Turned into cycles of "C", then that massive attack, then C, then attack....etc. Sometimes, the attacks came just from greasiness. Went to doctors around at around age 18-19...said it was IBS. Gave me Zelenorm which made me bleed so I stopped. Tried various other doctors. Oh, I should say - I was blood tested for Celiac's, and it came up negative. No biopsy though. Then I tried flagyl...yeah nothing working.

So this January I just gave up and decided to try the gluten-free thing. I was getting to the point where I could not envision wanting to live the rest of my life with that sort of cycle of pain. Since January 8, I've been doing it.

It's probably too early to tell, but here's what I've noticed.

- I haven't had a pain-BM-attack since then. Sometimes they didn't come for 3 months though. But...mid January, I was horrificly stressed about something. And when I get stressed, it goes STRAIGHT to my stomach. Like someone pressing a button that releases liquid stress into my system. And - to my shock - it did NOT cause one of those 'attacks.' Those attacks used to come even with SLIGHT stress before (stress, grease, or just after every 3-5 weeks). And this thing was constant releasing of those stress-hormones for a good 5 days straight. So I was 100% expecting to have an 'attack.' But, it didn't happen. Nor the next week, or the next...etc This encourages me for sure.

I haven't even felt that tinge of snaking pain that usually harkens an attack but once or twice in these past months.

Then...within the first two weeks, my C shot up really bad. Now I'm taking Triphila and watching my dairy and rice intake, and it seems to be regulating. But some people on here said how that could be a sign that I do have celiac/gluten-intolerence, if gluten was the thing pushing me along! (albeit painfully!)

Then - guess what? An aunt of mine was diagnosed with Celiac's. Suprising everyone.

Lastly - I've 'suffered' from (mild enough, but still there) acne for the past 10 years. When I discovered the magic of facial foundation back in high school, I never left the house without it on my face. Then, in spite of myself - these past 2 days, I didn't even put it on! Because my face was 'clear' enough for my approval! That's a definite first in 10 years.

So...are these things just coincidences, or might it point that being gluten-free IS really helping me? And maybe that gluten was causing the problems before?

On the other hand - I'm also a rather irritable and uncheery sort of person. In the sense that, it actually seems to take effort for me to be happy, and then when I am, it usually doesn't last very long lol(if that makes sense.). Despite whether there's something bad going on or not in my life. And I am tired almost all of the time. I haven't noticed a change in any of those things, for what it's worth, and I know depression can be a symptom or effect or whatever of Celiac's. Which is why I mention it. ...but maybe I just need to be patient there... ;)

I think I'm encouraged. The restaruant - social-life - aspect of this gluten-free thing has been somewhat troubling and saddening...but, to think that this COULD actually be "it"...I am glad for that.

This thing turned out to be really long, lol. Sorry.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouse Enthusiast

I am glad that you have noticed such a change. I would definately stay gluten-free, especially since your aunt was diagnosed with Celiac. You can have a false negative on the blood test, but not a false positive. The diet sometimes is the answer for Celiac disease or gluten intolerant.

Keep up the good work and the changes will keep coming. Each of us heals at different rates.

Tritty Rookie

I'm so glad you're feeling better :)

How can you have a cheery attitude when you're having to live life like that!!

I noticed everything else getting better first - and now my attitude (now that I feel healthy) just in the last few days is coming with it :) So keep positive - it'll come!!

DownWithGluten Explorer

Thanks for the encouragement, Tritty and mouse! It was weird about my aunt being diagnosed. To our knowledge, before all this, "no one" had Celiac in our family. (But it's not like they were ever tested, either.) I know my mom's aunt has a daughter with Crohn's...but that's it. But then recently my doctor thought my aunt needed to be tested, and they found Celiac in her.

And Tritty, glad to hear your mood has started to improve, lol! And as for "How can you have a cheery attitude when you're having to live life like that!!" I know, exactly. Tell that to the rest of the world! ;)

DebbieInCanada Rookie

I think those all sound like promising improvements. Given the length and seriousness of your illnesses, it could take a while for your body to heal.

I think staying gluten free certainly won't hurt anything, so keeping with it for a few more months should definitely give you an indication of whether things are continuing to improve.

I found my bad moods where both related to just feeling so tired and crappy for long periods of time, as well as definely chemical imbalance from the gluten/corn itself. Once I got all of that out of my system and felt better physically, things improved drastically.

Hope things stay on the upswing for you!

Debbie

JNBunnie1 Community Regular

Hi Aura, I agree with everyone, those are very promising signs of improvement. I actually took almost a year of healing until my mood started to really elevate. I also had a few setbacks, like breaking up with my boyfriend and my Dad contracting leukemia, so I think I would have been 'happier' sooner if all that hadnt happened. But you actually sound pretty darn well adjusted, so if you're not feeling 'happy' I suggest happy food, which isn't what you probably think it is. Eat lots of fat! Get as much avocado, coconut oil (unrefined, try Spectrum essentials), nuts (esp almonds), and ORGANIC, preferably free-range/grass-fed meat into you as possible. I actually really like diced avocado w/scrambled eggs & salsa. And as long as the chicken is organic, make roasted legs and try to eat the skin. Find a butter that says grass fed on it (it should be VERY yellow) and use that a lot on gluten-free toast and to cook your veggies and eggs with. All these fats will heal your body and give you brain food. The cells in your brain are actually lined with lipids, cholesterol. You just need it in digestible form, instead of the poisonous stuff, like McD's. Oh, and organic, plain yogurt. Stonyfield is a good place to start, but their milk isnt grass fed so it has a high sugar content, if theres a health store near you try Seven Stars Farms, it tastes a little bitter, I add applesauce!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,540
    • Most Online (within 30 mins)
      7,748

    Nina J
    Newest Member
    Nina J
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.