Nervous

[angel-jd1]

I'm a bit nervous. One week from today I am going to see a G.I. I have been pretty sick ( you can read more about it here Open Original Shared Link )and my primary wanted me to go see the G.I.

I haven't been to anybody (other than my general pract.) since my diagnosis!!! I am pretty nervous and a bit scared.

My GP did run my celiac pannel recently and it came back "negative". However, the lab didn't send my exact numbers so I am waiting on medical records to send those to me. I was SUPER relieved to have that come back negative. That means I am doing what I need to do in terms of my celiac

I feel ok as long as I am on antibiotics, but when I stop those the pain comes back in my abdomen. I'm just scared of what it can be. I think probably diverticulitis, however with all the antibiotics I have been on I would have thought it would have cured up the infection and I would be 100% better, however I am not.

Last night I threw up and threw up and threw up so hard that I wet my pants and broke blood vessels in my eyes!! I'm sick of feeling sick!

Why am I posting this.......I don't know. I'm just nervous and I know you all know how that feels. Thanks for listening!

-Jessica

[Guest j_mommy]

I do hope you feel better soon!!!! I can't offer much except words of wishing well!!! I wish I could do more. I hope your GI can do something!

[melmak5]

Good luck!

I have a GI appointment tomorrow too! (its my second)

Mine was 10x more helpful than my primary and was the first person to say "we are going to get to the bottom of this and get you feeling better."

During the visit he palpated my abdomen, asked me a ton of questions and then ordered test and labs.

It was "easy" compared to visits that involved invasive stuff.

I tend to get nervous in hospitals/doctors offices, so I find it really helpful to write down all of my questions ahead of time, so that I don't forget one.

I hope things go well for you.

[angel-jd1]

Thanks for the kind words. I'm just nervous.......hopefully that goes away before Monday (prob not ha ) They called to confirm/remind me about my appointment today. The people all sound very nice at the office, I guess it's just the fear of "not knowing" that gets to me. Thanks again for the encouragement

-Jessica

[kbtoyssni]

Good luck. I hope everything goes well.

Are you taking any probiotics to counter the effects of antibiotics?

[angel-jd1]

Good luck. I hope everything goes well.

Are you taking any probiotics to counter the effects of antibiotics?

OH yes lol Not sure what kind of shape I would be without them after so many rounds of antibiotics.....

[angel-jd1]

The closer that it gets to Monday, the more nervous I get. I keep trying to talk myself out of being nervous, but so far it isn't working. My Mom is going with me now, so that makes me feel a bit better, but I really hate meeting new doctors. I think I have some phobia of them because of all the trouble I had trying to figure out what was wrong (ended up with my celiac diagnosis). I know many of you can relate with that MD fear lol.

I keep thinking that I should make a list of questions to ask, but I really don't have but one "why do I have this pain".

I need to just stop worrying about it, but that's near impossible!! ha

-Jessica

[angel-jd1]

I went to the big fancy GI today. I am not so sure if I am happy with him. My mom thought he was GREAT.....I on the other hand have not decided yet.

He wants to run tests (duh I figured that). He thinks that maybe my celiac diagnosis is wrong....ummm ok then why do I hurl and am sick for weeks when I eat gluten?!?!! Why has the gluten free diet worked great for the last 5 years with no real troubles until now, and why are my symptoms different than the ones I had before when I got my diagnosis.

He thinks maybe it's irritable bowel....to which I said "is irritable bowel even a real diagnosis for anything" Isn't it sort of a catch all for when things can't be figured out(I don't think he liked that question much).

He said that I could very well have celiac or just feel better on a gluten free diet (duh I've felt better for the last 5 years......)

Thinks that maybe I should eat some gluten to see how I feel. Told him that I was about to die before, and not eating gluten has made me have my life back...sooo I'm not going back to eating gluten again. PERIOD! He did say that was fine and would be best to do that if it makes me sick. DUH!!

He wants to wait until I am in severe pain to run a CT scan and more blood work and a scope. YEAH.....soooo you mean I have to get severely sick again until you will test me?? LOL His answer "yeah".

Thinks it may be diverticulitis causing all the trouble.....however without a CT and a scope he won't say for sure (ok this point actually makes sense to me).

