Bad Move...

[annie76]

Ok, in almost 10 months being diagnosed I've had my first "product" glutening. I bought this awesome conditioner for my hair, the k-pak the best I've ever used. It only took two times using it over a span of four days, today I woke up like I hadn't slept at all. I knew for sure I had been glutened when I was through my first cup of coffee, and I still felt like I just dragged myself out of bed! This went on all day long. I barely got my kids to school, I couldn't concentrate in my classes, and I was kind of shaky too. Never again! (I hope ) FYI- 3 red bulls didn't even touch it

[gfgypsyqueen]

Sorry to hear you got glutened by conditioner. Irritating isn't it Seems like gluten is in all the good stuff some days. I use Panteene products and don't have trouble. The intensive conditioners are really good too. I have to bring shampoo and conditioner with me when I get my hair cut and dyed. They all think I'm a bit touched in the head.

Hope you feel better soon!

[sansglutengrl]

Annie76,

What are you looking for in a conditioner? I love to change hair products around and I honestly think I have tried EVERY single conditioner in the gluten-free world. Maybe we can help you find something that you love just as much. There's nothing worse than feeling limited by gluten.

-sansglutengrl

[scotty]

ok i did not know this could happen

soaps? toothpaste? hand cream? laundry detergent?!!

i'm sure it has been said before but what's safe

[loraleena]

I can only speak for natural products. I use Avalon organics lavendar face milk and moisturizer, Tom's of Maine Toothpaste, and Shakai shampoo and conditioner. Giovanni's hair products are all gluten free as well. I use Burt's Bee's lip shimmer's for lipstick and Kiss My Face lip balm. Avalon organics makes a nice hand cream as well.

[Nantzie]

  scotty said:

ok i did not know this could happen

soaps? toothpaste? hand cream? laundry detergent?!!

i'm sure it has been said before but what's safe

As far as I'm concerned, this part of finding safe products is MUCH more of a minefield than food. With food there are laws where they have to label pretty much everything. The laws aren't perfect and you have to confirm things like modified food starch and natural flavorings, but it's much better than the labeling on personal care products.

Sometimes it's not until you recognize how your body reacts to gluten that you can pinpoint that something is causing a problem. Then you end up being like a canary in a coal mine with gluten.

I had a deep conditioner that I loved. No listed gluten. But every time I used it, I got zapped. I went back and forth on it, did trial and error, until I was able to determine it was definitely the conditioner that was getting me. So it can take some trial and error with personal care products.

Soaps, yep. You know the fad right now about "natural" and "organic"? At lot of the time that means oats and wheat.

Toothpaste can have gluten. I remember Sensodyne being one that had traces of gluten, although that was a couple years ago, so they may have reformulated. Crest is gluten-free. Not sure about the others.

Lotions can definitely have gluten. The Bath and Bodyworks store brand that is so popular now has oats in just about everything. Again, it's that "natural" and "organic" bandwagon. Most manufacturers of lotions and such have at least some products that are not gluten-free.

Laundry detergent - Arm and Hammer stated at one point that they have possible cross contamination issues. I know Tide is gluten-free, not sure about the rest.

I use Method products (Target) for a lot of things because they don't use gluten in ANY of their products.

Nancy

[NoGluGirl]

  scotty said:

ok i did not know this could happen

soaps? toothpaste? hand cream? laundry detergent?!!

i'm sure it has been said before but what's safe

Dear scotty,

It is scary what all we need to consider, isn't it? There is gluten lurking all over the place!

Sometimes, you think you should just go live in a bubble. The good news is, there are products we can use. I have a little list for you.

Here are some products that we can use:

Dove Soaps, Conditioners, Shampoos, Styling Aids, and Lotions (Labels clearly list gluten if present)

Suave Soaps, Conditioners, Shampoos, Styling Aids, and Lotions (Labels clearly list gluten if present)

Crest Whitening Expressions Toothpastes

Colgate Toothpastes (all)

Glide Floss

SoftSoap Hand Soaps

Colgate Simply White

Johnson & Johnson's Baby Oil

Vaseline Petroleum Jelly

Household Products:

TruGreen Cleaners (all)

Tide Laundry Detergent

Dawn Dishwashing Liquid (all including the Power Disolver!)

All Laundry Detergent

Electrosol Tabs with Power Ball

I hope this helps!

