Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For Help

spac4c333

By spac4c333
in Doctors

Recommended Posts

spac4c333 Newbie
spac4c333
Posted

Hello, I am new to this forum but in desperate need of help. I have a 10 year old daughter who since 2004 has a stomach ache/ constipation. Back and forth to drs at onset had an endoscopy done he said nothing was wrong giver her pepsid. She had a c-t scan around the same time no outcome. Pains are getting worse I went to a new gastro he put her on a high fiber diet within 2 weeks she has losst most of her eye lashes. At his visit I had 2 years worth of blood work a lot of allergy tests, the nurse looked and asked if she had celiac. Not to my knowledge but thats why I am here. The dr was more concerned with the constipation and not the pains in her stomach. I want to get her tested for celiac and I cant find a dr with enough knowledge of Celiac. Had routine blood work last week they said all is normal. My child isn't normal their is a problem with her, she lays around because she has no energy she eats very often and she is not lazy so please dont get the wrong idea. SHe tries to play with her friends she tires easily. ANy help in the ny nj area i would appreciate it

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Welcome to the Board

If it were me, I would take her off gluten entirely and see if she has a positive dietary response. No doctor needed for that. Although, if you choose to pursue testing, in order for the test to be accurate (as they are not always reliable) she must continue to eat gluten.

Many people here are self-diagnosed and feel very comfortable with that choice.

Celiac disease has over 200 symptoms and your daughter certainly has several.

This site if full of wonderful information regarding celia. Learn as much as you can.

I hope you find a solution soon.

Guest j_mommy
Guest j_mommy
Posted

BE A PUSHY MOM!!!!! :) Tell the Dr what you want(her to be tested for Celiac) and if teh Dr won't do it, choose another. I have had these symptoms for 24 years....my Dr just brushed it off as family history and that it was normal for me. When my son was a year we both switched Dr's b/c that one wasn't listening. It was the best choice I have ever made. This dr immediatly had me tested for celiac when I brought up my "issues"and low and behold I was positive....after 24 yrs I now know what's wrong and can fix it! The best thing you can do is be proactive for you and your daughter. Dr's know alot but this disease is sooooo overlooked and forgotten about.

dionnek Enthusiast
dionnek
Posted

I went through 10 doctors before I foiund one who could figure out what was wrong with me (I had never heard of celiac disease - just got lucky that that was the first thing he tested!). Do a search on the internet for the right tests you need - I can't remember what the website is but the university of chicago has a great celiac website that has a listing of the proper tests. Of course, she has to be eating gluten for the tests to work.

ckmom Rookie
ckmom
Posted

Dionnek -

My 6 yr old daughter was recently dx. with celiac. We live in central NJ. We go to MMH (Morristown Memorial Hospital) The children's Goryeb center. The gastroenterologists there are great! I hope this helps and good luck!

spac4c333 Newbie
spac4c333
Posted
  • Author
Dionnek -

My 6 yr old daughter was recently dx. with celiac. We live in central NJ. We go to MMH (Morristown Memorial Hospital) The children's Goryeb center. The gastroenterologists there are great! I hope this helps and good luck!

Thank You so much I will look into them today

SunnyDyRain Enthusiast
SunnyDyRain
Posted

I had to tell my doctor "I want the celiac blood panel done." She told me that she didn't think my symtoms fit, but agreed to at least try. It came back with anti-bodies, and she told me it was a good call on my part.

I'd ask for the test, it's just a vial of blood. Could help her beyond belief!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
    2. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines? Did it work ?? Thank you !!
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
    4. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do...
    5. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,872
    • Most Online (within 30 mins)
      7,748
    NKamneva
    Newest Member
    NKamneva
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Methylprednisone treatment for inflammation?

      By Colleen H · Posted

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.