Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ok, Ok, I Learned My Lesson...


SunnyDyRain

Recommended Posts

SunnyDyRain Enthusiast

I learned a very good lesson today..

Before I eat ANYTHING, Check Celiac.com

I decided to try some activa yogurt to help regulate my digestive system, I read the ingredients... no obvious gluten. This morning as i was eating it at my computer I decided to just do a search for it on the site. BAM! Apparently it has hidden gluten you only find out about if you call them. I only ate half the container, but am paying for it :(

Damn hidden gluten!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
I learned a very good lesson today..

Before I eat ANYTHING, Check Celiac.com

I decided to try some activa yogurt to help regulate my digestive system, I read the ingredients... no obvious gluten. This morning as i was eating it at my computer I decided to just do a search for it on the site. BAM! Apparently it has hidden gluten you only find out about if you call them. I only ate half the container, but am paying for it :(

Damn hidden gluten!

What was the source of the hidden gluten?

SunnyDyRain Enthusiast
What was the source of the hidden gluten?

Apparently "Natural Flavors" - using distilled grain alchohol to get flavors from the fruit.

the post I found: Open Original Shared Link

Nantzie Collaborator

Ugh. That sucks. Why can't they keep their gluteny fingers out of our dang food. Bah!

:angry:

Nancy

SunnyDyRain Enthusiast
Ugh. That sucks. Why can't they keep their gluteny fingers out of our dang food. Bah!

:angry:

Nancy

Why can't they just put "Contains Gluten" in fine print somewhere?

I hate that I have to call and ASK or look it all up! I just wanted some yogurt!

:angry:

miles2go Contributor

This one is easy!

Stonyfield Organic plain in the 32 oz. containers in the winter, add your own yummies and save a couple of tablespoons to make your own from milk later (saving about half the cost if using organic milk) and then in the spring/summer/fall buy from your local farmer's market the sheep/cow/goat yogurt that they make.

Pure heaven!

Margaret

lcbannon Apprentice

AAACKK guess what I have been having every morning??? Activia

shoot shoot shoot

Thanks so much for posting this. I assume the Vanilla has it too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lcbannon Apprentice

Ok, :unsure: I just read entire thread and I think I am more confused.

Activia prob does not have gluten per se because it is distilled, HOWEVER that still makes some people sick.

Is this a correct interprutation??

Thanks

Mango04 Enthusiast
Apparently "Natural Flavors" - using distilled grain alchohol to get flavors from the fruit.

the post I found: Open Original Shared Link

I really do think this is a case of the company being overly cautious. Distilled grain alcohol should not be a problem from a gluten perspective. Distilled alcohols and distilled vinegars are considered safe. That's not to say there isn't another source of gluten that they're not disclosing.

Lisa Mentor

I would recommend that you contact the company directly and ask about their gluten free status, instead of relaying on others experience. That is always a wise option.

larry mac Enthusiast
Apparently "Natural Flavors" - using distilled grain alchohol to get flavors from the fruit.

the post I found: Open Original Shared Link

Wow, that's a heavy duty thread. Good example of how emotions get going back and forth on these forums sometimes.

For what it's worth, I eat flavored yogurt every morning with no problems. Apparently, the distilled vinegars used to process the fruit doesn't bother me. Personally, I think they're (the manufacturers) just saying that to CTA. Yes, there's probably a possibility of trace amounts of gluten. But it's most likely not enough to affect anyone but the most sensitive.

Bottom line, there's not enough evidence for me personally to limit my yogurt consumption to only the plain variety.

best regards, lm

p.s., Better keep all that distillation talk away from gfp.

SunnyDyRain Enthusiast
Ok, :unsure: I just read entire thread and I think I am more confused.

Activia prob does not have gluten per se because it is distilled, HOWEVER that still makes some people sick.

Is this a correct interprutation??

Thanks

I guess that would be true, I got sick from it, but others don't seem to.