Sincerely,

NoGluGirl

[SillyBoo]

Annie, is it the Joico K-Pak Reconstruct that you used? Just curious if you're having difficulty with the same stuff that I'm using. It doesn't have any obvious gluten in the list of ingredients, but who knows??I'm still having a tough time recovering after 7 months gluten-free, and wonder if I, too, am getting glutened by something like this.

[annie76]

  SillyBoo said:

Annie, is it the Joico K-Pak Reconstruct that you used? Just curious if you're having difficulty with the same stuff that I'm using. It doesn't have any obvious gluten in the list of ingredients, but who knows??I'm still having a tough time recovering after 7 months gluten-free, and wonder if I, too, am getting glutened by something like this.

Nope, its the intense hydrator, it has hydrolized wheat starch, and hydrolized wheat protein in it That is really good to know about the other one, I almost bought that one, so I'm going to trade this one in for the reconstruct, I really like the joico products alot. Thanks julie

[Nantzie]

  annie76 said:

Nope, its the intense hydrator, it has hydrolized wheat starch, and hydrolized wheat protein in it That is really good to know about the other one, I almost bought that one, so I'm going to trade this one in for the reconstruct, I really like the joico products alot. Thanks julie

Keep us posted if you try it and don't get a reaction. I'd give my right arm about now for a decent conditioner. I use Pantene, but that stuff and my hair have never gotten along well.

I've spent almost an hour at Ulta reading labels before, trying to find something. After a while you just give up.

Nancy

[Karen B.]

I remember when I was first diagnosed finding out that Aim toothpaste had gluten in it and it was an "A-hah!" moment. The corners of my mouth had been cracking and splitting and I hadn't thought it could be my toothpaste. I figured it was a side effect of the antihistimines I take. My reaction was "What next?"

I recently had a similar reaction to Crest Sensitive and I understand Crest doesn't put gluten in their toothpastes so I'm beginning to wonder if I'm reactive to something else. I went back to plain old regular Crest and the corners of my mouth cleared up.

I've been told that skin and hair care products don't have to be gluten-free for celiacs because you can't absorb gluten through your skin but I breathe through my mouth in the shower and it's easier to not have to worry it.

[annie76]

  Karen B. said:

I remember when I was first diagnosed finding out that Aim toothpaste had gluten in it and it was an "A-hah!" moment. The corners of my mouth had been cracking and splitting and I hadn't thought it could be my toothpaste. I figured it was a side effect of the antihistimines I take. My reaction was "What next?"

I recently had a similar reaction to Crest Sensitive and I understand Crest doesn't put gluten in their toothpastes so I'm beginning to wonder if I'm reactive to something else. I went back to plain old regular Crest and the corners of my mouth cleared up.

I've been told that skin and hair care products don't have to be gluten-free for celiacs because you can't absorb gluten through your skin but I breathe through my mouth in the shower and it's easier to not have to worry it.

Thats what I heard also, so I took the chance. I think I just got to cozy with this disease and needed a good kick in the butt. Anyhow, I'm posative you can get glutened this way. When your showering your getting the water in your mouth and eyes. Plus I'm a horrible nail biter, I have open hangnails all the time. I also used to use a toothpaste before my diagnosis that made my lips raw and the corners too. I wonder if that was it? I think it was crest or colgate with baking soda...I still shake my head every day with this disease, I'm just such a low-maintenance person its really rediculous to me what we have to do every day!

[mamaloca2]

  annie76 said:

Thats what I heard also, so I took the chance. I think I just got to cozy with this disease and needed a good kick in the butt. Anyhow, I'm posative you can get glutened this way. When your showering your getting the water in your mouth and eyes. Plus I'm a horrible nail biter, I have open hangnails all the time. I also used to use a toothpaste before my diagnosis that made my lips raw and the corners too. I wonder if that was it? I think it was crest or colgate with baking soda...I still shake my head every day with this disease, I'm just such a low-maintenance person its really rediculous to me what we have to do every day!

This disease IS a pain. and I don't ever know what to think! I feel like I've been glutened the last few days, but can't figure out how. I bought that book by Peter Green, and he said if you don't eat it, it can have gluten in it, but from all your testimonials, I'm not so sure if he's right ! I've been staying away from it just in case

[NoGluGirl]

  Nantzie said:

Keep us posted if you try it and don't get a reaction. I'd give my right arm about now for a decent conditioner. I use Pantene, but that stuff and my hair have never gotten along well.

