Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results Are In


confused

Recommended Posts

confused Community Regular

Well today I got the results back for my stepson, and all of them came back elevated, but the malabsorption. But he does carry one celiac gene and one gluten gene. So since he does not have malabsorption is that a good thing or bad, or was it cause he was already gluten free for a few weeks prior to testing.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

It means you caught the disease before it did so much damage that he wasn't absorbing food.

confused Community Regular

Is anyone else this subtype

Serologic equivalent: HLA-DQ 2,1 (Subtype 2,6)

Im wondering if i should get him a thing here to talk to other teenagers. Does anyone else have their kids on here.

paula

ravenwoodglass Mentor

I am glad you now know and can get him feeling better.

Having him come on the board is a great idea. I would not even ask him his screen name so he could feel he has the freedom to ask whatever questions he needs to. Having other kids to talk to could help alot. The more responsible he feels for his diet the better he may comply, if that is even an issue.

NoGluGirl Contributor
Well today I got the results back for my stepson, and all of them came back elevated, but the malabsorption. But he does carry one celiac gene and one gluten gene. So since he does not have malabsorption is that a good thing or bad, or was it cause he was already gluten free for a few weeks prior to testing.

paula

Dear Paula,

I am glad you found out early! Had he waited until later to do the diet, he might have ended up with much worse health issues. It is great he has no malabsorption. That means you got him diagnosed before it was severe. I think it would be a great idea if you could get him to talk to others!

There may be some of his friends who are sick and do not know what to do. This could help people!

Sincerely,

NoGluGirl

confused Community Regular

Thanks everyone. I am happy that we now know. I am now trying to talk my husband into having the gene test done. I want to know if the celiac gene came from him or my ss mom. I am sure it came from the bio mom since the sister has celiac. But i want to be sure for the sake of the rest of the kids. But he is afraid to find out. So we shall see if i can make him do it lol.

Ok this might be a dumb question but i was wondering, ,since there was no malabsorption does that mean his body was absorbing everything that it was supposed to. Or will he now grow and gain weight from being gluten free. He is very skinny and not as tall as his classmates, and it has made him very sad, so i was hoping maybe being gluten free now that he would grow.

paula

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,955
    • Most Online (within 30 mins)
      7,748

    John767
    Newest Member
    John767
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • John767
      DiGiornos gluten free pizza at one point was  made from a dough derived of wheat starch...yet they were able to call it gluten free probably because it came in at under 20ppm for gluten.  Apparently the recipe was changed and the pizza not longer contains a wheat starch derived crust.  As for the Heinz dressing, it could be an issue with cross contamination with wheat barley and or rye somewhere during the production process.  If you read how Frito-Lays (on their website) designates items gluten free, you will understand the variances in the lengths companies go through in deciding when to put on a gluten free label and when not--Frito-Lays is pretty solid.  Also being in Canada, they may follow a common international rule of less than 20ppm of gluten is all that is required to be labeled gluten free regardless of the grains used to manufacture the product (common in Europe, Central, and South America)...it took a couple of really rough mornings after consuming some Dura Damm (labeled as gluten free outside the USA) for me to realize that it was a gluten reduced beer. Same with Mahou Beer which actually says in Spanish "suitable for celiacs", unfortunately it is not suitable for this celiac and of course the following day was really rough as well...really take the time to read the ingredients because had I read the ingredients of  Mahou's "suitable for celiacs" "sin gluten" beer I would have noticed that it was made from cabada (Spanish for barley)...hope this helps...        
    • Wheatwacked
      Here is an article that explains test results and what they mean.  Testing for Celiac Disease is so elusive, any positive, unless a lab error false positive, is evident of Celiac.  It is easier to be in denial, tnan committing to gluten free.  Like not believing a pregnancy test.  Denial will lead to more suffering. Are You Confused About Your Celiac Disease Lab Results?
    • Wheatwacked
      I believe that what triggers acute Celiac Disease is vitamin D deficiency.  When we have stress it depletes our already low vitamin D, (40% to 60% of us in the industrial world are deficient) allowing the Celiac genes and the immune system to run amuck.  At 93 ng/ml 25(OH)D blood level, the last time I accidentally glutened myself, all that I got was a runny nose and burning eyes three days later.  It took 8 years, taking 10,000 IU a day to get to this blood level. Vitamin D Is Not as Toxic as Was Once Thought Possible Role of Vitamin D in Celiac Disease Onset So true.  If I am working on something I'm enjoying, I put off eating because after I eat I mostly feel worse.  Not so much anymore, but it's been a life long struggle with the anorexia.  M&M Peanuts is a good go-to snack.  For the dairy Kosher Dill pickles, brine fermented, not vinegar quick pickles (vinegar kills the bacteria), will repopulate your gut with Lactobacillus that exretes lactase, the reason adults are not lactose intolerant.  Also, grassfed milk has less omega 6 fatty acids than commercial grain fed dairy. Grassfed omega 6:3 ratio is 1:1; Organic milk 3:1; Commercial Dairy 5:1.  Omega 6 causes inflammation.  The typical western diet is 14:1.  Wheat flour is 22:1.  A good reason not to eat gluten.  Here is a list: High omega-3/low omega-6 I find it interesting that the new diagnosis of Non Celiac Gluten Sensitivity was created 10 years after Norman Borlaug, "the father of the Green Revolution" and our modern grain crops, received the Nobel Peace Prize in 1970.  
    • Heatherisle
      Thanks for your reply. She has been given a date for her endoscopy, 28th of this month, so hopefully she’ll know for sure if she definitely has coeliac. Needless to say she’s dreading it!!!!
    • Russ H
      That is more than 10x the standard range, so a strong positive. In the UK for children and adults under the age of 55, at least 10x the standard range is sufficient to be diagnosed without having an endoscopy. The NICE guidelines are are different for children in that a referral to a gastroenterologist is also recommended for diagnosis. https://www.coeliac.org.uk/healthcare-professionals/diagnosis/how-to-test/ https://www.coeliac.org.uk/healthcare-professionals/diagnosis/diagnosis-in-children/  
×
×
  • Create New...