He did a physical exam of my stomach (poking around) and I about decked him when he poked around on my right side. He knew I was in a HUGE amount of pain. He kept appologizing. He said the pain can be internal or can be muscle/skeletal pain. He said it's hard to tell without the scopes and ct (this part also makes sense to me).

So the plan is to wait until I am in pain again, schedule a CT and CBC.

So for now....I sit and stew and decide what I think of this doctor and wait for the pain to REALLY kick in to get some answers....*sigh*

-Jessica

[ravenwoodglass]

I went to the big fancy GI today. I am not so sure if I am happy with him. My mom thought he was GREAT.....I on the other hand have not decided yet.

He wants to run tests (duh I figured that). He thinks that maybe my celiac diagnosis is wrong....ummm ok then why do I hurl and am sick for weeks when I eat gluten?!?!! Why has the gluten free diet worked great for the last 5 years with no real troubles until now, and why are my symptoms different than the ones I had before when I got my diagnosis.

He thinks maybe it's irritable bowel....to which I said "is irritable bowel even a real diagnosis for anything" Isn't it sort of a catch all for when things can't be figured out(I don't think he liked that question much).

He said that I could very well have celiac or just feel better on a gluten free diet (duh I've felt better for the last 5 years......)

Thinks that maybe I should eat some gluten to see how I feel. Told him that I was about to die before, and not eating gluten has made me have my life back...sooo I'm not going back to eating gluten again. PERIOD! He did say that was fine and would be best to do that if it makes me sick. DUH!!

He wants to wait until I am in severe pain to run a CT scan and more blood work and a scope. YEAH.....soooo you mean I have to get severely sick again until you will test me?? LOL His answer "yeah".

Thinks it may be diverticulitis causing all the trouble.....however without a CT and a scope he won't say for sure (ok this point actually makes sense to me).

He did a physical exam of my stomach (poking around) and I about decked him when he poked around on my right side. He knew I was in a HUGE amount of pain. He kept appologizing. He said the pain can be internal or can be muscle/skeletal pain. He said it's hard to tell without the scopes and ct (this part also makes sense to me).

So the plan is to wait until I am in pain again, schedule a CT and CBC.

So for now....I sit and stew and decide what I think of this doctor and wait for the pain to REALLY kick in to get some answers....*sigh*

-Jessica

If I were you I would get a second opinion on the issue of waiting to do the CT and the scope. With your celiac diagnosis and your relief on the diet and the fact that your numbers are down confirming that your being dietarily compliant it really is time to find out what is going on.

It is not a bad thing to get a second opinion and if it is diverticulosis that is causing your discomfort the time to find out is not when you are in an active diverticulitis episode. It is reccommended during those that a scope not be done because of the increased risk of intestinal preforation, a slim risk when you are not in an active ill state. One additional word of caution they will when doing a CT scan of your intestines have you drink a contrast material and they may also inject another to enable them to get a clear picture of what is going on. The oral contrast usually contains gluten, you need to be sure the contrast they hand you is water based, it should be clear. The Injectables are not a problem unless you are allergic to iodine.

[angel-jd1]

If I were you I would get a second opinion on the issue of waiting to do the CT and the scope. With your celiac diagnosis and your relief on the diet and the fact that your numbers are down confirming that your being dietarily compliant it really is time to find out what is going on.

It is not a bad thing to get a second opinion and if it is diverticulosis that is causing your discomfort the time to find out is not when you are in an active diverticulitis episode. It is reccommended during those that a scope not be done because of the increased risk of intestinal preforation, a slim risk when you are not in an active ill state. One additional word of caution they will when doing a CT scan of your intestines have you drink a contrast material and they may also inject another to enable them to get a clear picture of what is going on. The oral contrast usually contains gluten, you need to be sure the contrast they hand you is water based, it should be clear. The Injectables are not a problem unless you are allergic to iodine.

I feel soooo tired today and extremely sore where he was pushing on my stomach. It was sore to even a light touch last night. grrrrr

I know he wants the CT scan and CBC done first. I don't think the scope would be the same day, but who knows!! I know it isn't safe to do the scopes when you have infection though, so I wouldn't let him do it. I don't want to cause even MORE troubles

Thanks for reminding me about the nasty stuff you have to drink. I haven't had a CT in about 5 years so I had forgotten about that stuff. I did remember the injection (that makes you feel like you have to pee BAD). I'll be sure to ask about the clear one instead of the chalky drink.

I'm so sick of being sore.......

-Jessica