I've spent almost an hour at Ulta reading labels before, trying to find something. After a while you just give up.

Nancy

Dear Nancy,

I use L'Oreal Vive Pro Conditioner. I have colored hair. It is great! You do not have to use a whole lot, either! It lasts for a while. My hair is really long and thick, so if it does good for my hair, it will for anyone!

Sincerely,

NoGluGirl

[Karen B.]

  annie76 said:

Thats what I heard also, so I took the chance. I think I just got to cozy with this disease and needed a good kick in the butt. Anyhow, I'm posative you can get glutened this way. When your showering your getting the water in your mouth and eyes. Plus I'm a horrible nail biter, I have open hangnails all the time. I also used to use a toothpaste before my diagnosis that made my lips raw and the corners too. I wonder if that was it? I think it was crest or colgate with baking soda...I still shake my head every day with this disease, I'm just such a low-maintenance person its really rediculous to me what we have to do every day!

The more I learn about all that can go wrong with the human body, the more amazed I am at how often it works right.

I understand what they say about not absorbing gluten through your skin. But I think we need to consider that when standing in the shower washing your hair, water runs past your face. When washing off a face scrub, you're going to have the rinse water and residue running past your mouth. I breathe through my mouth when rinsing my hair or face because I don't like water in my nose. And why complicate my life by having one more item I have to be careful of?

[Nantzie]

  Karen B. said:

The more I learn about all that can go wrong with the human body, the more amazed I am at how often it works right.

I understand what they say about not absorbing gluten through your skin. But I think we need to consider that when standing in the shower washing your hair, water runs past your face. When washing off a face scrub, you're going to have the rinse water and residue running past your mouth. I breathe through my mouth when rinsing my hair or face because I don't like water in my nose. And why complicate my life by having one more item I have to be careful of?

Now THAT is a phrase you should put in your signature line. Seriously.

That's my theory too. With all the hoops we have to jump through, why complicate things.

I'm going to get the Loreal conditioner to try. Thanks Jin!

Nancy

[NoGluGirl]

  Nantzie said:

Now THAT is a phrase you should put in your signature line. Seriously.

That's my theory too. With all the hoops we have to jump through, why complicate things.

I'm going to get the Loreal conditioner to try. Thanks Jin!

Nancy

Dear Nancy,

You are so welcome! I love L'Oreal's conditioner! It makes your hair so shiny! It also is not overly expensive. Some of these salon products are rediculously priced. Even if any of them are gluten-free, they are way too expensive! I have seen some products for $30 a bottle! They put those things in these magazines to tell you how to get celebrity style. I just want to tell these magazines to get real! We need stuff for people on a real budget! Of course actors and actresses can afford them, they make millions of dollars for a movie!

Sincerely,

Jin

P.S. I too, agree with Karen. We need to make this as easy as we can. Being gluten-free is complicated. Anything that simplifies it is worthwhile. Buying gluten-free shampoos and beauty products is our best bet!

[Karen B.]

  NoGluGirl said:

Dear Nancy,

You are so welcome! I love L'Oreal's conditioner! It makes your hair so shiny! It also is not overly expensive. Some of these salon products are rediculously priced. Even if any of them are gluten-free, they are way too expensive! I have seen some products for $30 a bottle! They put those things in these magazines to tell you how to get celebrity style. I just want to tell these magazines to get real! We need stuff for people on a real budget! Of course actors and actresses can afford them, they make millions of dollars for a movie!

Sincerely,

Jin

P.S. I too, agree with Karen. We need to make this as easy as we can. Being gluten-free is complicated. Anything that simplifies it is worthwhile. Buying gluten-free shampoos and beauty products is our best bet!

Celebrity style -- Pooh! These day's, I'm just happy if I can get my cow licks to lay down and not stick up. :-) My hair is getting more cantankerous as I get older. I swear I'm going to chuck it all and get a buzz cut one of these days.

[DarkIvy]

Oh man... I hate how so many hair products have gluten.

For me it's even more of a pain: I can't use regular drugstore brands because of the chemicals. Polyquaterniums, artificial colorings, and artificial fragrances basically kill my skin. It leaves me with all of the "natural" stuff, 90% of which still have a chemical or two that makes me itch and/or gluten.

