Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fatigue Is Back With A Vengeance


Lisa

Recommended Posts

Lisa Mentor

With efforts, I write this post. The fatigue is back big time.

I do have to admit that I do not have much of an appetite and have not in many years. I cook well and explore some great dinners. I can cook some drop dead dinners and I will eat that. But day to day, there is no desire to eat. No, I am not anorexic.

I have been cooking for an elderly friend in her house and toting my pot and pans to her house to cook the meals for two weeks now. Maybe a little stress involved here. But, I am just draggin.

How and what fuels do I need to consume to feel better. Iron fuels, like broccoli.....?

I do think another blood panel is due. Sorry, a little soup cry.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



oceangirl Collaborator

Lisa,

I'm very sorry you're not feeling up to snuff! You have been so helpful to me in the past I am wishing I had some great suggestions. In terms of foods to "beef you up"- do you eat beef? Then I would recommend my Mom's old stand-by- liver! Chicken livers are pretty tasty actually and very high in iron. I also think brazil nuts are good as well as molasses. (old-fashioned remedies) A blood test wouldn't be a bad idea. (I am thinking the same...) Salmon is rich in calcium and many other good things; I eat it a lot. I always buy it fresh, not in the can, hopefully, in N. Carolina you can find it this way as well. I hope you feel better very soon!

lisa

mftnchn Explorer

There are so many causes of fatigue.

So just one idea: what about beefing up your regime to eliminate toxins? Like more water, probiotics, activated carbon to absorb toxins in your intestine. If you are dealing with the big C instead of the big D--a little extra help so you are eliminating every day?

Also in the heat, electrolyte depletion perhaps?? So a sports drink maybe or your own mixture?

nikki-uk Enthusiast

I've no great ideas I'm afraid Lisa as my hubby suffers the same thing (fatigue/lack of appetite) most of the time. :rolleyes:

Just checking the obvious - anaemia/hypothyroid been crossed off the list???

Hope you feel better soon :)

CarlaB Enthusiast

Lisa (Nikki, too), I take NT Factor for fatigue and it's really helped. I get it from my doctor so I can get the full-strength stuff. Google it and read about it.

DestinyLeah Apprentice

Must be fatigue week on the boards. I have not had an appetite since I cut gluten, but I have never felt like it was a huge effort to drag myself across the room to the computer. To make matters even worse, when I do lie down, there is no sleep. And when I finally fall asleep, staying that was does not happen on the best of nights. Add to that the fact that I can no longer sit in the summer heat without a sweater, and the hubby likes the air on at night, and we have a major issue.

So while I cannot help at all, you have my sympathy. I know how you feel.

pedro Explorer

Hi Lisa

I am sorry you are not feeling well. If are eating well, and you are having time to rest, please make sure your doctor order some blood work. It only takes a couple of minutes, and you will get lots of answers. I hope and pary you get your energy back. Your are an incredible person.

Many blessings to you and your family.

Please let us know of your progress.

Take care.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nikki-uk Enthusiast
Add to that the fact that I can no longer sit in the summer heat without a sweater, and the hubby likes the air on at night, and we have a major issue.

A-ha!!..another cold person (my hubby is always cold)

Have you had your thyroid checked?? ( hubby's TSH come back ok :huh: )

DestinyLeah Apprentice

It is 99 out today, and I am wearing my fluffy red sweater like a dork.

Thyroid levels were checked, and came back just fine.

Edited to include:

A notable factor in my cold naturedness is that it started when I cut gluten from my diet, has gotten worse over time, along with very dry mouth and throat and itchy red eyes. But when I do overheat, it takes hours to cool off, and usually a very cold bath and bed rest under a fan.

nikki-uk Enthusiast
along with very dry mouth and throat and itchy red eyes.

This sentence jumped out at me .You might want to have a look at Open Original Shared Link to see if it matches your symptoms?

Janeti Apprentice
This sentence jumped out at me .You might want to have a look at Open Original Shared Link to see if it matches your symptoms?

I am going to have to jump right in here. I can't stand the fatigue. Sometimes my eyes just want to close, so I will go and lie down and wind up staring at the ceiling...why can't I sleep?? I also have very sore muscles though, is this a vitamin deficiency?

Lisa Mentor

Fatigue can very much be from deficiencies. B-12 injection or sublinual can be very helpful.

Avoid stress, for me, it puts me right onto the sofa for days.

Karen B. Explorer
Add to that the fact that I can no longer sit in the summer heat without a sweater, and the hubby likes the air on at night, and we have a major issue.

Before my Celiac diagnosis, I had this problem and read somewhere that kelp would halp it. I started taking kelp supplements and it did help. All kelp supplements do is provide iodine for your thyroid. However, my thyroid always tests normal.

Since going gluten-free, I haven't had this problem and don't have to take kelp. I can only assume that I'm absorbing iodine from my food now.

Also, I use B-12 Blast drops from Bricker Labs (get it at Whole Foods) for an extra boost on B-12 and Folic Acid. I tend to run low on these and that makes me draggy.

1-out-of-133 Newbie

Hi Momma Goose,

I hate being tired also. Sorry to add just another "thing" when you are tired, but I have studied quite a bit of Traditional Chinese Medicine. If you are cold, please don't take any kelp-- it will just make you colder. Either go see an acupuncturist or for a simple but "not really having a diagnosis"-- look into ginseng. Chinese ginseng is the most warming, but all (American or Korean) will add some energy back into you. I hope your energy returns soon, you're important.

DestinyLeah Apprentice

Sjorgen's describes me to a t. What kind of doctor tests for that, though?

Karen B. Explorer
Hi Momma Goose,

I hate being tired also. Sorry to add just another "thing" when you are tired, but I have studied quite a bit of Traditional Chinese Medicine. If you are cold, please don't take any kelp-- it will just make you colder. Either go see an acupuncturist or for a simple but "not really having a diagnosis"-- look into ginseng. Chinese ginseng is the most warming, but all (American or Korean) will add some energy back into you. I hope your energy returns soon, you're important.

I suspect it depends on why you are cold. Pre-diagnosis, every time I backed off of the kelp, I got freezing spells where I couldn't warm up unless I had soup or some such. That was a few years ago when I didn't know I had Celiac and wasn't absorbing my nutrients, now I no longer need it. But I really was glad it worked for me when I was experiencing the cold spells.

I have heard of using ginseng tea to warm up and ginger tea too but I've always wondered if it was the hot tea or the herb in it that does the job.

Phyllis28 Apprentice

Momma Goose,

I am sorry you not feeling well. I hope you feel better soon.

Lisa Mentor
Momma Goose,

I am sorry you not feeling well. I hope you feel better soon.

Thanks Phyllis,

I think alot has to do with stress. I have taken on the role of a caregiver and managing two homes. That certainly is not an easy job. I'm just plumb worn out.

I'm going to start with Folic suppliments and hope that will help a little, in addition to the b-12 and daily vit.

Thank you all for your suggestions.

KAG Rookie

Momma Goose,

I have always thought it would be wonderful if we only had to eat overy other day. If I could just cook 3 or 4 times a week I would be happy. This 3 times a day thing is tedious and boring. I have young kids and I know that it's hard to be the one watching out for others nutrition as well as your own. As far as being tired, I always feel better when I cut out any sugar and/or processed foods. Chicken soup makes me and my intestines feel much better. And although you may not feel like it, being out in nature and out the in the sun (careful not to burn!) going for a walk always helps me sleep better at night.

Hope you feel better soon.

Kim

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,123
    • Most Online (within 30 mins)
      7,748

    Donnay21
    Newest Member
    Donnay21
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.