Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oats


roo#9

Recommended Posts

roo#9 Newbie

Hey,

I was just wondering if you guys eat oats or do you cut them out, because I have heared that it is only oats that are grown around wheat that are bad for some celiacs. I have tried Scottish and Irish oats because they are not made with wheat, and I felt pretty good.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Apparently, some Celiacs can eat oats, while others cannot. Many choose not to attempt it because of the Cross-Contamination issues. From what I understand, CC is a problem when oats are milled or otherwise process in the same facilities as wheat, barley, and/or rye, or on the same equipment as those grains.

I don't know if I can eat oats without problems, but until I can obtain a better level of healing, I dare not try.

Teacher1958 Apprentice
Hey,

I was just wondering if you guys eat oats or do you cut them out, because I have heared that it is only oats that are grown around wheat that are bad for some celiacs. I have tried Scottish and Irish oats because they are not made with wheat, and I felt pretty good.

I was wheat/gluten free for over a week when I tried oats, and I very quickly had symptoms, and the depression came back with a vengeance. I will not touch them now.

darlindeb25 Collaborator

I do not trust them either. I do not think they know enough yet about oats to say they are safe. Oats always made me ill anyways. I find it very hard to believe that a company can guarantee they are safe. That company would have to grow their own oats, mill them on their own property, and never, ever have wheat there for any other product just to prevent the cross contamination issue. Outside of that, I still do not trust oats.

I would also like to remind some of you. Sometimes, there are glutens that do not make you react outwardly, yet are still causing harm on the inside. Barley, in the beginning, did not cause an outward reaction in me.

Deb

tarnalberry Community Regular

oats have two entirely separate issues:

1) oats are uniquely subject to cross contamination. they are often grown in rotation with wheat, or nearby to wheat and then milled, stored, and transported in shared or co-located facilities. contamination from the seed-up, really. (really really - you'll get wheat seeds in oat seeds in cases like this and can't prevent one grain from growing in a crop with another.)

there are now, in the past three years or so, a handful of US and Canadian growers who specialize in wheat-free oat fields and production. they are more expensive, but the sift their seed, don't crop rotate with wheat, and don't co-locate with wheat facilities.

2) the oat protein, avenin, is molecularly similar to the wheat protein, gliadin. similar enough, that some people's bodies see it as one in the same, and whoosh - there goes the classic celiac reaction. studies trying to confirm the safety of oats have found that approximately 10% of the celiac population react to oats with the classic celiac autoimmune reaction. and there is currently no seriologic way to determine this, outside of an extensive oat challenge, followed by at least blood work, if not a biopsy if you're not highly symptomatic. (and we all know how wonderfully reliably that is.)

Guest j_mommy

I second some of the opinions above!!!

In teh end I'm just too leary of them to try it.....the cross contamination issues!!!!

I wasn't a big oat eater prior to going gluten-free so I don't miss them much.

Mango04 Enthusiast

I eat certified gluten-free oats in moderation. They don't give me any problems.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sixtytwo Apprentice

Oats give me pains in my stomach and boy, do I miss them. However, now I eat cream of buckwheat nearly every morning, I just don't seem to get sick of it----could be the sugar I put on it!!!! There is quite a big of fiber in it and it really starts my day our swell. It is available at most health food stores, but I have never seen it at the mainstream grocery stores and as usual/expensive. It ain't cheap to eat gluten free. Barbara

emcmaster Collaborator

I eat certified gluten free oats (glutenfreeoats.com) several times a week and have no problems whatsoever. I thank God that I am one of those celiacs that can handle oats, because they are a big part of my clean diet.

mamabear Explorer

I have no problem with oats. My favorite dessert is a no bake chocolate/peanut butter/oats cookie...heated and gooey.....thank goodness I don't have a problem with it!! :D

little d Enthusiast

I can eat oats when i make them for my family but sometimes i do get a reactions just really depends because my reactions vary everytime i eat something. At one time i believed that i had a total reaction with them because I would eat oatmeal with wheat or white toast and by 1pm total gas pain that would wake me up from a sound sleep and i would have to rush to the restroom. until i figured that it was the wheat or white toast that was making me react. then i switched to gluten-free bread and not a problem sometime yes sometimes no.

donna

aikiducky Apprentice

I've tried pure oats, but I didn't like the taste any more! :) I didn't have any problems though.

Pauliina

ArtGirl Enthusiast
I eat certified gluten-free oats in moderation. They don't give me any problems.

Same here. I only use a small amount added to other flours in baking or in meatloaf.

hlm34 Apprentice

I've done oats with no problems, outwardly or inwardly, my doctor checked. i am so happy to have oats. I am lucky that i am in the percentage that i am ok with them.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.