It's weird because I seem to handle alcohol ok without getting sick. Would Jack Daniels be the same type of Distilled Grain Alcohol?

sfm Apprentice
I guess that would be true, I got sick from it, but others don't seem to.

It's weird because I seem to handle alcohol ok without getting sick. Would Jack Daniels be the same type of Distilled Grain Alcohol?

Are you sure that it isn't a dairy issue? I would love to have yogurt, but can't because I have a casein sensitivity. It's not as severe an intolerance as the gluten, but I still have to watch my dairy.

Just a thought..

Sheryll

SunnyDyRain Enthusiast
Are you sure that it isn't a dairy issue? I would love to have yogurt, but can't because I have a casein sensitivity. It's not as severe an intolerance as the gluten, but I still have to watch my dairy.

Just a thought..

Sheryll

I sort of douby it, I have coffee with milk every morning, rita's custard at least once a mo, cheese on a daily basis, chocolate milk 1-2 times a week...

I eat a good amount of dairy on a daily basis... unless i'm reacting to the yogourt cultures....

lovegrov Collaborator

It's hard to imagine the alcohol used to extract flavor is the culprit here. First, the alcohol might not even be wheat. Second, it's distilled. Third, the amount is so miniscule it's not even measureable.

richard

jmd3 Contributor
It's hard to imagine the alcohol used to extract flavor is the culprit here. First, the alcohol might not even be wheat. Second, it's distilled. Third, the amount is so miniscule it's not even measureable.

richard

Dannon company rep explained this process to me....When they put the FLAVORS into the yogart the alcohol burns at a high temp , making a by-product - thus "possibly" putting into the yogart same traces of gluten...that is why the companies can not say they are gluten free.

I am told only the PLAIN yogart of most companies are the only ones guar. to be gluten-free - of course unless stated on the packaging.

This is just what was explained to me -

When I was at my last Gastro Dr appt. ( 2 weeks ago) I told my Dr I thought I was gluten-free...he asked me if I was eating flavored yogart - then he told me it wasn't gluten-free if I bought the flavored kinds from the grocery store...- The Dr. also told me he makes his own yogart - just like someone who posted before me...The GI Dr. told me the same thing about flavored yogart as the Dannon Company rep

So now I am eating plain with fruit, and learning how to make my own.

missy'smom Collaborator

I make this fruit sauce with whatever is at it's best in terms of flavor and price and stir it into my yogurt.

Open Original Shared Link

When I use peaches I use orange instead of lemon juice.

SunnyDyRain Enthusiast

I'd like to try making yogert some day.... but I hardly have time to cook dinner!

I eat yogurt so because it's easy, not so much cuz I like it...

One more food off limits :(

JennyC Enthusiast

I bought a subscription to Clan Thompson's software. (Not sure it was worth it, but that's another story.) According to the software, Albertson's, Tillamook, and Lucrene (Sefeway) yogurt are gluten free. Yoplait will clearly list the ingredients. Dannon uses gluten products as stabilizers.

Just thought I would share.

loraleena Contributor

Please don't fall for Activia commercials. This is non organic yogurt with sugar. It will not help you. Use an organic plain yogurt with live cultures. Any yogurt with sugar will only feed any yeast overgrowth you may have.

Nic Collaborator
I sort of douby it, I have coffee with milk every morning, rita's custard at least once a mo, cheese on a daily basis, chocolate milk 1-2 times a week...

I eat a good amount of dairy on a daily basis... unless i'm reacting to the yogourt cultures....

The nutritionist from my son's gastro. doctor said that with a lactose intolerance it is not always as cut and dry as with gluten. Some people who are intolerant do produce some lactase and therefore can digest some dairy without a problem. So she said in actuality, someone who is lactose intolerant might be able to eat some dairy with breakfast or lunch without a problem but then if they eat more later it might be a problem. Also, certain foods that contain dairy don't contain as much lactose as others. She gave me a list of things to try adding back in to see if there is any affect and yogurt was way up the list with milk. So I would guess that means that yogurt might me hard to digest for people with a dairy issue.

Nicole

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.