Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Always Have The Same Symptoms When Glutened?

angel42

By angel42
in Coping with Celiac Disease

Recommended Posts

angel42 Enthusiast
angel42
Posted

Hi,

I was just curious. I always experience extreme gi symptoms and brain fog when glutened. I went to dinner two days ago and had terrible brain fog after and all day yesterday but no gi symptoms. I am not sure that it was gluten since I had no gi symptoms but I really feel like the brain fog was the same. Can I have still been glutened even without the gi symptoms? Are everyone's symptoms of glutening always the same? Let me know!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


luvs2eat Collaborator
luvs2eat
Posted

Mine are always the same... WICKED GI symptoms... I tell my husband it's wolverines trying to scratch their way out!!

Don't have brain fog... thank goodness!! Just GI repercussions.

angel42 Enthusiast
angel42
Posted
  • Author

Maybe I am just sleep deprived. My husband and I actually refer to gluten as "poison" cuz that is how I feel when I eat gluten, like I have been poisoned.

chocolatelover Contributor
chocolatelover
Posted

Hmmm...I get it all--GI stuff, mouth sores, brain fog, lack of energy, depression, nasty irritability. I think my husband wanted to divorce me last time I got glutened! :lol:

annie-is-GF Newbie
annie-is-GF
Posted

I was diagnosed not too long ago... a few weeks... and I have been glutened a couple of times since cutting gluten out. My symptoms have been really random - the first time I went from being cheery and happy to being incredibly irritable and groggy in about 15 minutes, with a distended abdomen... the next day I developed a migraine which lasted for 2 days.

This past week I was glutened again at a restaurant (stupid lack of nutritional information!) and I didn't get groggy or irate... just had mild GI symptoms. At least I THINK it was gluten... but maybe it was the ice cream I had :)

It's still very early in the game for me but I have already noticed different reactions to gluten!

gfp Enthusiast
gfp
Posted

I find it tends to vary....

Sometimes a small amount and the GI symptoms are minor but brain fog isn't... then other times if I drop some immoium early I can get less brain fog and who knows...

I also find that for instance a long gradual glutening (such as eating a CC'd item for a week or drinking vodka) are different..

The slow but long term very small amounts tend to hit more randomly on GI but more on neuro... I start loosing feeling in my right pinky... so even the type of glutening seems to affect the subtle parts of it.

Kyalesyin Apprentice
Kyalesyin
Posted

My wife finds that it seems to vary depending on ammount. The sleepwalking toast got her a lot worse than the time I got crumbs in the butter. Brainfog and skin breakouts are her two though, no matter what else she gets, she gets those.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aikiducky Apprentice
aikiducky
Posted

I don't necessarily get bad GI symptoms at all, but brain fog is a guaranteed one if I get glutened. GI symptoms seem to vary a bit depending on amount, time of month, and what else I have eaten at the same time.

Pauliina

NorthernElf Enthusiast
NorthernElf
Posted

My symptoms are somewhat variable.

Always - brain fog, irritability, tiredness, sinus congestion & pain that means major headaches, acid reflux, bloating

Sometimes - the intestinal issues, nausea, joint pain

I had some ice cream last night that definitely had no wheat/gluten ingredients but my sinuses did flare up & I felt really tired - I'm thinking there might have been some cross contamination so I won't eat anymore of it. I didn't have a very good sleep last night.

So...I guess you could say if I have mild exposure (cross contamination), my symptoms are a bit different. If I eat something that has gluten in it in that I didn't realize, my symptoms are more severe AND longer lasting. I *shudder* to think what my symptoms would be if I actually ate bread or something !

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ShariW
      - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

      In addition to gastrointestinal symptoms like diarrhea, I had gastroesophageal reflux that was becoming intolerable despite treatment with PPIs and antacids. When I went gluten-free, the GERD lessened tremendously (as did the other symptoms).
    2. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      Thank you so very much Scott. Just having someone understand my situation is so very helpful. If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    3. Scott Adams
      - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to ...
    4. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748
    ebrown
    Newest Member
    ebrown
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      I think I am gluten intolerant

      By Scott Adams · Posted

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.