Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Update - Promising Signs?


DownWithGluten

Recommended Posts

DownWithGluten Explorer

Hello again. Just as a quick recap (you can skip this if you want to get to the point ;) ) ...Since as far back as I can remember, I've had stomach annoyances. Then, appendix out in 5th grade. Along with that, the discovery of hypothyroidism/Hashimoto's. Then...around 10th grade (uh...15 years old) it all took a turn for the worse. I had one of those "attacks" from eating greasy food. Violent, wretched pain only relieved by a "BM". And it stayed. Turned into cycles of "C", then that massive attack, then C, then attack....etc. Sometimes, the attacks came just from greasiness. Went to doctors around at around age 18-19...said it was IBS. Gave me Zelenorm which made me bleed so I stopped. Tried various other doctors. Oh, I should say - I was blood tested for Celiac's, and it came up negative. No biopsy though. Then I tried flagyl...yeah nothing working.

So this January I just gave up and decided to try the gluten-free thing. I was getting to the point where I could not envision wanting to live the rest of my life with that sort of cycle of pain. Since January 8, I've been doing it.

It's probably too early to tell, but here's what I've noticed.

- I haven't had a pain-BM-attack since then. Sometimes they didn't come for 3 months though. But...mid January, I was horrificly stressed about something. And when I get stressed, it goes STRAIGHT to my stomach. Like someone pressing a button that releases liquid stress into my system. And - to my shock - it did NOT cause one of those 'attacks.' Those attacks used to come even with SLIGHT stress before (stress, grease, or just after every 3-5 weeks). And this thing was constant releasing of those stress-hormones for a good 5 days straight. So I was 100% expecting to have an 'attack.' But, it didn't happen. Nor the next week, or the next...etc This encourages me for sure.

I haven't even felt that tinge of snaking pain that usually harkens an attack but once or twice in these past months.

Then...within the first two weeks, my C shot up really bad. Now I'm taking Triphila and watching my dairy and rice intake, and it seems to be regulating. But some people on here said how that could be a sign that I do have celiac/gluten-intolerence, if gluten was the thing pushing me along! (albeit painfully!)

Then - guess what? An aunt of mine was diagnosed with Celiac's. Suprising everyone.

Lastly - I've 'suffered' from (mild enough, but still there) acne for the past 10 years. When I discovered the magic of facial foundation back in high school, I never left the house without it on my face. Then, in spite of myself - these past 2 days, I didn't even put it on! Because my face was 'clear' enough for my approval! That's a definite first in 10 years.

So...are these things just coincidences, or might it point that being gluten-free IS really helping me? And maybe that gluten was causing the problems before?

On the other hand - I'm also a rather irritable and uncheery sort of person. In the sense that, it actually seems to take effort for me to be happy, and then when I am, it usually doesn't last very long lol(if that makes sense.). Despite whether there's something bad going on or not in my life. And I am tired almost all of the time. I haven't noticed a change in any of those things, for what it's worth, and I know depression can be a symptom or effect or whatever of Celiac's. Which is why I mention it. ...but maybe I just need to be patient there... ;)

I think I'm encouraged. The restaruant - social-life - aspect of this gluten-free thing has been somewhat troubling and saddening...but, to think that this COULD actually be "it"...I am glad for that.

This thing turned out to be really long, lol. Sorry.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouse Enthusiast

I am glad that you have noticed such a change. I would definately stay gluten-free, especially since your aunt was diagnosed with Celiac. You can have a false negative on the blood test, but not a false positive. The diet sometimes is the answer for Celiac disease or gluten intolerant.

Keep up the good work and the changes will keep coming. Each of us heals at different rates.

Tritty Rookie

I'm so glad you're feeling better :)

How can you have a cheery attitude when you're having to live life like that!!

I noticed everything else getting better first - and now my attitude (now that I feel healthy) just in the last few days is coming with it :) So keep positive - it'll come!!

DownWithGluten Explorer

Thanks for the encouragement, Tritty and mouse! It was weird about my aunt being diagnosed. To our knowledge, before all this, "no one" had Celiac in our family. (But it's not like they were ever tested, either.) I know my mom's aunt has a daughter with Crohn's...but that's it. But then recently my doctor thought my aunt needed to be tested, and they found Celiac in her.

And Tritty, glad to hear your mood has started to improve, lol! And as for "How can you have a cheery attitude when you're having to live life like that!!" I know, exactly. Tell that to the rest of the world! ;)

DebbieInCanada Rookie

I think those all sound like promising improvements. Given the length and seriousness of your illnesses, it could take a while for your body to heal.

I think staying gluten free certainly won't hurt anything, so keeping with it for a few more months should definitely give you an indication of whether things are continuing to improve.

I found my bad moods where both related to just feeling so tired and crappy for long periods of time, as well as definely chemical imbalance from the gluten/corn itself. Once I got all of that out of my system and felt better physically, things improved drastically.

Hope things stay on the upswing for you!

Debbie

JNBunnie1 Community Regular

Hi Aura, I agree with everyone, those are very promising signs of improvement. I actually took almost a year of healing until my mood started to really elevate. I also had a few setbacks, like breaking up with my boyfriend and my Dad contracting leukemia, so I think I would have been 'happier' sooner if all that hadnt happened. But you actually sound pretty darn well adjusted, so if you're not feeling 'happy' I suggest happy food, which isn't what you probably think it is. Eat lots of fat! Get as much avocado, coconut oil (unrefined, try Spectrum essentials), nuts (esp almonds), and ORGANIC, preferably free-range/grass-fed meat into you as possible. I actually really like diced avocado w/scrambled eggs & salsa. And as long as the chicken is organic, make roasted legs and try to eat the skin. Find a butter that says grass fed on it (it should be VERY yellow) and use that a lot on gluten-free toast and to cook your veggies and eggs with. All these fats will heal your body and give you brain food. The cells in your brain are actually lined with lipids, cholesterol. You just need it in digestible form, instead of the poisonous stuff, like McD's. Oh, and organic, plain yogurt. Stonyfield is a good place to start, but their milk isnt grass fed so it has a high sugar content, if theres a health store near you try Seven Stars Farms, it tastes a little bitter, I add applesauce!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ElenaM posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      I think I am gluten intolerant

    2. - JulieRe replied to JulieRe's topic in Related Issues & Disorders
      6

      Oral thrush question

    3. - Ceekay replied to slkrav's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Gluten free beer ?

    4. - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      6

      Oral thrush question

    5. - Scott Adams replied to oscarbolduc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Advice while waiting for testing


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748

    catsrlife
    Newest Member
    catsrlife
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ElenaM
      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of these after I eat gluten. Could I have non celiac gluten sensitivity? Thanks anyone else with these symptoms?
    • JulieRe
      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
    • Scott Adams
      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.