When I went gluten free I had to get rid of all my favorite shampoos, conditioners, and my recently bought expensive salon brand hairspray. Oh, and all of my sunless tanner. Ironic that I thought using sunless tanner would be SAFE. At least the sun is gluten free

I've settled on Giovanni products. I did their trial size first, and I actually really like it. It runs about $7 a bottle, but things that size usually last me a couple of months anyway. It feels and smells like a salon product but is gluten free and natural. I've been using the 50/50 shampoo and conditioner, but I think they also make some deep treatments. You can always make your own deep treatments out of things like shea butter or almond oil.

[NoGluGirl]

  Karen B. said:

Celebrity style -- Pooh! These day's, I'm just happy if I can get my cow licks to lay down and not stick up. :-) My hair is getting more cantankerous as I get older. I swear I'm going to chuck it all and get a buzz cut one of these days.

Dear Karen,

ROFL! I know what you mean. I keep mine long just to keep my cowlicks down! That is the only way they do not go crazy! I was wanting to do my hair like Jennifer Aniston's, but just to get it done would not only be a lengthy process, but an expensive one! There is no way we could afford to maintain it! Plus, I would have to worry about all of the products they were using on me, whether they had gluten. I thought, you know, I was kind of hoping for a reason to stick with the black hair anyway!

Dear DarkIvy,

I have heard good things about Giovanni. I will keep that in mind. I was hoping Toma's Tan Perfect would be safe, but have yet to find anything on it. It was the best stuff I ever used! You have a color guide, and it was great! You could not miss a spot, or over apply! It did not smell like varnish either!

Sincerely,

NoGluGirl

[DarkIvy]

  NoGluGirl said:

Dear Karen,

ROFL! I know what you mean. I keep mine long just to keep my cowlicks down! That is the only way they do not go crazy! I was wanting to do my hair like Jennifer Aniston's, but just to get it done would not only be a lengthy process, but an expensive one! There is no way we could afford to maintain it! Plus, I would have to worry about all of the products they were using on me, whether they had gluten. I thought, you know, I was kind of hoping for a reason to stick with the black hair anyway!

Dear DarkIvy,

I have heard good things about Giovanni. I will keep that in mind. I was hoping Toma's Tan Perfect would be safe, but have yet to find anything on it. It was the best stuff I ever used! You have a color guide, and it was great! You could not miss a spot, or over apply! It did not smell like varnish either!

Sincerely,

NoGluGirl

I'd never even tried Giovanni until desperation pushed me towards it. I was not only pleasantly surprised, but actually kind of amazed that I'd never tried it before. I'm well known for trying any and all beauty products I can get my hands on.

I've never been crazy about self-tanners... but I'd decided to try the Jergen's Natural Glow stuff for kicks before I went gluten free. It has oats or something else in it that was really questionable. The bottle's in my mom's room so I can't double check. It worked pretty well, but MAN it made my skin itch. My skin is always itchy, though that problem all but went away once I tried going gluten free. The Natural Glow made it worse than "usual" so I'd never touch it again. Never heard of the Toma's Tan, I should look into it!

[NoGluGirl]

  DarkIvy said:

I'd never even tried Giovanni until desperation pushed me towards it. I was not only pleasantly surprised, but actually kind of amazed that I'd never tried it before. I'm well known for trying any and all beauty products I can get my hands on.

I've never been crazy about self-tanners... but I'd decided to try the Jergen's Natural Glow stuff for kicks before I went gluten free. It has oats or something else in it that was really questionable. The bottle's in my mom's room so I can't double check. It worked pretty well, but MAN it made my skin itch. My skin is always itchy, though that problem all but went away once I tried going gluten free. The Natural Glow made it worse than "usual" so I'd never touch it again. Never heard of the Toma's Tan, I should look into it!

Dear DarkIvy,

I am happy using my L'Oreal Vive Pro conditioner for now. Giovanni is probably out of our price range. Since I have something I can afford and am satisfied with, I suppose it is wise to stick with it! I was surprised VivePro was safe. It turns out, L'Oreal is good about labeling.

I have to use self-tanners, because I cannot get out in the sun. There is a history of skin cancer in our family. You do not want to tempt fate, you know? I never used anything but Tan Perfect after I tried it. The stuff is the best! Everything else I tried (practically every one on the market) made me look like a zebra, no matter how carefully I applied it. I hope it is gluten-free, but have not been able to find anything on it.

Sincerely,

NoGluGirl