Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am So Lost/confused

Lissa

Recommended Posts

Lissa Apprentice
Lissa
Posted

I went gluten free on Tuesday.

I made the decision early Tuesday morning (around 3AM) when I was curled in the fetal position on my bathroom floor from eating pizza for dinner on Monday.

I never looked back, resisted all temptation for any gluteny food, stuck to the diet. I think I was doing better, (I hadn't had any D after tuesday), but I can't be sure. I'm at the point where I've been sick for so long that I can't tell anymore. Anyways, I was good until Saturday, when there was desserts. I gave in and I ate some. It was a girls night, and I don't know, I really wanted to test myself. See if I was really Celiac. So I had a nice helping of some cake and baclava. I didn't react! Is 4 days too soon to feel better? I'm so confused. I was almost positive I was having reactions to gluten...until I didn't. Am I a raging hypochrondiac? Or is it possible that I wasn't better at all, therefore, when I ate the gluten, it didn't make a difference?

really hoping you can give me some answers,

Lissa

PS - thank you for answering all my questions! I don't know where I would be without all you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted

Some people do slip and no have a visible reaction, like D or stomach pains. Had you been told you had celiac prior to deciding to go gluten free on Tuesday? If you had blood tests or something, I would say do not touch gluten foods again, you are doing damage even if you do not know it by not having a reaction. If you are just trying the diet to see if will help you feel better, I would give it a little longer than 4 days to see how you are doing. Hope that helps.

confused Community Regular
confused
Posted

Maybe you are not reacting to gluten but to casein. Are you an diagnosed celiac?

paula

BRUMI1968 Collaborator
BRUMI1968
Posted

I've spent much of my life in the fetal position, or crawling across the floor to the bathroom, so full of air and inflammation that i couldn't bear to stand - and then go sit uselessly on the toilet (was constipation, not D). At work I spent hours in the bathroom hoping no one would notice as I cried, hoping to get some relief. Ouch. What was the trigger 9/10 of the time? PIZZA. SPAGHETTI. These were the two biggest ones. As a child I ended up throwing up as much pizza as I kept down.

At first I thought it was cooked tomato sauce. that does bug me. then maybe garlic, which also bugs me. I only found out a bit over a year ago that I have Celiac Disease. It all made sense. Now I can eat small doses of tomato or garlic, but not too much (maybe even just from memory). I also can't do dairy; even the smallest amount gives me Constipation quite badly.

BUT...I didn't react every time I had pizza. In fact, I didn't make the connection for years and years.

If you have insurance, you might want to get the blood test for Celiac -- then you'll know you need to stick to gluten-free for your life, like someone else said, even if you have no symptoms ever again. If you don't have insurance - try going gluten free again, and see how you feel. OR, go casein free for a week but eat gluten - to see if it might be that. Some of the same symptoms occur.

I've blathered. My point: you might not react every time to gluten - sometimes it might be cumulative (like it is for me with chocolate -- good for a while, then bam). Take care.

rinne Apprentice
rinne
Posted

Hi Lissa and welcome. :)

For years I thought I was getting away with exactly what you are describing. I would cut out wheat for a while and feel better and then challenge myself with bread or pastry and do okay the first time and maybe even the second time but then I would be right back into all my symptoms of C and bloating.

I say I thought I was getting away with it because over a year ago my entire gastric tract went up in flames and I was unable to eat at all. I lost 40 pounds too quickly and was in great pain.

I have since given up, in addition to the gluten and it has been over a year now, dairy, nightshades, all grains, coffee..... the list goes on.

I have a sister and brother diagnosed with Celiac and another sister and brother who have gone gluten free because of problems. I suspect I have Celiac although I have not had a test that confirms it.

I also have Lyme, mercury and candida problems which contribute to my limited diet.

A diet can be a diagnostic tool, trust your body. :)

little d Enthusiast
little d
Posted
I've spent much of my life in the fetal position, or crawling across the floor to the bathroom, so full of air and inflammation that i couldn't bear to stand - and then go sit uselessly on the toilet (was constipation, not D). At work I spent hours in the bathroom hoping no one would notice as I cried, hoping to get some relief. Ouch. What was the trigger 9/10 of the time? PIZZA. SPAGHETTI. These were the two biggest ones. As a child I ended up throwing up as much pizza as I kept down.

At first I thought it was cooked tomato sauce. that does bug me. then maybe garlic, which also bugs me. I only found out a bit over a year ago that I have Celiac Disease. It all made sense. Now I can eat small doses of tomato or garlic, but not too much (maybe even just from memory). I also can't do dairy; even the smallest amount gives me Constipation quite badly.

BUT...I didn't react every time I had pizza. In fact, I didn't make the connection for years and years.

If you have insurance, you might want to get the blood test for Celiac -- then you'll know you need to stick to gluten-free for your life, like someone else said, even if you have no symptoms ever again. If you don't have insurance - try going gluten free again, and see how you feel. OR, go casein free for a week but eat gluten - to see if it might be that. Some of the same symptoms occur.

I've blathered. My point: you might not react every time to gluten - sometimes it might be cumulative (like it is for me with chocolate -- good for a while, then bam). Take care.

I too react just like this but for me we were having a lot of spegetti for dinner, which had onions I cut those out for over a year an I would have such horrible gas pain I felt like I was having a baby, which I was not pregnate. then I don't know the next time we had spegetti no reaction at all and I made it the same way. down to the bread, but the only thing that I reacted to always consistantly was Life Cinnimon ceral my fav of all time not the reaction.

donna

Lissa Apprentice
Lissa
Posted
  • Author

Thanks for the replies everyone!

A couple of questions/answers:

1) I had the test and it came back negative.

2) What's casein?!

3) I always react to pizza as well!

Thanks for the help and everything, I'm sorry the post is so short, but I'm expected somewhere right away. THANKS!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,916
    • Most Online (within 30 mins)
      7,748
    kls888
    Newest Member
    kls888
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you, a little expensive but glad to have this source. 
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.