Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brands


ginap73

Recommended Posts

ginap73 Apprentice

I find I cannot eat certain brands of gluten free foods. Just because it says gluten free doens't mean I can eat it. :(

Was terribly sick this week after my grandmother bought me some gluten free cookies. I stayed away from them for 2 days... then ate them again, the same thing happened. so i now know to avoid that brand.

Is anyone else like that? or is it just me?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

Maybe you have other allergies. Maybe you system is not ready for the cookies. When first going gluten free it is good to stick to basic things as your system starts to rebuild itself.

NoGluGirl Contributor
I find I cannot eat certain brands of gluten free foods. Just because it says gluten free doens't mean I can eat it. :(

Was terribly sick this week after my grandmother bought me some gluten free cookies. I stayed away from them for 2 days... then ate them again, the same thing happened. so i now know to avoid that brand.

Is anyone else like that? or is it just me?

Dear ginap73,

I agree with blueeyedmanda. You probably do have other allergies. Have you done the Enterolab testing? Their panel tests for soy, casein, and egg intolerances as well as gluten. They also do the DNA testing to see if you have the Celiac gene or the gluten intolerance gene. It is a stool test where they use it to test for antibodies to these things. The entire panel is $380. You could also do a rotation diet. I have an overgrowth of yeast, and it can make much of the food I eat not set well. If you have been on a lot of antibiotics, birth control, and/or steroids, it is a good possibility.

Sincerely,

NoGluGirl

justme Enthusiast
Dear ginap73,

I agree with blueeyedmanda. You probably do have other allergies. Have you done the Enterolab testing? Their panel tests for soy, casein, and egg intolerances as well as gluten. They also do the DNA testing to see if you have the Celiac gene or the gluten intolerance gene. It is a stool test where they use it to test for antibodies to these things. The entire panel is $380. You could also do a rotation diet. I have an overgrowth of yeast, and it can make much of the food I eat not set well. If you have been on a lot of antibiotics, birth control, and/or steroids, it is a good possibility.

Sincerely,

NoGluGirl

This enterolab test.. is that through a GI or is it one of those internet order tests? I'm a little weary of those.

UNCHeel Rookie

NoGluGirl

May I ask how they diagnosed you with the yeast overgrowth? I'd like to get tested for that as well?

NoGluGirl Contributor

Dear justme,

It is ordered over the internet. However, many people on here have had it done. They said it is very accurate. I had blood tests and upper and lower GIs done. I do not think the team of doctors knew what to look for with Celiac. Many do not. Some GIs are misinformed to the point it is dangerous. One man on here was told he outgrew Celiac and could go back to a regular diet. You never outgrow Celiac. It is a disease you will have your entire life. The diet is the only way to repair damage and prevent further damage. Now, this man has blunted villi!

Dear UNCHeel,

Most regular MDs refuse to accept Candida as an illness or cause of it. That is why I began seeing a holistic physician last year. There are some other kinds of doctors who do diagnose it. Sikh chiropractors and naturopaths are a good bet, too. Seeing one of these will normally help you get a diagnosis. I also filled out a questionaire.

It does not always manifest with just a regular yeast infection. Symptoms tend to cause gastrointestinal distress as well. Certain symptoms that are typical include a white coating on the tongue, lower abdominal bloating, hormonal problems such as irregular menses, or abnormalities concerning it, headaches, Fibromyalgia, craving sugar, yeasty foods, or alcohol, balance issues, ringing in the ears, and so many more problems. It can cause over 100 different symptoms alone! I found the pathology so fascinating, I wrote a research paper on it. I also discovered I am probably a walking fungus! :( I would be more than happy to send you a copy if you provide your e-mail.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,223
    • Most Online (within 30 mins)
      7,748

    yt1057
    Newest Member
    yt1057
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.